My husband, Dan and I have 2 sons. Ben is 6 years old. Luke was born March 17, 2010. Luke has a rare genetic condition MPPH (Megalencephaly Polymicrogyria Polydactyly Hydrocephalus) Syndrome and epilepsy. This blog is to help keep friends and family updated and also to hopefully find other parents/families who have experience with polymicrogyria and MPPH.
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Loving Luke | lovingluke1.blogspot.com Reviews
https://lovingluke1.blogspot.com
My husband, Dan and I have 2 sons. Ben is 6 years old. Luke was born March 17, 2010. Luke has a rare genetic condition MPPH (Megalencephaly Polymicrogyria Polydactyly Hydrocephalus) Syndrome and epilepsy. This blog is to help keep friends and family updated and also to hopefully find other parents/families who have experience with polymicrogyria and MPPH.
lovingluke1.blogspot.com
Loving Luke: Christmas in June and July!
http://lovingluke1.blogspot.com/2014/07/christmas-in-june-and-july.html
My husband, Dan and I have 2 sons. Ben is 6 years old. Luke was born March 17, 2010. Luke has a rare genetic condition MPPH (Megalencephaly Polymicrogyria Polydactyly Hydrocephalus) Syndrome and epilepsy. This blog is to help keep friends and family updated and also to hopefully find other parents/families who have experience with polymicrogyria and MPPH. Thursday, July 3, 2014. Christmas in June and July! Sooo much great stuff to update and so little time! Well, first of all, it takes for-ev-er! Second ...
Loving Luke: March 2015
http://lovingluke1.blogspot.com/2015_03_01_archive.html
My husband, Dan and I have 2 sons. Ben is 6 years old. Luke was born March 17, 2010. Luke has a rare genetic condition MPPH (Megalencephaly Polymicrogyria Polydactyly Hydrocephalus) Syndrome and epilepsy. This blog is to help keep friends and family updated and also to hopefully find other parents/families who have experience with polymicrogyria and MPPH. Monday, March 16, 2015. Happy St. Patrick’s Day and Happy Birthday, Luke! Luke is really excited about his birthday this year. On the weekends and when...
Loving Luke: April 2014
http://lovingluke1.blogspot.com/2014_04_01_archive.html
My husband, Dan and I have 2 sons. Ben is 6 years old. Luke was born March 17, 2010. Luke has a rare genetic condition MPPH (Megalencephaly Polymicrogyria Polydactyly Hydrocephalus) Syndrome and epilepsy. This blog is to help keep friends and family updated and also to hopefully find other parents/families who have experience with polymicrogyria and MPPH. Thursday, April 17, 2014. He's totally skipping just playing and going straight to sleepovers! He's turning into such a nut. Subscribe to: Posts (Atom).
Loving Luke: Summer 2015!!!
http://lovingluke1.blogspot.com/2015/06/summer-2015.html
My husband, Dan and I have 2 sons. Ben is 6 years old. Luke was born March 17, 2010. Luke has a rare genetic condition MPPH (Megalencephaly Polymicrogyria Polydactyly Hydrocephalus) Syndrome and epilepsy. This blog is to help keep friends and family updated and also to hopefully find other parents/families who have experience with polymicrogyria and MPPH. Tuesday, June 23, 2015. Nurse Leah, Ms. Birner, Mrs. Walker. Mrs Mayer and Luke. Exciting stuff.Luke is learning to write his name! All By. Himself!
Loving Luke: The Big Five!
http://lovingluke1.blogspot.com/2015/03/the-big-five_16.html
My husband, Dan and I have 2 sons. Ben is 6 years old. Luke was born March 17, 2010. Luke has a rare genetic condition MPPH (Megalencephaly Polymicrogyria Polydactyly Hydrocephalus) Syndrome and epilepsy. This blog is to help keep friends and family updated and also to hopefully find other parents/families who have experience with polymicrogyria and MPPH. Monday, March 16, 2015. Happy St. Patrick’s Day and Happy Birthday, Luke! Luke is really excited about his birthday this year. On the weekends and when...
