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LOVELIV.ORG

loveliv

Your contribution goes directly to funding research that can help Liv and other children with NM. Breathing is hard work. The biggest concern with NM is respiratory difficulty, in which the severe form has a 66% mortality rate by age 2. Is a devastating disease that causes muscle weakness that impairs breathing, swallowing, and most gross motor function. A Fundraiser for Nemaline Myopathy. So far, the event has raised over $70,000. To fund much needed research to find treatment for nemaline myopathy.

http://www.loveliv.org/

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2417 ●●●●●y Ave

Los ●●●●eles , California, 90034

US

1.31●●●●9400
b@@shimbogo.com

View this contact

Boris Shimanovsky

2417 ●●●●●y Ave

Los ●●●●eles , California, 90034

US

1.31●●●●9400
b@@shimbogo.com

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loveliv | loveliv.org Reviews
<META>
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Your contribution goes directly to funding research that can help Liv and other children with NM. Breathing is hard work. The biggest concern with NM is respiratory difficulty, in which the severe form has a 66% mortality rate by age 2. Is a devastating disease that causes muscle weakness that impairs breathing, swallowing, and most gross motor function. A Fundraiser for Nemaline Myopathy. So far, the event has raised over $70,000. To fund much needed research to find treatment for nemaline myopathy.
<META>
KEYWORDS
1 liv’s story
2 about loveliv
3 what is nm
4 funding research
5 donate
6 you can help
7 nemaline myopathy
8 liv updates
9 reading with mattie
10 always singing
CONTENT
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PAGE
liv’s story,about loveliv,what is nm,funding research,donate,you can help,nemaline myopathy,liv updates,reading with mattie,always singing,walking and talking,first steps,getting faster,letters,tired,soccer
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loveliv | loveliv.org Reviews

https://loveliv.org

Your contribution goes directly to funding research that can help Liv and other children with NM. Breathing is hard work. The biggest concern with NM is respiratory difficulty, in which the severe form has a 66% mortality rate by age 2. Is a devastating disease that causes muscle weakness that impairs breathing, swallowing, and most gross motor function. A Fundraiser for Nemaline Myopathy. So far, the event has raised over $70,000. To fund much needed research to find treatment for nemaline myopathy.

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loveliv.org loveliv.org
1

loveliv » thank you to all our generous sponsors

http://loveliv.org/our-sponsors

Thank you to all our generous sponsors. Debbie, Rick, Ashley and Jeremy Powell. Lea and Giulia Prough. Frank and Mickie Welsh. Judy and Wes Whitmore. All Proceeds go to.

2

loveliv » liv is a mermaid

http://loveliv.org/liv-is-a-mermaid

Liv is a mermaid. Liv has been asking to swim every day, twice a day, for weeks now. Grandpa built her a platform we can submerge in the pool and thanks to buoyancy she’s able to walk around on it and “swim”. Posted on July 29, 2014 at 10:40 pm. All Proceeds go to.

3

loveliv » where your money is going

http://loveliv.org/where-your-money-is-going

Where your money is going. In October 2013, A Foundation Building Strength hosted a Nemaline Myopathy consortium which coincided with the World Muscle Society Conference. 40 scientists from around the world attended. At that consortium A Foundation Building Strength announced its Building Muscle Initiative – a $1 million award to the best proposal to treat NM. This is how you can help Liv and all of the children currently living with NM. Gene Therapy for Nebulin-Based NM. Henk Grenzier, PhD,. Our prior w...

4

loveliv » liv’s story

http://loveliv.org/livs-story

I had surgery and began chemotherapy immediately. I was 16 weeks pregnant. I endured 4.5 months of chemo then took a 2 week break to build up strength to deliver our second son, Baron, our miracle warrior. 2 weeks after he was born, I began my second 3 month round of chemo. After completing chemo, I had a double mastectomy, reconstruction and 28 rounds of radiation. All Proceeds go to.

5

loveliv » about NM

http://loveliv.org/about-nm

Nemaline myopathy (NM) is a group of congenital, hereditary neuromuscular disorders that cause muscle weakness, generally nonprogressive, of varying severity where severe forms show up to 66% mortality rates before the age of two. It is considered one of the most severe muscle conditions of childhood. Currently no treatments or disease modifying therapies exist for nemaline myopathy and few potential candidate drugs have been identified. All Proceeds go to.

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Your contribution goes directly to funding research that can help Liv and other children with NM. Breathing is hard work. The biggest concern with NM is respiratory difficulty, in which the severe form has a 66% mortality rate by age 2. Is a devastating disease that causes muscle weakness that impairs breathing, swallowing, and most gross motor function. A Fundraiser for Nemaline Myopathy. So far, the event has raised over $70,000. To fund much needed research to find treatment for nemaline myopathy.

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