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LittletonToLima: Our SMA Journey

LittletonToLima: Our SMA Journey. Skip to primary content. Skip to secondary content. I’m not perfect; I can’t walk. July 28, 2017. I’ve been thinking a lot lately about the word perfect. I never realized how often I use it especially at work:. How does this Web page look? Perfect, nice job! I should be able to complete that by Monday. What got me thinking about it was our recent summer vacation to Florida. The kids’ first Disney trip. We were hoping for perfection. And we got it — almost. January 1, 2017.

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LittletonToLima: Our SMA Journey | littletontolima.com Reviews
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LittletonToLima: Our SMA Journey. Skip to primary content. Skip to secondary content. I’m not perfect; I can’t walk. July 28, 2017. I’ve been thinking a lot lately about the word perfect. I never realized how often I use it especially at work:. How does this Web page look? Perfect, nice job! I should be able to complete that by Monday. What got me thinking about it was our recent summer vacation to Florida. The kids’ first Disney trip. We were hoping for perfection. And we got it — almost. January 1, 2017.
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LittletonToLima: Our SMA Journey | littletontolima.com Reviews

https://littletontolima.com

LittletonToLima: Our SMA Journey. Skip to primary content. Skip to secondary content. I’m not perfect; I can’t walk. July 28, 2017. I’ve been thinking a lot lately about the word perfect. I never realized how often I use it especially at work:. How does this Web page look? Perfect, nice job! I should be able to complete that by Monday. What got me thinking about it was our recent summer vacation to Florida. The kids’ first Disney trip. We were hoping for perfection. And we got it — almost. January 1, 2017.

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joy | LittletonToLima: Our SMA Journey

https://littletontolima.com/tag/joy

LittletonToLima: Our SMA Journey. Skip to primary content. Skip to secondary content. August 18, 2016. First day of school breakfast. Adriana’s preschool teacher, Teacher Mary, sent her a surprise note this week Adri’s first week at her new kindergarten. It’s your time to shine, she wrote. Adri’s preschool teachers know Adri’s capacity for learning. Her strong personality and will. Adri’s new kindergarten teachers have only had a couple of days to get to know her. Continue reading →. First day of school.

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Uncategorized | LittletonToLima: Our SMA Journey

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LittletonToLima: Our SMA Journey. Skip to primary content. Skip to secondary content. August 18, 2016. First day of school breakfast. Adriana’s preschool teacher, Teacher Mary, sent her a surprise note this week Adri’s first week at her new kindergarten. It’s your time to shine, she wrote. Adri’s preschool teachers know Adri’s capacity for learning. Her strong personality and will. Adri’s new kindergarten teachers have only had a couple of days to get to know her. Continue reading →. First day of school.

3

birthday | LittletonToLima: Our SMA Journey

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LittletonToLima: Our SMA Journey. Skip to primary content. Skip to secondary content. Happy Birthday, Santiago! November 24, 2014. On November 24, 2008, Santiago Jesus Gomez entered our lives at 5:43 am. It was a Monday. This Monday morning, in 2014, Gaby and I were remembering bits and pieces of that day, six years ago. At 7:43 this morning (or 5:43 am Mountain time), Santi entered our room with a smile on his face. I watched him today, interacting with his friends. What did I do to deserve such a gift?

4

Happy Birthday, Santiago! | LittletonToLima: Our SMA Journey

https://littletontolima.com/2014/11/24/happy-birthday-santiago

LittletonToLima: Our SMA Journey. Skip to primary content. Happy Birthday, Santiago! November 24, 2014. On November 24, 2008, Santiago Jesus Gomez entered our lives at 5:43 am. It was a Monday. This Monday morning, in 2014, Gaby and I were remembering bits and pieces of that day, six years ago. At 7:43 this morning (or 5:43 am Mountain time), Santi entered our room with a smile on his face. Ok, it was give or take a few minutes, but it was almost the exact time he entered the world six years ago. This en...

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cancer patients | LittletonToLima: Our SMA Journey

https://littletontolima.com/tag/cancer-patients

LittletonToLima: Our SMA Journey. Skip to primary content. Skip to secondary content. Tag Archives: cancer patients. Take a moment to enjoy CHRISTmas. December 23, 2014. A thankful child receives his gift! A vicious disease is no match for the human spirit. The disease may tear a body apart. It may extinguish a life that’s just begun. Or a life that’s seen a thousand sunsets. But it will never extinguish the human capacity for kindness, or a child’s smile, or a parent’s undying love. Aise the standards of.

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caelenquest.blogspot.com caelenquest.blogspot.com

Caelen's Quest: White Flag

http://caelenquest.blogspot.com/2015/05/white-flag.html

A test of faith and courage. How You Can Help. 1-day, 1-week and 2-weeks old filters. But the worst is its impact on the children's health. I find children in this area are more prone to fall sick, suffer from allergies etc. It is hard to ignore how much filth we pumped into our lungs everyday. C's bacterial filters for his BIPAP machine is a constant reminder. These filters meant to be changed every half yearly, I change them every week! His upper chest shrunk. Looking all boney and fragile. The hallmar...

caelenquest.blogspot.com caelenquest.blogspot.com

Caelen's Quest: January 2015

http://caelenquest.blogspot.com/2015_01_01_archive.html

A test of faith and courage. How You Can Help. New Hopes for 2015. Received an email from a concerned fan of C today asking why there had been no update for more than a month. My immediate response to that - GUILT! Having said, this update is long overdue and I still owe credit and thanks to many, it'd better be good. So here goes my first post for 2015 *diligently typing away*. Life is still tough but better in comparison to prior, given that we are getting the hang of things and our hard work is beginn...