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Caring for Callie: How it all went down
http://calliebloggie.blogspot.com/2011/01/how-it-all-went-down.html
A mommy's journal about her very special baby girl. Wednesday, February 2, 2011. How it all went down. I remember thinking this seemed like an over-reaction, but okay. I called Allen at work to let him know and got the kids together. Believe it or not, this was our first trip to the ER. I don't know how it is possible that we had a nearly 4 year old boy and never spent time in the ER, but I guess we were lucky (until this point). This is Callie just before she was diagnosed. When things were perfect.
Caring for Callie: March 2014
http://calliebloggie.blogspot.com/2014_03_01_archive.html
A mommy's journal about her very special baby girl. Friday, March 7, 2014. We have had quite a winter here in Northern Virginia! By the standards of my friends farther north, it has been nothing, but VA is not very good at dealing with cold weather and snow removal. We live in the more densely populated eastern part of our county and often get snow days due to the conditions of the roads in the more rural western region. The other day was our 13th snow day! Callie did great in the snow this year!
Caring for Callie: April 2014
http://calliebloggie.blogspot.com/2014_04_01_archive.html
A mommy's journal about her very special baby girl. Sunday, April 20, 2014. Subscribe to: Posts (Atom). This is a mommy's journal about her very special baby girl. Callie has a rare neurological disorder called bilateral perisylvian polymicrogyria (PMG). She has also experienced infantile spasms and has been diagnosed as failure to thrive. Callie currently battles seizures, eosinophilic esophagitis (EoE) and apraxia of speech, and has a G tube. Life on Mystery Lane. Didn't See It Coming.
Caring for Callie: Trampoline
http://calliebloggie.blogspot.com/2012/09/trampoline.html
A mommy's journal about her very special baby girl. Monday, September 24, 2012. Thank you for the trampoline, Miss Angela! It brought tears to my eyes too. So sweet to see her doing so well. On September 24, 2012 at 7:45 PM said. Such a big, strong girl! On November 8, 2012 at 1:25 PM said. I just love this! So proud of her:)! Subscribe to: Post Comments (Atom). If you would like to read from the beginning, here is how it all went down. Life on Mystery Lane. Didn't See It Coming. Pieces of the Reeses.
Caring for Callie: Apraxia Awareness Day
http://calliebloggie.blogspot.com/2013/05/apraxia-awareness-day.html
A mommy's journal about her very special baby girl. Tuesday, May 14, 2013. Today is Apraxia Awareness Day! Apraxia is among the most severe speech and communication problems in children. Affected children have difficulty planning and producing the precise, highly refined and specific series of movements of the tongue, lips, jaw, and palate that are necessary to produce clear, intelligible speech. I recently joined a Facebook Group for parents of children with apraxia which has over 10,000 members!
Caring for Callie: September 2013
http://calliebloggie.blogspot.com/2013_09_01_archive.html
A mommy's journal about her very special baby girl. Thursday, September 19, 2013. Callie started her second year of special ed preschool at our home elementary school. I really like the fact that she and Owen are in the same location and their classrooms are right down the hall from each other. This year Callie is in an afternoon class five days a week. A big yellow school bus picks her up and drops her off right in front our our home. She loves it! Can you believe how grown up she looks in this picture?
Caring for Callie: Callie at 3
http://calliebloggie.blogspot.com/2012/12/callie-at-3.html
A mommy's journal about her very special baby girl. Friday, December 7, 2012. I can't believe our baby girl turned 3 this past month. Like I did 6 months ago. I thought it would be good to recap where she is in different areas. Stats: Callie is now just over 35 inches tall (10%) and weighs 28 pounds (25%). Her BMI is 50%, which really great. Gross motor skills: As you know, Callie started walking. Although her gait remains abnormal. Her legs still hyper-extend when she does not have her AFOs. Was correct...
Caring for Callie: October 2013
http://calliebloggie.blogspot.com/2013_10_01_archive.html
A mommy's journal about her very special baby girl. Thursday, October 31, 2013. Happy Halloween from Princess Callie! Wednesday, October 9, 2013. Subscribe to: Posts (Atom). If you would like to read from the beginning, here is how it all went down. Life on Mystery Lane. Didn't See It Coming. Pieces of the Reeses. Upped the dose again. 21 Days of AAC Challenge: 2016. Fighting Monsters with Rubber Swords. There was an error in this gadget. Flower Image by Dapino.
