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Living with ALS

Saturday, January 7, 2017. Time Flies, Time Stands Still, When You're Grieving. Once on the ship, Bill was more in his chair than out. Everything was on "the opposite end" of the ship. The only deck that was "handicap friendly" was the promenade, due to thick carpeting on many other decks, so I was worn out by the end of the cruise. I think I may have built up some muscles. However, it was a good trip, relaxing in its own ways. The Grief Recovery Method. The following site writes about overlapping "phase...

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Living with ALS | livingwithlougerhrigsdisease.blogspot.com Reviews
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Saturday, January 7, 2017. Time Flies, Time Stands Still, When You're Grieving. Once on the ship, Bill was more in his chair than out. Everything was on the opposite end of the ship. The only deck that was handicap friendly was the promenade, due to thick carpeting on many other decks, so I was worn out by the end of the cruise. I think I may have built up some muscles. However, it was a good trip, relaxing in its own ways. The Grief Recovery Method. The following site writes about overlapping phase...
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Living with ALS | livingwithlougerhrigsdisease.blogspot.com Reviews

https://livingwithlougerhrigsdisease.blogspot.com

Saturday, January 7, 2017. Time Flies, Time Stands Still, When You're Grieving. Once on the ship, Bill was more in his chair than out. Everything was on "the opposite end" of the ship. The only deck that was "handicap friendly" was the promenade, due to thick carpeting on many other decks, so I was worn out by the end of the cruise. I think I may have built up some muscles. However, it was a good trip, relaxing in its own ways. The Grief Recovery Method. The following site writes about overlapping "phase...

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livingwithlougerhrigsdisease.blogspot.com livingwithlougerhrigsdisease.blogspot.com
1

Living with ALS: December 2016

http://livingwithlougerhrigsdisease.blogspot.com/2016_12_01_archive.html

Saturday, December 17, 2016. Today is a Good Day. Today is a good day. The house is clean, our path towards getting our house rehabbed to allow handicapped accessibility has taken an unusual turn for the better (a miracle, believe me), and Bill feels good after taking a nap. All those muscle cramps and twitches can tire out a body, so my husband is taking daytime naps now. Although people living with ALS are recommended to continue their daily activity, ALS works. Speaking of veterans, make sure you cont...

2

Living with ALS: Happy New Year?

http://livingwithlougerhrigsdisease.blogspot.com/2017/01/happy-new-year.html

Tuesday, January 3, 2017. I don't know about you, but the last two weeks have been trying. For the record, I love my husband. The knowledge that I am losing him in the near future will never extinguish that love. The responsibilities that I've taken on to ensure that my husband gets through each day will not interfere with that vow of love I gave my husband. That said, I can honestly say that ALS sucks. It has been a rough two weeks for me,. To put icing on the cake, the contractors aren't finished yet.

3

Living with ALS: September 2016

http://livingwithlougerhrigsdisease.blogspot.com/2016_09_01_archive.html

Friday, September 30, 2016. The Truth Is Out There. This is due to the muscles not receiving the impulses from the brain that tell the foot to move it. Muscle twitching or cramping in arms, legs, fingers or toes. Tripping or stumbling; missing a stair on the way up. Weakness in the hands or ankles. Slurred speech or "nasally" voice. Difficulty swallowing; more frequent gagging or choking when eating. Difficulty holding head up or frequent slouching. Tiredness or fatigue from doing normal daily routine.

4

Living with ALS: January 2017

http://livingwithlougerhrigsdisease.blogspot.com/2017_01_01_archive.html

Tuesday, January 24, 2017. Sooner or later, ALS affects a person’s oxygen levels. This is important to know because there are certain procedures and surgeries that require a certain level of oxygen or they cannot perform it. Which segues into the importance of nutrition and the need to have a feeding tube placed earlier than when it’s actually needed. Vagus Nerve (sounds like a gambler’s attitude, doesn’t it? Bill gets nauseous first, which quickly turns into the feeling that he will pass out. I&#821...

5

Living with ALS: How It All Began

http://livingwithlougerhrigsdisease.blogspot.com/2016/09/how-it-all-began.html

Thursday, September 29, 2016. How It All Began. It started with a numbness in the right ankle. It didn't hurt - my husband Bill just couldn't pull it up toward his shin. We had both experienced frozen shoulders, so we thought it could be the same but in the ankle. The doctor prescribed physical therapy, but after several months there was no improvement. Except that I had a job. Very part-time, very low pay, but I carried the family health insurance. Subscribe to: Post Comments (Atom). How I Relieve Stress.

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Living with ALS

Saturday, January 7, 2017. Time Flies, Time Stands Still, When You're Grieving. Once on the ship, Bill was more in his chair than out. Everything was on "the opposite end" of the ship. The only deck that was "handicap friendly" was the promenade, due to thick carpeting on many other decks, so I was worn out by the end of the cruise. I think I may have built up some muscles. However, it was a good trip, relaxing in its own ways. The Grief Recovery Method. The following site writes about overlapping "phase...

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