ipftoday.com
IPF Today - international information
http://www.ipftoday.com/international_information
BREATHE, DREAM and LIVE. Where can I go locally. Treatment - current/ new and trials/ old. Skype, Google, Twitter, Facebook. Support Group(s) / US States and International. Pharmaceutical companies and IPF. Resources / Useful links. We are still working on this page and would love your input / links. The official website of the Canadian Pulmonary Fibrosis Foundation. The Canadian Lung Association. LAssociation Pulmonaire du Québec. Belgische Vereniging voor Longfibrose v.z.w. ILD Care Foundation -. Wwwai...
ipfcharter.org
Die Charta - GER | IPF Charter
http://www.ipfcharter.org/die-charta-ger
Llamamiento a la acción. Support equal access to IPF treatment. And care standards in Europe. Sign Up The IPF Patient Charter. Die Charta – GER. Idiopathische Lungenfibrose (IPF) ist eine chronische und letztlich tödlich. Verlaufende Lungenerkrankung, deren Ursache unbekannt ist. Die Europäischen IPF-Patientenorganisationen fordern für ihre Patienten und deren Familien, die folgenden gleichen und faire Rechte ein:. 1) Eine frühzeitige und genaue Diagnose. 2) Gleicher Zugang zur Gesundheitsversorgung.
ipfcharter.org
IPF World Week 2015 – Photo Contest | IPF Charter
http://www.ipfcharter.org/ipf-world-week-2015-photo-contest
Llamamiento a la acción. Support equal access to IPF treatment. And care standards in Europe. Sign Up The IPF Patient Charter. IPF World Week 2015 – Photo Contest. The theme: Blowing soap bubbles . Deadline: July 22nd, 2015. Towards the IPF World Week (5-11 October 2015). This year’s IPF world week will take place 5-11 October 2015. The 2015 photo contest. The theme to raise awareness on IPF is Blowing soap bubbles . Deadline July 22. Some initial ideas for the photo contest:. On behalf of Idiopathic Pul...
vlaamspatientenplatform.be
Vlaams Patiëntenplatform » Leden
http://www.vlaamspatientenplatform.be/pagina/leden
Leden Mail een vriend(in). Het Vlaams Patiëntenplatform telt ongeveer 100 aangesloten leden, allemaal patiëntenverenigingen. We zetten ons samen in voor toegankelijke, kwaliteitsvolle en betaalbare gezondheidszorg. Als lid krijg je inspraak en geef je de patiënt mee een stem. Je komt op voor de gezamenlijke belangen van alle patiënten in Vlaanderen, ongeacht hun individuele situatie. De leden van je vereniging krijgen toegang tot alle activiteiten van het Vlaams Patiëntenplatform. Voor meer informatie ov...
cpff.ca
Helpful Links - Canadian Pulmonary Fibrosis Foundation
http://cpff.ca/living-with-pf/helpful-links
Canadian Pulmonary Fibrosis Foundation. What is Pulmonary Fibrosis? Treatment & Care. Clinics & Specialists. Transplant & Organ Donation. Patient and Family Stories. CPFF Actions & Research Grants. Kiss IPF Goodbye Champions. Living with Pulmonary Fibrosis. Living with Pulmonary Fibrosis. UHN IPF Information for patients and families. InIPFcom by Boehringer Ingelheim. Pharmaceutical Treatment Information for PF. UHN Handout – Pirfenidone (Esbriet ) – Information for patients. Living Well with PF. Canadia...
ipfcharter.org
Aufruf zum Handeln - GER | IPF Charter
http://www.ipfcharter.org/aufruf-zum-handeln-ger
Llamamiento a la acción. Support equal access to IPF treatment. And care standards in Europe. Sign Up The IPF Patient Charter. Aufruf zum Handeln – GER. IPF-Patientenorganisationen haben konkrete Empfehlungen formuliert und fordern Europäische Institutionen, nationale Regierungen, Geldgeber / Kostenträger und Gesundheitsorganisationen auf, die folgenden Maßnahmen zu umzusetzten:. 1 Die Gewährleistung einer frühen und genauen Diagnose. Die Sensibilisierung von IPF unter medizinischen Fachkräften. Garantie...
ipfcharter.org
Llamamiento a la acción - ESP | IPF Charter
http://www.ipfcharter.org/llamamiento-a-la-accion-esp
Llamamiento a la acción. Support equal access to IPF treatment. And care standards in Europe. Sign Up The IPF Patient Charter. Llamamiento a la acción – ESP. Carta europea del Paciente con Fibrosis Pulmonar Idiopática (FPI). LLAMAMIENTO A LA ACCIÓN. Las organizaciones de pacientes con FPI han identificado recomendaciones concretas y hacen un llamamiento a las instituciones de la UE, los gobiernos nacionales y las organizaciones sanitarias para la puesta en práctica de las siguientes medidas:. 2 Independi...
ipfcharter.org
Partners | IPF Charter
http://www.ipfcharter.org/partners
Llamamiento a la acción. Support equal access to IPF treatment. And care standards in Europe. Sign Up The IPF Patient Charter. All endorsers are grateful to the Organisations and Associations that support the European IPF Patient Charter. July 31st, 2016. Multimedica S.p.A. Presidio Ospedale San Giuseppe - Ospedale Classificato - Unità Operativa di Pneumologia has formally endorsed the European IPF Patient Charter! April 2nd, 2016. Associazione Morgagni Malattie Polmonari Onlus. April 2nd, 2016. European...
wasog.org
Sarcoidosis and ild care around the world - WASOG
http://www.wasog.org/index.php/sarcoidosis-around-the-world
Message from the past president. Sarcoidosis and ild care around the world. WASOG around the world. Join WASOG and become a friend. Disclaimer & Privacy Policy. Education & Research. Ild around the world. Join WASOG and become a friend. Message from the past president. Sarcoidosis and ild care around the world. WASOG around the world. Join WASOG and become a friend. Disclaimer & Privacy Policy. Education & Research. Ild around the world. Join WASOG and become a friend. At present only one center dedicate...
