lsucd.blogspot.com

A boy named Lennon

A boy named Lennon. Lennon was born with a rare metabolic genetic disorder called Urea cycle disorder - CPS Deficiency. He was diagnosed at the age of 4. In November 2008 he underwent not one but two liver transplants in order to save his life and could potentially face another transplant. This is his story. Yeah we all shine on, like the moon, and the stars, and the sun. John Lennon. The shortest stay in a long time. Posted by Petra Monaco. Lennon is well. He is sore still but well! I have moved and imp...

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A boy named Lennon | lsucd.blogspot.com Reviews

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A boy named Lennon. Lennon was born with a rare metabolic genetic disorder called Urea cycle disorder - CPS Deficiency. He was diagnosed at the age of 4. In November 2008 he underwent not one but two liver transplants in order to save his life and could potentially face another transplant. This is his story. Yeah we all shine on, like the moon, and the stars, and the sun. John Lennon. The shortest stay in a long time. Posted by Petra Monaco. Lennon is well. He is sore still but well! I have moved and imp...

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A boy named Lennon | lsucd.blogspot.com Reviews

https://lsucd.blogspot.com

A boy named Lennon. Lennon was born with a rare metabolic genetic disorder called Urea cycle disorder - CPS Deficiency. He was diagnosed at the age of 4. In November 2008 he underwent not one but two liver transplants in order to save his life and could potentially face another transplant. This is his story. Yeah we all shine on, like the moon, and the stars, and the sun. John Lennon. The shortest stay in a long time. Posted by Petra Monaco. Lennon is well. He is sore still but well! I have moved and imp...

INTERNAL PAGES

lsucd.blogspot.com

1

A boy named Lennon: April 2010

http://www.lsucd.blogspot.com/2010_04_01_archive.html

A boy named Lennon. Lennon was born with a rare metabolic genetic disorder called Urea cycle disorder - CPS Deficiency. He was diagnosed at the age of 4. In November 2008 he underwent not one but two liver transplants in order to save his life and could potentially face another transplant. This is his story. Yeah we all shine on, like the moon, and the stars, and the sun. John Lennon. Walk for Kids 2010. Posted by Petra Monaco. To donate: http:/ www.firstgiving.com/lennon. Posted by Petra Monaco. Let me ...

2

A boy named Lennon: February 2010

http://www.lsucd.blogspot.com/2010_02_01_archive.html

A boy named Lennon. Lennon was born with a rare metabolic genetic disorder called Urea cycle disorder - CPS Deficiency. He was diagnosed at the age of 4. In November 2008 he underwent not one but two liver transplants in order to save his life and could potentially face another transplant. This is his story. Yeah we all shine on, like the moon, and the stars, and the sun. John Lennon. Some days are diamonds, Some days are stone. Posted by Petra Monaco. Quoting John Denver today! What we learned today.

3

A boy named Lennon: October 2010

http://www.lsucd.blogspot.com/2010_10_01_archive.html

A boy named Lennon. Lennon was born with a rare metabolic genetic disorder called Urea cycle disorder - CPS Deficiency. He was diagnosed at the age of 4. In November 2008 he underwent not one but two liver transplants in order to save his life and could potentially face another transplant. This is his story. Yeah we all shine on, like the moon, and the stars, and the sun. John Lennon. Mother Sells Soap To Raise Money For Son With Rare Genetic Disorder. Posted by Petra Monaco. Posted by Petra Monaco.

4

The education frustration

http://www.lsucd.blogspot.com/2010/11/education-frustration.html

A boy named Lennon. Lennon was born with a rare metabolic genetic disorder called Urea cycle disorder - CPS Deficiency. He was diagnosed at the age of 4. In November 2008 he underwent not one but two liver transplants in order to save his life and could potentially face another transplant. This is his story. Yeah we all shine on, like the moon, and the stars, and the sun. John Lennon. Posted by Petra Monaco. Can I handle the pressure and stress that does come with it, when he's having a terrible day or a...

5

The shortest stay in a long time

http://www.lsucd.blogspot.com/2012/09/the-shortest-stay-in-long-time.html

A boy named Lennon. Lennon was born with a rare metabolic genetic disorder called Urea cycle disorder - CPS Deficiency. He was diagnosed at the age of 4. In November 2008 he underwent not one but two liver transplants in order to save his life and could potentially face another transplant. This is his story. Yeah we all shine on, like the moon, and the stars, and the sun. John Lennon. The shortest stay in a long time. Posted by Petra Monaco. Lennon is well. He is sore still but well! A boy named Lennon.