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Caelen's Quest: News

http://caelenquest.blogspot.com/p/media.html

A test of faith and courage. How You Can Help. 1 Digital Story with Our Better World on 24 Feb 2016. 2 4-Part Documentary Series - 孩子,你慢慢来 Because I Love U, 30 Jun - 21 Jul 2015. Full videos are no longer available on Toggle. Please search YouTube. Https:/ youtu.be/2JvCazpc Jo. 3 Boxing Day article with The New Paper on 26 Dec 2014. To read, click on pic to enlarge. 4 Interview with The New Paper on 19 Nov 2014. Click. 5 Story featured on 新明日报 on 9 Nov 2014. Click. Subscribe to: Posts (Atom). Diary of Ba...

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Caelen's Quest: Online Shop

http://caelenquest.blogspot.com/p/shop.html

A test of faith and courage. How You Can Help. In order to dedicate my energy, time and efforts towards caring for Caelen, I quit my full-time job and ceased my online businesses in Mar 2014. I have, however, continued to market my products on Carousell. An online mobile marketplace to raise funds for Caelen. Please show your support for us! 65279; . Subscribe to: Posts (Atom). Beginning of his Journey. Caelen was diagnosed with Type 1 Spinal Muscular Atrophy (SMA). On 13 Jan 2014, at age 10 months.

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Caelen's Quest: December 2014

http://caelenquest.blogspot.com/2014_12_01_archive.html

A test of faith and courage. How You Can Help. We have a chair for Christmas! It arrived on 23 Dec, the best Christmas gift for C ever. Thank you all for making it possible. Engrossed in his games on tablet. Little boy now spends a fair amount of time on his chair in the day for various activities e.g. drawing, playing games and toys, meals, reading etc. Will definitely update with more details after the event. Here's wishing all a blessed Christmas filled with love! A Month Full of Love and Sharing.

caelenquest.blogspot.com caelenquest.blogspot.com

Caelen's Quest: March 2015

http://caelenquest.blogspot.com/2015_03_01_archive.html

A test of faith and courage. How You Can Help. My wrist was in pain for more than a week due to ganglion cyst. Something which comes and goes. Although there was no obvious swelling but the pain prevented my wrist from moving the slightest bit. I felt handicapped when things came to a halt especially when forced to skip therapies for C altogether. Yesterday I found myself conscientiously following through C's exercises in an attempt to make up for lost time (or muscles to be exact). Our last review with ...

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Caelen's Quest: October 2014

http://caelenquest.blogspot.com/2014_10_01_archive.html

A test of faith and courage. How You Can Help. Losing A Part Of Caelen. That, as I always put it, is God's gift. Something which makes him a uniquely special child. 8 incisors and 2 molars. Early this month, C was teething again. His first molars were cutting through and he had a great time chomping on his foods (fingers! His and mine). Unfortunately, the fun was short lived. As I left the hospital and made my way home, I couldn't help but sobbed uncontrollably. The thought of denying C food and wate...

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Caelen's Quest: Be Free

http://caelenquest.blogspot.com/2015/04/be-free.html

A test of faith and courage. How You Can Help. We first met Kaelyn and family at their home in early February 2014. Kaelyn was C first pal, a big sister and a fellow comrade in their fight against SMA. We saw the children celebrate their birthdays, had gatherings at home and at events, celebrated Christmas together and fought infections in the same hospital ward bed to bed. I remembered how she persistently called out to C so she could see him from her bed. Little Kaelyn was vain too! The hallmark featur...

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Caelen's Quest: May 2015

http://caelenquest.blogspot.com/2015_05_01_archive.html

A test of faith and courage. How You Can Help. C woke from his nap feeling warmer than usual. I thought nothing of it initially He was his playful self but when he declined to eat, I grew suspicious. Grabbed the thermometer and it slapped me with three digits 386. Geez no symptoms, no change in baseline "Let's give him his feed and monitor further" I told myself. Close to 3 hours later. 740pm he cleared his throat incessantly. And I better do a good job. So the tug of war began. C fought hard&#46...C is ...

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LittletonToLima: Our SMA Journey

LittletonToLima: Our SMA Journey. Skip to primary content. Skip to secondary content. I’m not perfect; I can’t walk. July 28, 2017. I’ve been thinking a lot lately about the word perfect. I never realized how often I use it especially at work:. How does this Web page look? Perfect, nice job! I should be able to complete that by Monday. What got me thinking about it was our recent summer vacation to Florida. The kids’ first Disney trip. We were hoping for perfection. And we got it — almost. January 1, 2017.

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