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livingmylifewithcrohns | 21 – university – friends – life – and doing it all with Crohn's disease

21 - university - friends - life - and doing it all with Crohn's disease

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livingmylifewithcrohns | 21 – university – friends – life – and doing it all with Crohn's disease | livingmylifewithcrohns.wordpress.com Reviews

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21 - university - friends - life - and doing it all with Crohn's disease

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22 tomorrow… | livingmylifewithcrohns

https://livingmylifewithcrohns.wordpress.com/2015/08/14/22-tomorrow

21 – university – friends – life – and doing it all with Crohn's disease. August 14, 2015. I think it’s pretty obvious what this is about haha! Just an update that I have felt pretty poo at points this week, but made it through! Tonight after work am heading to pizza express with a group of friends and my boyfriend for a dinner to celebrate my birthday tomorrow; then a cheeky pub trip added in too! So excited and be so nice for my uni friends to meet my home friends :). Figure that out before I go; I thi...

2

Deep breaths… | livingmylifewithcrohns

https://livingmylifewithcrohns.wordpress.com/2015/08/11/deep-breaths

21 – university – friends – life – and doing it all with Crohn's disease. August 11, 2015. So my last post may have been written during floods of tears curled up in – guess where – the bathroom; as per. When I get stressed ir upset I get tummy ache, which really helps. 22 tomorrow… →. Congratulations on getting through my rambles to the end of the post! Reading comments, feedback and questions literally makes my day, so please. comment below :) Cancel reply. Enter your comment here. September 26, 2016.

3

😓 | livingmylifewithcrohns

https://livingmylifewithcrohns.wordpress.com/2015/08/10/😓

21 – university – friends – life – and doing it all with Crohn's disease. August 10, 2015. I am beyond sick of people telling me I am young and can stay up late and how it’s uncool of me to be going to bed at 10. I’m sorry do you think I don’t know that? Do you think I’m not aware that everyone else my age can handle this better than I can? Do you think It isn’t obvious to me that this is just another thing crohns is robbing me of? Thanks for the reminder. The quicker today ends the better. August 5, 2016.

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Higher than high and lower than low  | livingmylifewithcrohns

https://livingmylifewithcrohns.wordpress.com/2015/08/16/higher-than-high-and-lower-than-low

21 – university – friends – life – and doing it all with Crohn's disease. August 16, 2015. Higher than high and lower than low. I don’t have any aim for this post, I don’t really know what I wanted to say; I just wanted to say something. I am officially 22; and can’t believe how old I am haha! And I got to spend time with people that make me laugh and happy and it was so nice to have my boyfriend and uni friends and home friends all together and happy and …it was lovey! Then in the afternoon I came to se...

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Conditions and Diseases | dystonia and me

https://dystoniaandme.com/tag/conditions-and-diseases

Benedict: The Dystonia alien. Ehlers Danlos Syndrome Type 3. Fighting Dystonia, Chronic Lyme Disease and EDS Type 3… any questions? Posts tagged ‘Conditions and Diseases’. Would You Apologize For Shivering? Didn’t think so! Does this splint blend in? Laughter; the key to making the most of the spasm free moments! Teaching myself to accept the alien. It’s a natural reaction that you would never dream of uttering apologies for. So why then should I issue out apologies for something that is just as natu...

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Hydrotherapy | dystonia and me

https://dystoniaandme.com/2015/07/28/hydrotherapy

Benedict: The Dystonia alien. Ehlers Danlos Syndrome Type 3. Fighting Dystonia, Chronic Lyme Disease and EDS Type 3… any questions? July 28, 2015. And if it did how quickly would the staff react? The one positive being, if I had a seizure, that the hydrotherapy takes place at my local hospital and the A&E staff know me very well. If you have had Hydro, feel free to drop me a line I’d love to hear your experiences. Complex regional pain syndrome. Non epileptic attack disorder. Three Years of Benedict.

dystoniaandme.com dystoniaandme.com

Benedict: The Dystonia alien | dystonia and me

https://dystoniaandme.com/benedict-the-dystonia-alien

Benedict: The Dystonia alien. Ehlers Danlos Syndrome Type 3. Fighting Dystonia, Chronic Lyme Disease and EDS Type 3… any questions? Benedict: The Dystonia alien. For those of you who are having trouble imagining what Benedict looks like, take a look at my post entitled The Claw. Attached to that post is an image of one of the aliens from Toy story. This is what I imagine is in control of my body. Benedict: The Dystonia alien" (6). April 2, 2013 at 9:59 am. April 2, 2013 at 10:13 am. I’m sorry to he...

