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Love and Survival with Fragile X | loveandsurvivalwithfragilex.blogspot.com Reviews
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gratitude, grief, joy, work, family, community
loveandsurvivalwithfragilex.blogspot.com
Love and Survival with Fragile X: Why You Won't See Us at the Fragile X Conference
http://loveandsurvivalwithfragilex.blogspot.com/2010/07/why-we-wont-see-you-at-fragile-x.html
Love and Survival with Fragile X. Gratitude, grief, joy, work, family, community. Saturday, July 10, 2010. Why You Won't See Us at the Fragile X Conference. July 23, 2005. Chesterman Beach, Vancouver Island, British Columbia, Canada. This is where we spent our honeymoon.and where we will be on July 23. In the same hotel, in the same room we were in five years ago. I can't wait! There will be other conferences, and I look forward to meeting you one day! You have a beautiful blog! July 11, 2010 at 5:10 AM.
Love and Survival with Fragile X: Advocacy works again!
http://loveandsurvivalwithfragilex.blogspot.com/2010/12/advocacy-works-again.html
Love and Survival with Fragile X. Gratitude, grief, joy, work, family, community. Friday, December 17, 2010. The new site was woefully inadequate. I will not go into all the details here, but without significant building improvements - unlikely to be completed by January 3 - the site would not have provided a sound educational experience, at least for children in special education preschool. Great news for the current situation, and a reminder that advocacy works - at least sometimes. We may not be "new ...
Love and Survival with Fragile X: April 2010
http://loveandsurvivalwithfragilex.blogspot.com/2010_04_01_archive.html
Love and Survival with Fragile X. Gratitude, grief, joy, work, family, community. Friday, April 30, 2010. NYT article on Fragile X drug from Novartis. From the April 29 2010 New York Times. An experimental drug succeeded in a small clinical trial in bringing about what the researchers called substantial improvements in the behaviors associated with retardation and autism. In people with fragile X syndrome. The most common inherited cause of these mental disabilities. Tuesday, April 27, 2010. It's looking...
Love and Survival with Fragile X: Excuse me while I whine just a little bit
http://loveandsurvivalwithfragilex.blogspot.com/2010/12/excuse-me-while-i-whine-just-little-bit.html
Love and Survival with Fragile X. Gratitude, grief, joy, work, family, community. Tuesday, December 21, 2010. Excuse me while I whine just a little bit. I really have nothing to whine about. Some parents we know are at the hospital or the doctor's office All.The.Time. We are so lucky. Quinn is healthy, happy, and making great progress. But we are at the doctor's office more than most "regular" kids, and I am feeling a bit bummed about our last ordeal and some upcoming ones. Will cheer me up. Labels: at t...
Love and Survival with Fragile X: August 2010
http://loveandsurvivalwithfragilex.blogspot.com/2010_08_01_archive.html
Love and Survival with Fragile X. Gratitude, grief, joy, work, family, community. Friday, August 27, 2010. Well, it's been quite awhile since we updated our blog. It's also been about two years since we learned that Quinn has Fragile X Syndrome. About a year ago I wrote this post. Reflecting on how our first year after the diagnosis had gone. I guess the main difference between this year and last year in terms of our adaptation is that it's softened - more background than foreground. We may not be "new a...
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fragilemom: Asics - Try These Running Shoes on For Size
http://fragilemom.blogspot.com/2013/01/run-run-run.html
More Than a Mother of Three Children with Fragile X Syndrome. Monday, January 14, 2013. Asics - Try These Running Shoes on For Size. Okay, is it weird to adore shoes? Seriously, great shoes. I love the color! January 16, 2013 at 1:34 PM. Subscribe to: Post Comments (Atom). All Things are Possible. Codd Christmas Pic 2012. Other FX Blogs I Read. FXS A Day at A Time. It's All About Potential. It's Who I am. Life With My Xmen. Love and Survival with Fragile X. X Marks the Spot. Day to Day with Debra.
fragilemom: January 2013
http://fragilemom.blogspot.com/2013_01_01_archive.html
More Than a Mother of Three Children with Fragile X Syndrome. Tuesday, January 22, 2013. Small, Fuzzy, DEAD. If you're a huge lover of nasty, disease-infested critters.Do Not Read Ahead. You ever have those things that you just can't get rid of? Well, I had my moment today. Finally, I decided to use peanut butter. The little sucker can't just pull peanut butter off like a piece of cheese, right? Each morning I look under the sink and on the floor in the pantry to see if there's a body. This morning t...
fragilemom: April 2012
http://fragilemom.blogspot.com/2012_04_01_archive.html
More Than a Mother of Three Children with Fragile X Syndrome. Saturday, April 28, 2012. I absolutely cannot believe it. I know we always say our kids grow up so fast. Well, it's true. Yes, I know he's only 5, but he's my baby. That means the last one to turn 5. I really just want to freeze him, as is. Period. Last night Benjamin had his 'friends' birthday party. So much fun! Happy birthday my little Boo-Boo! Tuesday, April 10, 2012. What do I hate about our area of Texas? When I got the full story from A...
