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Living Bendy

A personal experience of daily life with Ehlers Danlos Syndrome and POTS

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Living Bendy | livingbendy.blogspot.com Reviews
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A personal experience of daily life with Ehlers Danlos Syndrome and POTS
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1 living bendy
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4 6 comments
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6 moving on
7 5 comments
8 labels casualty
9 coronation street
10 ehlers danlos
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living bendy,posted by,carrie,6 comments,2 comments,moving on,5 comments,labels casualty,coronation street,ehlers danlos,house,pots,no comments,labels appointments,gi joe,7 comments,labels eds,eds/hms,gastroenteology,older posts,about me,eds/hms blogs
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Living Bendy | livingbendy.blogspot.com Reviews

https://livingbendy.blogspot.com

A personal experience of daily life with Ehlers Danlos Syndrome and POTS

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1

Living Bendy: How to have a good GP appointment

http://livingbendy.blogspot.com/2011/01/how-to-make-to-have-good-gp-appointment.html

A personal experience of daily life with Ehlers Danlos Syndrome and POTS. Tuesday, 18 January 2011. How to have a good GP appointment. For most people a visit to the gp is a quick 5-10min job to have a sore throat or upset stomach checked out. For people with Ehlers Danlos and other multi-system conditions it’s a mammoth task that needs preparation and the ability to keep it together under pressure better than a politician on a pre-election live TV debate! 8220;He used to be really patient with me and ve...

2

Living Bendy: December 2010

http://livingbendy.blogspot.com/2010_12_01_archive.html

A personal experience of daily life with Ehlers Danlos Syndrome and POTS. Sunday, 26 December 2010. End of 2010, where I'm at. Its been quite a year bendy-wise. I thought I'd do a quick recap just to see how far I'v come in just one year. Xrays and Mri of spine show curvature of spine and degeneration of SI joints :(. Assessed for my 1st wheelchair - sad times. Start investingations for Crohns Disease - come back clear - Yey! GI dr and EDS dr discover my Gastointestinal system is now affected by EDS.

3

Living Bendy: October 2010

http://livingbendy.blogspot.com/2010_10_01_archive.html

A personal experience of daily life with Ehlers Danlos Syndrome and POTS. Thursday, 7 October 2010. Time for a catch-up. It has been quite some time since I last blogged about living a bendy life. Alot of things have happened in the few months that have gone by. Some very positive, some not so positive. First of all some non-bendy news. I love the village and spend alot of time there at my boyfriend's home so it is perfect. However because life is never that simple it has caused a few issues. Like any bi...

4

Living Bendy: June 2010

http://livingbendy.blogspot.com/2010_06_01_archive.html

A personal experience of daily life with Ehlers Danlos Syndrome and POTS. Monday, 14 June 2010. Coronation Street gets Bendy! Disabled Actress Cherylee Houston is Coronation Streets first ever full time disabled actress. Cherylee has EDS/HMS and fibromyalgia (like alot of people with eds/hms). And it seems the condition is finally going to be getting more recognised in the mainstream as Cherylee's character 'Izzy' also has the condition! Its a degenerative thing, its genetic'. Some people from the bendy ...

5

Living Bendy: April 2012

http://livingbendy.blogspot.com/2012_04_01_archive.html

A personal experience of daily life with Ehlers Danlos Syndrome and POTS. Saturday, 7 April 2012. Keeping Vocal - Speech and vocal problems in EDS and how to manage them. Thankfully as I got older I got more confident with speaking and eventually it was hard to shut me up LOL. However, now with EDS affecting me more than ever, speech and vocal problems are common parts of my day. Looking after the EDS voice. Thankfully as a trained singer I am very aware of how the voice works, problems that can develop,...

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Living Bendy

A personal experience of daily life with Ehlers Danlos Syndrome and POTS. Saturday, 7 April 2012. Keeping Vocal - Speech and vocal problems in EDS and how to manage them. Thankfully as I got older I got more confident with speaking and eventually it was hard to shut me up LOL. However, now with EDS affecting me more than ever, speech and vocal problems are common parts of my day. Looking after the EDS voice. Thankfully as a trained singer I am very aware of how the voice works, problems that can develop,...

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