dystoniaandme.com dystoniaandme.com

complex regional pain syndrome | dystonia and me

https://dystoniaandme.com/tag/complex-regional-pain-syndrome

Benedict: The Dystonia alien. Ehlers Danlos Syndrome Type 3. Fighting Dystonia, Chronic Lyme Disease and EDS Type 3… any questions? Posts tagged ‘complex regional pain syndrome’. And if it did how quickly would the staff react? The one positive being, if I had a seizure, that the hydrotherapy takes place at my local hospital and the A&E staff know me very well. If you have had Hydro, feel free to drop me a line I’d love to hear your experiences. Complex regional pain syndrome. Cowering In The Cafe. The D...

dystoniaandme.com dystoniaandme.com

Non Epileptic Seizures | dystonia and me

https://dystoniaandme.com/tag/non-epileptic-seizures

Benedict: The Dystonia alien. Ehlers Danlos Syndrome Type 3. Fighting Dystonia, Chronic Lyme Disease and EDS Type 3… any questions? Posts tagged ‘Non Epileptic Seizures’. Would You Apologize For Shivering? Didn’t think so! Does this splint blend in? Laughter; the key to making the most of the spasm free moments! Teaching myself to accept the alien. It’s a natural reaction that you would never dream of uttering apologies for. So why then should I issue out apologies for something that is just as natur...

dystoniaandme.com dystoniaandme.com

disabled | dystonia and me

https://dystoniaandme.com/tag/disabled

Benedict: The Dystonia alien. Ehlers Danlos Syndrome Type 3. Fighting Dystonia, Chronic Lyme Disease and EDS Type 3… any questions? Posts tagged ‘disabled’. Social Media Shocked By Attractive ‘Undateable’. Today papers and social media are running mad with the fact that a young man on last night’s episode is a rather handsome chap. I’m sorry, but what? Week 7 – Agony. Click here to read what a seizure is like. I have a 9am lecture tomorrow morning. Which I am determined to attend, most likely in a wh...

dystoniaandme.com dystoniaandme.com

Archive | dystonia and me

https://dystoniaandme.com/category/archive

Benedict: The Dystonia alien. Ehlers Danlos Syndrome Type 3. Fighting Dystonia, Chronic Lyme Disease and EDS Type 3… any questions? Archive for the ‘Archive’ Category. How the company that likes to empower women belittled me, and therefore enabled me to empower myself! In the shop yesterday, on multiple occasions, I was left in the store on my own. My vision was dire still, having had the drops less than two hours beforehand, I could hardly make out the wording on the products let alone watch the sho...

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EDS | dystonia and me

https://dystoniaandme.com/tag/eds

Benedict: The Dystonia alien. Ehlers Danlos Syndrome Type 3. Fighting Dystonia, Chronic Lyme Disease and EDS Type 3… any questions? Posts tagged ‘EDS’. The other day whilst lost in my thoughts, one of the regulars, Mr. Latte we shall call him, came over for our usual chat. Towards the end of our talk he asked if I’d be interested in going on a date and getting to know each other better. It was a lovely offer, and normally I would not hesitate, after all what do I have to lose? Receiving post is a very ev...

dystoniaandme.com dystoniaandme.com

Abuse… A Doctors Get Out Of Jail Card | dystonia and me

https://dystoniaandme.com/2015/05/20/abuse-a-doctors-get-out-of-jail-card

Benedict: The Dystonia alien. Ehlers Danlos Syndrome Type 3. Fighting Dystonia, Chronic Lyme Disease and EDS Type 3… any questions? Abuse… A Doctors Get Out Of Jail Card. May 20, 2015. I am absolutely fed up of having to reassure him over and over that I am not depressed, that my past is not the route of all my problems. Even informing him that the genetic test showed that the Dystonia was genetic did not seem to make a dent in his warped view. As I keep pointing out to him, I am not the one drag...My GP...

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livingmylifewithcrohns | 21 – university – friends – life – and doing it all with Crohn's disease

21 – university – friends – life – and doing it all with Crohn's disease. August 16, 2015. Higher than high and lower than low. I don’t have any aim for this post, I don’t really know what I wanted to say; I just wanted to say something. I am officially 22; and can’t believe how old I am haha! And I got to spend time with people that make me laugh and happy and it was so nice to have my boyfriend and uni friends and home friends all together and happy and …it was lovey! Then in the afternoon I came to se...

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