Cora's Blog: October 2010
http://corawebb.blogspot.com/2010_10_01_archive.html
Friday, October 29, 2010. Published with Blogger-droid v1.6.3. Monday, October 18, 2010. Published with Blogger-droid v1.6.3. Saturday, October 2, 2010. Hot Air Balloons at Coolidge Park! Published with Blogger-droid v1.5.9. Subscribe to: Posts (Atom). Born November 24, 2006. As a result of too much turkey and pie. 6 lbs 15 oz. A nose and toes like her dad. Hot Air Balloons at Coolidge Park! Love and Survival with Fragile X. Subscribe To Cora's blog.
Cora's Blog: July 2010
http://corawebb.blogspot.com/2010_07_01_archive.html
Thursday, July 29, 2010. Great Granny and Grandma Visit! Warner Park Pool and Sprayground. Tuesday, July 20, 2010. Kure Beach (May 2010). Monday, July 5, 2010. Long Overdue Photos Volume II - Walk Now for Autism in HOTLANTA. Long Overdue Photos (Volume I) - First Haircut. Subscribe to: Posts (Atom). Born November 24, 2006. As a result of too much turkey and pie. 6 lbs 15 oz. A nose and toes like her dad. Great Granny and Grandma Visit! Warner Park Pool and Sprayground. Kure Beach (May 2010).
Cora's Blog: Christmas tree
http://corawebb.blogspot.com/2010/12/christmas-tree.html
Saturday, December 11, 2010. Published with Blogger-droid v1.6.5. Subscribe to: Post Comments (Atom). Born November 24, 2006. As a result of too much turkey and pie. 6 lbs 15 oz. A nose and toes like her dad. Love and Survival with Fragile X. Subscribe To Cora's blog.
Cora's Blog: Great Granny & Grandma Visit!
http://corawebb.blogspot.com/2010/07/great-granny-grandma-visit.html
Thursday, July 29, 2010. Great Granny and Grandma Visit! Subscribe to: Post Comments (Atom). Born November 24, 2006. As a result of too much turkey and pie. 6 lbs 15 oz. A nose and toes like her dad. Great Granny and Grandma Visit! Warner Park Pool and Sprayground. Kure Beach (May 2010). Long Overdue Photos Volume II - Walk Now for Autis. Long Overdue Photos (Volume I) - First Haircut. Love and Survival with Fragile X. Subscribe To Cora's blog.
A slight hole in his education | X-Dad
https://xdadxdad.wordpress.com/2009/08/06/a-slight-hole-in-his-education
A dad and his son with Fragile X Syndrome. Life With My X-Men. Our Fragile X Journey. Fragile X Research Foundation. National Fragile X Foundation. Brenda on Stuff It. On Train in Vain. On Train in Vain. Train in Vain…. On Paradox in Sneakers. On Your Fury Makes Me Smile. Laquo; Wheels of Progress. The Wheels of Progress Fall Off The Bicycle ». A slight hole in his education. August 6, 2009. For some reason it occurred to me to ask Sonny the other day, “What rhymes with cat? What else rhymes with cat?
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Love and Support for Dayna Buri - Home | Deposit a Gift - Fundraising For Medical Expenses
Deposit a Gift - Crowdfunding Made Simple. Love and Support for Dayna Buri. Dayna's trouble began with debilitating migraines that caused her to be unable to care for her two-year-old daughter, Madeleine, and unable to work. Her generous and loving community of friends helped her through this time, until she was able to have tests done to try to understand the cause of her headaches. That cause, she found, was a tennis ball sized tumor in h. Campaign Organizer: Natalie Vires. Enter any dollar amount.
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LoveAndSurf's blog - LoveAndSurf - Skyrock.com
Fan encore plus ♥. Autre fiction: everythingisMAGIC.skyrock.com ♥. 20/05/2012 at 9:57 PM. 25/07/2012 at 11:43 AM. Soundtrack of My Life. Just Breathe. ✝. 8249; Justin Bieber - Turn To You ›. Subscribe to my blog! Heyooo les petit coeur ♥. Alors voila j'ai mis hors ligne mes articles. Je n'avais plus d'inspiration,. Je suis really sorry ♥. J'ai quand meme passé de super moments. Avec vous, vous etes fabuleuses! Je ne quitte pas le monde de la fiction. Vraiment commencé une nouvelle avec. Post to my blog.
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loveandsurvivalwithfragilex.blogspot.com
Love and Survival with Fragile X
Love and Survival with Fragile X. Gratitude, grief, joy, work, family, community. Monday, January 10, 2011. New Fragile X drug? A lot of buzz in the Fragile X world about this post on ScienceDaily. The first drug to treat the underlying disorder instead of the symptoms of Fragile X, the most common cause of inherited intellectual disability, shows some promise, according to a new study published in the January issue of. Before we all break out the Champagne, there's this to consider:. The treatment perio...
love and sushi
Wednesday, October 19, 2016. God Loves Him More. Just less than month later, I am on my 23rd or so day of bed rest and trying to mentally prepare for the early arrival of our baby boy. I immediately rolled off the couch to the floor, and I still had absolutely no control. One of the more unfortunate symptoms of pregnancy is loss of complete bladder control, but I distinctly remember thinking, "It can't be this bad, can it? I have to stay at the hospital? Thankfully, I wasn't required to be hooked up to t...
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