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Louis Looking Forward - Home

Five year old Louis from Melbourne aims to see and experience as much as he can before he loses his eye sight to a rare genetic condition, Usher Syndrome. Born profoundly deaf, this vibrant toddler...

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emily shepard

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mor●●●loc , NSW, 3195

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View this contact

emily shepard

emily shepard

38 k●●●●awst

mor●●●loc , NSW, 3195

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Louis Looking Forward - Home | louislookingforward.com Reviews
<META>
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Five year old Louis from Melbourne aims to see and experience as much as he can before he loses his eye sight to a rare genetic condition, Usher Syndrome. Born profoundly deaf, this vibrant toddler...
<META>
KEYWORDS
1 looking forward
2 media
3 events
4 supporters
5 donate
6 follow us
7 the usher coalition
8 own the equinox
9 louislookingforward@gmail com
10 usheqx
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looking forward,media,events,supporters,donate,follow us,the usher coalition,own the equinox,louislookingforward@gmail com,usheqx
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Louis Looking Forward - Home | louislookingforward.com Reviews

https://louislookingforward.com

Five year old Louis from Melbourne aims to see and experience as much as he can before he loses his eye sight to a rare genetic condition, Usher Syndrome. Born profoundly deaf, this vibrant toddler...

INTERNAL PAGES

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1

Donate - Louis Looking Forward

http://www.louislookingforward.com/donate.html

The Story So Far. Blog - Latest Memories. Thank you for your support. You can make a secure credit card donation via PayPal. Proudly powered by Weebly.

2

How You Can Help - Louis Looking Forward

http://www.louislookingforward.com/how-you-can-help.html

The Story So Far. Blog - Latest Memories. How You Can Help. All funds raised will go directly towards enriching the quality of life of four year old Louis and other sufferers of Usher Syndrome. Whether it be specialist equipment, aiding education, creating memorable experiences or accessing gene therapy treatment sometime in the future, having funds available will ensure the outcomes for Louis will be the best they can be. Would you like to provide an experience for Louis? Proudly powered by Weebly.

3

Events - Louis Looking Forward

http://www.louislookingforward.com/events.html

The Story So Far. Blog - Latest Memories. HELP US OWN THE EQUINOX - 2015. Louis Looking Forward is proud to have supported the first ever Usher syndrome awareness day on September 19th 2015 with our friends from The Usher Coalition. In the northern hemisphere. The autumnal equinox marks the start of days that contain more darkness than light. It is a great metaphor for the threat of Usher syndrome. We want to Own the Equinox. An event was held in Moridalloc, Victoria on Saturday, September 19th.

4

Media - Louis Looking Forward

http://www.louislookingforward.com/media.html

The Story So Far. Blog - Latest Memories. The June 2016 issue of Marie Claire Australia magazine features an investigation into CRISPR, a genetic editing tool revolutionising the way genetic conditions such as Usher syndrome will be treated in the future. Both Emily (mum of Louis) and Louis feature in the article. On Wednesday September 9th 2015, The Modialloc Chelsea Leader featured this lovely story about Dave's marathon run. Son's rare condition inspires devoted dad. We were pleased to be part of Rare...

5

Louis Looking Forward - Blog - Latest Memories

http://www.louislookingforward.com/blog---latest-memories.html

The Story So Far. Blog - Latest Memories. Eye testing to map the condition of Louis' eyes. This will help understand progression of disease for Louis and build a natural history for researchers. National Gallery of Victoria - Warhol. First Day of Primary School. Mum, just drop me off at the drop off zone. Holiday in O'Possum Bay, Tasmania. Last days at Aurora School. I'm Papa Bear' - in the school concert - With Manoj, last taxi ride to school - with some. The special teachers and specialists at Aurora.

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ushersyndroom.nl ushersyndroom.nl

Links - Ushersyndroom

http://www.ushersyndroom.nl/handige-links

Ushersyndroom, wat is dat? Wat kun jij doen. Wat kun jij doen. Vragen over project Database. Vragen over project Zebravis. Ushersyndroom in de Media. Vragen over de organisatie. 8211; Het doel van Ava’s Voice is om financiële hulp en steun te bieden aan families met verlies in horen en zien. 8211; Carol is een alleenstaande moeder met charme, integriteit, gratie en een enorm avontuurlijke spirit – en zij heeft ook Ushersyndroom. Deaf/blind and running – blog. Heb jij Usher – Blog. 8211; Alle geworven fon...

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Louis Looking Forward - Home

The Story So Far. Blog - Latest Memories. How You Can Help. Creating Memories For Louis. Five year old Louis from Melbourne aims to see and experience as much as he can before he loses his eye sight to a rare genetic condition, Usher Syndrome. Born profoundly deaf, this vibrant toddler is not letting adversity stand in his way. Follow his journey, help create the experiences and share his adventures as his story continues. This is Louis Looking Forward. HELP US OWN THE EQUINOX. Saturday, September 19th.

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