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London's Story - Home

I am writting this to tell my daughters story with neuroblastoma and LCH to help others searching the web for information and also in the hopes of finding others who have had both LCH and...

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London's Story - Home | londonsstoryneuroblastomaandlch.com Reviews
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I am writting this to tell my daughters story with neuroblastoma and LCH to help others searching the web for information and also in the hopes of finding others who have had both LCH and...
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London's Story - Home | londonsstoryneuroblastomaandlch.com Reviews

https://londonsstoryneuroblastomaandlch.com

I am writting this to tell my daughters story with neuroblastoma and LCH to help others searching the web for information and also in the hopes of finding others who have had both LCH and...

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Time-line continued pg2 - London's Story

http://www.londonsstoryneuroblastomaandlch.com/time-line-continued-pg2.html

April 2, 2012. F/u appt with dermatologist who changes otc hydrocortisone to Diprolene 0.05% 2xdaily for 2-3 weeks to apply on neck over old biopsy site of lch lesion. Appt with pediatrician for sick visit, London has bilat ear infection -starts on Cefdinir 2.5ml 1x daily for 10 days. April 23, 2012- Happy 1st Birthday London! We celebrated at home with family and friends. April 24, 2012. May 5, 2012. Saw pediatrician to re-check ears. No ear infection! Weight up to 19.5lbs! June 28, 2012. Still June 28t...

2

Time-line of Events: - London's Story

http://www.londonsstoryneuroblastomaandlch.com/time-line-of-events.html

London was around 8 months old when we noticed a spot on the left side of her neck that looked like a blister(it looked almost like a mini volcano purplish/pink in color with a crusted tip that kind of caved in). We took her to see her pediatrician, who then reffered us to a dermatologist. January 30, 2012. We saw dermatologist who biopsied blister on neck. February 6, 2012. What is he saying? February 7, 2012. London also had her labs drawn cbc, electrolytes,enzymes, coag's - all were normal! From there...

3

Treatment - London's Story

http://www.londonsstoryneuroblastomaandlch.com/treatment.html

Day 1 of chemo. Me in scrubs after the "incident". London receiving chemo, laying in bed with her "minka"(her pacifier) and Ollie(elephant). Thankyou Grammy for keeping me busy with all my gifts. We love you.so much! Monday, March 4, 2013 Cycle 1 Day 1. It is around 5pm now. She is done for today. She did great! March 5,2013 Tuesday. Day 2 of Cycle 1. March 6, 2013 Wednesday. Day 3 of Cycle 1. And I reply," she's healthy, except for the cancer-(which you would never know she has looking at her).

4

Our Decision - London's Story

http://www.londonsstoryneuroblastomaandlch.com/our-decision.html

This is what we know:. London is not a "textbook" case. Is this to her benefit or not, I am not sure. Original tumor in adrenal gland favorable histology. T11 bone biopsy shows "active" neuroblastoma. T11 bone biopsy not enough to do pathology-not enough bone to "revisit" this site for a new sample. From what is known, usually what you have is what you have. So assuming favorable histology. Abdominal mass is gone. Will one on spine just disappear also? London is staged at a 4. Side effects, although rare...

5

London's Story - Blog

http://www.londonsstoryneuroblastomaandlch.com/blog.html

London's Bridge to Recovery. Thankyou to everyone who is taking the time to read about our special baby girl. Please pray for her healing and a long healthy life on this Earth first. Thankyou so much, and GOD Bless. How Time Flies by. London February 25th 2016 visiting her "friends" at the zoo. Why does time seem to fly by so fast? Can't it just slow down a bit? Her urine markers VMA and HVA were normal! She is doing great! She will be turning 5 next month! Kindergarten in the fall! Cullen graduating, Pa...

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