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ucdamy.blogspot.com

Tale of One Quirky Amy: Bone Yard trying to open for Kiss

http://ucdamy.blogspot.com/2010/06/bone-yard-trying-to-open-for-kiss.html

Tale of One Quirky Amy. I am writing this blog to show patients and families of adult patients with urea cycle disorders that life can be fun even when coping with a UCD on a daily basis. All posts on this blog that inlcude information about my medical care/treatment of Ornithine Transcarbamylase Deficiency (OTC) are for personal documentation and in now way are to be taken as "medical advice". Amy and J.J. Happiness is possible even while living with a UCD. Wednesday, June 2, 2010. First day of Second G...

ucdamy.blogspot.com

Tale of One Quirky Amy: Letting UCD patients out of the nest

http://ucdamy.blogspot.com/2011/06/letting-ucd-patients-out-of-nest.html

Tale of One Quirky Amy. I am writing this blog to show patients and families of adult patients with urea cycle disorders that life can be fun even when coping with a UCD on a daily basis. All posts on this blog that inlcude information about my medical care/treatment of Ornithine Transcarbamylase Deficiency (OTC) are for personal documentation and in now way are to be taken as "medical advice". Amy and J.J. Happiness is possible even while living with a UCD. Friday, June 10, 2011. Second, make sure the p...

ucdamy.blogspot.com

Tale of One Quirky Amy: No More Rack!

http://ucdamy.blogspot.com/2011/06/no-more-rack.html

Tale of One Quirky Amy. I am writing this blog to show patients and families of adult patients with urea cycle disorders that life can be fun even when coping with a UCD on a daily basis. All posts on this blog that inlcude information about my medical care/treatment of Ornithine Transcarbamylase Deficiency (OTC) are for personal documentation and in now way are to be taken as "medical advice". Amy and J.J. Happiness is possible even while living with a UCD. Wednesday, June 15, 2011. I am an adult patien...

ucdamy.blogspot.com

Tale of One Quirky Amy: MRI Imaging Study

http://ucdamy.blogspot.com/2011/03/mri-imaging-study.html

Tale of One Quirky Amy. I am writing this blog to show patients and families of adult patients with urea cycle disorders that life can be fun even when coping with a UCD on a daily basis. All posts on this blog that inlcude information about my medical care/treatment of Ornithine Transcarbamylase Deficiency (OTC) are for personal documentation and in now way are to be taken as "medical advice". Amy and J.J. Happiness is possible even while living with a UCD. Friday, March 11, 2011. Have any of my fellow ...

ucdamy.blogspot.com

Tale of One Quirky Amy: June 2010

http://ucdamy.blogspot.com/2010_06_01_archive.html

Tale of One Quirky Amy. I am writing this blog to show patients and families of adult patients with urea cycle disorders that life can be fun even when coping with a UCD on a daily basis. All posts on this blog that inlcude information about my medical care/treatment of Ornithine Transcarbamylase Deficiency (OTC) are for personal documentation and in now way are to be taken as "medical advice". Amy and J.J. Happiness is possible even while living with a UCD. Wednesday, June 2, 2010. Links to this post.

ucdamy.blogspot.com

Tale of One Quirky Amy: Yearly visit to my UCD specialist

http://ucdamy.blogspot.com/2010/12/yearly-visit-to-my-ucd-specialist.html

Tale of One Quirky Amy. I am writing this blog to show patients and families of adult patients with urea cycle disorders that life can be fun even when coping with a UCD on a daily basis. All posts on this blog that inlcude information about my medical care/treatment of Ornithine Transcarbamylase Deficiency (OTC) are for personal documentation and in now way are to be taken as "medical advice". Amy and J.J. Happiness is possible even while living with a UCD. Wednesday, December 1, 2010. Met her temporary...

ucdamy.blogspot.com

Tale of One Quirky Amy: Food Cravings & Salt Intake

http://ucdamy.blogspot.com/2010/04/food-cravings-salt-intake.html

Tale of One Quirky Amy. I am writing this blog to show patients and families of adult patients with urea cycle disorders that life can be fun even when coping with a UCD on a daily basis. All posts on this blog that inlcude information about my medical care/treatment of Ornithine Transcarbamylase Deficiency (OTC) are for personal documentation and in now way are to be taken as "medical advice". Amy and J.J. Happiness is possible even while living with a UCD. Friday, April 30, 2010. Potatoes (tater tots, ...

ucdamy.blogspot.com

Tale of One Quirky Amy: June 2011

http://ucdamy.blogspot.com/2011_06_01_archive.html

Tale of One Quirky Amy. I am writing this blog to show patients and families of adult patients with urea cycle disorders that life can be fun even when coping with a UCD on a daily basis. All posts on this blog that inlcude information about my medical care/treatment of Ornithine Transcarbamylase Deficiency (OTC) are for personal documentation and in now way are to be taken as "medical advice". Amy and J.J. Happiness is possible even while living with a UCD. Wednesday, June 15, 2011. Links to this post.

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A boy named Lennon

A boy named Lennon. Lennon was born with a rare metabolic genetic disorder called Urea cycle disorder - CPS Deficiency. He was diagnosed at the age of 4. In November 2008 he underwent not one but two liver transplants in order to save his life and could potentially face another transplant. This is his story. Yeah we all shine on, like the moon, and the stars, and the sun. John Lennon. The shortest stay in a long time. Posted by Petra Monaco. Lennon is well. He is sore still but well! I have moved and imp...

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