Caring for Callie: Return of Seizures
http://calliebloggie.blogspot.com/2013/10/return-of-seizures.html
A mommy's journal about her very special baby girl. Wednesday, October 9, 2013. On October 15, 2013 at 10:51 PM said. Im so sorry to hear about the return of the seizures. I just hate them so much. Luke did really well on Keppra for quite awhile w/ no side effects. Big hugs to you and Callie. Mel. Subscribe to: Post Comments (Atom). If you would like to read from the beginning, here is how it all went down. Life on Mystery Lane. Didn't See It Coming. Pieces of the Reeses. Upped the dose again.
TOTAL LINKS TO THIS WEBSITE
108
Loving Lucy -- A Lucille Ball Fan Website
This is a fan website and is. Associated in any way with CBS, Desilu, too LLC, The Arnaz Family, TV Land, or the owner(s) of I Love Lucy. This website is for entertainment purposes.
lovinglucylapband.blogspot.com
loving lucy lapband
Friday, October 1, 2010. Been gone so long So many thoughts! It feels like forever and honestly it has been.months. There has been so many things going on and so many thoughts and feelings that I probably wont be able to get to them all but I know I need to blog to just get some of these thoughts down and out of my head. First things first.As far as the pregnancy over all, it is going great! Lord help me another little boy running around my house! That was on 09/10. OK for anyone that has had the band a ...
Loving Luka
From prenatal care on four continents to an emergency evacuation out of Timor-Leste to deliver, the legend of Luka begins. Follow our trials and tribulations as we learn to be good parents to a preemie. Thursday, January 23, 2014. Pedaling4Preemies fundraising site launched! Dili, 1 February 2014 - Team Pedaling4Preemies is now official - complete with logo and all! Please click on the logo above to visit our fundraising site if you would like to make a contribution to our cause. 23 March 2011, Luka's fi...
Luke – Bearer of Light
How it all began. Luke - 1 month. Luke - 5 months. Luke - 8 months. Luke on the night of admission. Luke with new friend Luna. The Ninkovics entire world was turned upside down on January 8th, 2014, when they were told their beautiful 8 month old son had a rare form of Leukemia, both ALL and AML presenting together. Luke had been at Sick Kids in Toronto since January and in March a bone marrow transplant match was found. His bone marrow transplant took place on April 30th, 2014. Please help by donating.
Loving Luke
My husband, Dan and I have 2 sons. Ben is 6 years old. Luke was born March 17, 2010. Luke has a rare genetic condition MPPH (Megalencephaly Polymicrogyria Polydactyly Hydrocephalus) Syndrome and epilepsy. This blog is to help keep friends and family updated and also to hopefully find other parents/families who have experience with polymicrogyria and MPPH. Sunday, December 13, 2015. It's never as easy as I think it's going to be. We ended up taking the whole week plus a bonus weekend! While he was seizing...
dogs are gonna bark...
Dogs are gonna bark. Hi my name is Rose and this is just another blog dedicated to that group of hopeless kids with no future taking on the streets of Melbourne. Luke brooks jai brooks beau brooks james yammouni daniel sahyounie. I fell in love when I saw you standing there. You’re beautiful every little piece love and don’t you know, you’re really gonna be someone, ask anyone. With 1,178 notes. With 2,305 notes. 9194;⏪ hey 😊 (Taken with GifBoom. I’ve always had this url .x. With 1,711 notes.
Loving Lukey | The Lord has done great things for us, and we are filled with joy. Ps126:3
The Lord has done great things for us, and we are filled with joy. Ps126:3. January 5, 2015. It was on your first birthday that I memorized this scripture. I didn’t feel it, but I wanted to claim it for our family, for myself. And I chose to believe it was true even though I felt stuck in a pit. 8220;See, I am doing a new thing! Now it springs up; do you not perceive it? I am making a way in the wilderness and streams in the wasteland. Isaiah 43:19.”. From → Love Note. June 16, 2014. Two weeks ago, when ...
LovingLullaby (Nicole) | DeviantArt
Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')". Less Than Three <3. Deviant for 6 Years. This deviant's full pageview. Last Visit: 303 weeks ago. Less Than Three <3. This is the place where you can personalize your profile! By moving, adding and personalizing widgets. You can drag and drop to rearrange. You can edit widgets to customize them. The bottom has widgets you can add! Why," you ask? There was a...
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