livingwithpraderwilli.blogspot.com

Living with Prader-Willi

Wednesday, August 22, 2012. This title is appropriate for many reasons:. I feel like a normal person. Strange statement for most, but PWS rocked our world for the first year. I’m now confident, not afraid of PWS, and might have figured out this parenting thing. I’m exercising consistently again. I forgot how good I feel when I sweat. And it’s fun exercising with Joe. He loves to wave at the runners and say hi. I fit in my pre baby clothes. It may not look as pretty but I’m in. Tomorrow is his 3. If you c...

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Living with Prader-Willi | livingwithpraderwilli.blogspot.com Reviews

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Wednesday, August 22, 2012. This title is appropriate for many reasons:. I feel like a normal person. Strange statement for most, but PWS rocked our world for the first year. I’m now confident, not afraid of PWS, and might have figured out this parenting thing. I’m exercising consistently again. I forgot how good I feel when I sweat. And it’s fun exercising with Joe. He loves to wave at the runners and say hi. I fit in my pre baby clothes. It may not look as pretty but I’m in. Tomorrow is his 3. If you c...

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Living with Prader-Willi | livingwithpraderwilli.blogspot.com Reviews

https://livingwithpraderwilli.blogspot.com

Wednesday, August 22, 2012. This title is appropriate for many reasons:. I feel like a normal person. Strange statement for most, but PWS rocked our world for the first year. I’m now confident, not afraid of PWS, and might have figured out this parenting thing. I’m exercising consistently again. I forgot how good I feel when I sweat. And it’s fun exercising with Joe. He loves to wave at the runners and say hi. I fit in my pre baby clothes. It may not look as pretty but I’m in. Tomorrow is his 3. If you c...

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livingwithpraderwilli.blogspot.com

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Living with Prader-Willi: April 2011

http://livingwithpraderwilli.blogspot.com/2011_04_01_archive.html

Sunday, April 24, 2011. Whew, this month has been BUSY. Lets count the activies of the Harkin clan. 1 Baby joe eats solids! He's a champ, good eater and no major issues. He loves kale, unlike his father. 2 We visited the TX Children's PWS clinic. Got our gold star and will see us in 4 to 6 months. Yes! We get a small break from the doctors. 3 He's rolling and sitting. Still working on the sitting as he fatigues quickly. His therapist Anna does a great job of tricking him into sitting. Everyone says mothe...

2

Living with Prader-Willi: November 2011

http://livingwithpraderwilli.blogspot.com/2011_11_01_archive.html

Saturday, November 19, 2011. A few weeks back I had a consult with Melanie Silverman http:/ www.feedingphilosophies.com/. To reassure me I'm on track with our meal plans. As many of you know, because Joe has PWS the food we choose can be tricky. Tricky because our society is so focused on food. Not good clean food but junk food. BTW - I'm going slap the next person that offers to feed my 13 month old a piece of cake. NO 13 MONTH OLD SHOULD BE EATING CAKE! Even if they don't have PWS. Salmon and Pea Puree.

3

Living with Prader-Willi: Mommy therapy

http://livingwithpraderwilli.blogspot.com/2011/11/mommy-therapy.html

Thursday, November 17, 2011. It's strange but I get excited to learn about a new PWS family. Now don't get me wrong, I pray for a cure and that no child ever experience PWS. But since we're not there, I like helping families through the haze of the first months. Maybe it's a pay if forward thing? I was lucky to have great people help along the way when we were so green to this crazy syndrome. Perhaps helping is like writing and becomes a therapy. Subscribe to: Post Comments (Atom).

4

Living with Prader-Willi: One Small Step

http://livingwithpraderwilli.blogspot.com/2011/06/one-small-step.html

Monday, June 27, 2011. Shout out to Aunt Step - same nose, mouth and hair? So many friends are helping out. One is a race director and will meet with the students to help organize the run. He's also working the sponsorship angle for us. Maybe an in with HEB! The event is Oct 2nd - one week before his 1st Birthday. Mark your calendars to celebrate Joe and wipe out this ugly syndrome we call PWS. One Small Step Event. Subscribe to: Post Comments (Atom). Were making progress people. View my complete profile.

5

Living with Prader-Willi: August 2012

http://livingwithpraderwilli.blogspot.com/2012_08_01_archive.html

Wednesday, August 22, 2012. This title is appropriate for many reasons:. I feel like a normal person. Strange statement for most, but PWS rocked our world for the first year. I’m now confident, not afraid of PWS, and might have figured out this parenting thing. I’m exercising consistently again. I forgot how good I feel when I sweat. And it’s fun exercising with Joe. He loves to wave at the runners and say hi. I fit in my pre baby clothes. It may not look as pretty but I’m in. Tomorrow is his 3.

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pwsaok.blogspot.com

Prader-Willi Syndrome Association of Oklahoma: Helpful Resources

http://pwsaok.blogspot.com/p/helpful-resources.html

It is our intention to provide a list of Oklahoma physicians and other professionals who can be contacted by parents or other inquirers for additional information or services. Subscribe to: Posts (Atom). You Are Not Alone. Latham Centers. . . Prader-Willi Syndrome and Beyond. Latham Centers’ Launches its New Website! Finding Joy in Simple Things. PWS Awareness Day 30: On Friends and Social Thinking. 169;2012, Prader-Willi Syndrome Association of Oklahoma, Inc. Simple template. Powered by Blogger.

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Prader-Willi Syndrome Association of Oklahoma: About Us

http://pwsaok.blogspot.com/p/about-us.html

This blog has been established by the Prader-Willi Syndrome Association of Oklahoma, Inc., a state chapter of the national Prader-Willi Syndrome Association (USA) located in Sarasota, Florida. ( http:/ www.pwsausa.org/. Subscribe to: Posts (Atom). You Are Not Alone. Latham Centers. . . Prader-Willi Syndrome and Beyond. Latham Centers’ Launches its New Website! Finding Joy in Simple Things. PWS Awareness Day 30: On Friends and Social Thinking.

pwsaok.blogspot.com

Prader-Willi Syndrome Association of Oklahoma: Our Stories

http://pwsaok.blogspot.com/p/our-stories.html

8220;Our Stories” is a place where our families and friends can relay experiences they have had raising or working with a child or adult with Prader-Willi Syndrome. Sometimes these stories will be painful to share, or even to read about, and other times they contain very humorous incidents and reveal the remarkable diversity of lives and successes that these special needs persons manifest. December 13, 2013 at 11:35 AM. Way to go, Jon! Subscribe to: Posts (Atom). You Are Not Alone.

pwsaok.blogspot.com

Prader-Willi Syndrome Association of Oklahoma: Our Purpose

http://pwsaok.blogspot.com/p/homethe.html

Subscribe to: Posts (Atom). You Are Not Alone. Latham Centers. . . Prader-Willi Syndrome and Beyond. Latham Centers’ Launches its New Website! Finding Joy in Simple Things. PWS Awareness Day 30: On Friends and Social Thinking. 169;2012, Prader-Willi Syndrome Association of Oklahoma, Inc. Simple template. Powered by Blogger.

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livingwithpraderwilli.blogspot.com

Living with Prader-Willi

Wednesday, August 22, 2012. This title is appropriate for many reasons:. I feel like a normal person. Strange statement for most, but PWS rocked our world for the first year. I’m now confident, not afraid of PWS, and might have figured out this parenting thing. I’m exercising consistently again. I forgot how good I feel when I sweat. And it’s fun exercising with Joe. He loves to wave at the runners and say hi. I fit in my pre baby clothes. It may not look as pretty but I’m in. Tomorrow is his 3. If you c...

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