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Lucas' Journey With EoE

Lucas' Journey With EoE. Monday, November 25, 2013. Elimination Diet.2 years later. I know it's been awhile since I've updated. Life gets in the way like that. Since my last post, Lucas started Kindergarten and is doing great in school. Before he started, I had a 504 meeting with his teachers, counselor, and county NP. Everyone was on board and eager to make accommodations as needed. Sunday, August 25, 2013. Fish Is Not What It Seems For The Boy.Scope #9 Results. For the score keepers:. Dr P expressed co...

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Lucas' Journey With EoE | lucasjourneywithee.blogspot.com Reviews
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Lucas' Journey With EoE. Monday, November 25, 2013. Elimination Diet.2 years later. I know it's been awhile since I've updated. Life gets in the way like that. Since my last post, Lucas started Kindergarten and is doing great in school. Before he started, I had a 504 meeting with his teachers, counselor, and county NP. Everyone was on board and eager to make accommodations as needed. Sunday, August 25, 2013. Fish Is Not What It Seems For The Boy.Scope #9 Results. For the score keepers:. Dr P expressed co...
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Lucas' Journey With EoE | lucasjourneywithee.blogspot.com Reviews

https://lucasjourneywithee.blogspot.com

Lucas' Journey With EoE. Monday, November 25, 2013. Elimination Diet.2 years later. I know it's been awhile since I've updated. Life gets in the way like that. Since my last post, Lucas started Kindergarten and is doing great in school. Before he started, I had a 504 meeting with his teachers, counselor, and county NP. Everyone was on board and eager to make accommodations as needed. Sunday, August 25, 2013. Fish Is Not What It Seems For The Boy.Scope #9 Results. For the score keepers:. Dr P expressed co...

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Lucas' Journey With EoE: Can you believe it's been 3 years?

http://lucasjourneywithee.blogspot.com/2013/04/can-you-believe-its-been-3-years.html

Lucas' Journey With EoE. Thursday, April 25, 2013. Can you believe it's been 3 years? Late on Sunday, April 21st, it dawned on me that 3 years ago Lucas was diagnosed with EoE. It's been an incredible journey and I know that it will never end until a cure is found. We've had our good moments and certainly our bad moments but we wouldn't be where we are today without each one, good or bad. August 16, 2013 at 10:02 PM. I just came across your blog from Pinterest. Im so happy to have another blogger abo...

2

Lucas' Journey With EoE: On The Road Again....Scope #9

http://lucasjourneywithee.blogspot.com/2013/08/on-road-againscope-9.html

Lucas' Journey With EoE. Tuesday, August 13, 2013. On The Road Again.Scope #9. As many of you know, we traveled once again to our favorite children's hospital the other day. We didn't make any grand appearances with other EoS families but Daddy/Hubby joined us for the first time since we initially went up there 2 years ago. It was also his first time meeting Dr. P. Our ride up was uneventful. (Yay! Just like any other visit, Lucas must have his vitals taken. Momma even joined him on the bed. But before h...

3

Lucas' Journey With EoE: Elimination Diet...2 years later

http://lucasjourneywithee.blogspot.com/2013/11/elimination-diet2-years-later.html

Lucas' Journey With EoE. Monday, November 25, 2013. Elimination Diet.2 years later. I know it's been awhile since I've updated. Life gets in the way like that. Since my last post, Lucas started Kindergarten and is doing great in school. Before he started, I had a 504 meeting with his teachers, counselor, and county NP. Everyone was on board and eager to make accommodations as needed. Subscribe to: Post Comments (Atom). Louisville, KY, United States. View my complete profile.

4

Lucas' Journey With EoE: Fish Is Not What It Seems For The Boy....Scope #9 Results

http://lucasjourneywithee.blogspot.com/2013/08/fish-is-not-what-it-seems-for-boyscope.html

Lucas' Journey With EoE. Sunday, August 25, 2013. Fish Is Not What It Seems For The Boy.Scope #9 Results. After playing phone tag for a few days, Dr. P called and had some okay news to share. Scope results:. A) Distal esophagus (bottom of the esophagus). B) Proximal esophagus (top of the esophagus). Sample A came back with 33 eosinophils per high powered field. Sample B came back zero! Comparing from May's scope, his lower esophagus showed some inflammation. His upper esophagus remained unchanged. While ...

5

Lucas' Journey With EoE: Our Quarterly Trek To Cincy

http://lucasjourneywithee.blogspot.com/2013/01/our-quarterly-trek-to-cincy.html

Lucas' Journey With EoE. Monday, January 14, 2013. Our Quarterly Trek To Cincy. He did a really good job building it on the fly. He even made an airplane that held up to three passengers. He LOVES Legos! He can spend hours playing with them. The NP with anesthesia came in to check his vitals. I was called into recovery and found Lucas laying like so:. I quickly told him that the nurse wasn't talking to him but to the other boy. Transport arrived and brought us down to the main floor. Lucas and I ...

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Aidan... With Eos: Checking In...

http://aidanwitheos.blogspot.com/2015/04/checking-in.html

Living, Loving, and Thriving with a Medically Complicated Child. Friday, April 3, 2015. Sometimes, so much time passes since I last wrote, I feel like I should have something monumental to say. But I don't, so I don't say anything at all, and then you don't hear anything from us until something awful happens. Nothing awful has happened. We're still here, taking things one day at a time and trying to keep it all in perspective when I think it's all too much. Hi, I'm checking in for my Awake Study? We chec...

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Aidan... With Eos: Feeding Tube Awareness Week 2015

http://aidanwitheos.blogspot.com/2015/02/feeding-tube-awareness-week-2015.html

Living, Loving, and Thriving with a Medically Complicated Child. Monday, February 16, 2015. Feeding Tube Awareness Week 2015. In a perfect world, I would have had a lovely post queued up every day last week, in honor of Feeding Tube Awareness Week. Didn't quite happen. Why is Aidan tube fed? Think a child can grow/thrive/develop on 120 calories per day? I don't. And he wasn't. What does this week mean to us? More than anything else, Feeding Tube Awareness Week means Getting the Word Out. I'll take this a...

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Aidan... With Eos: June 2014

http://aidanwitheos.blogspot.com/2014_06_01_archive.html

Living, Loving, and Thriving with a Medically Complicated Child. Tuesday, June 24, 2014. CHOP in June - The Time We Went For Bile. It's been such a long week. I'm going to warn you right now - the words "poop" and "vomit" figure prominently in this update. Turn back now, ye faint of heart. This is a poopy/vomity life we're living and I wouldn't even begin to know what else to write about this week. No pictures though. You're welcome. :). It all started on Friday. Friday the 13th, and. Take me home, mom!

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Aidan... With Eos: August 2013

http://aidanwitheos.blogspot.com/2013_08_01_archive.html

Living, Loving, and Thriving with a Medically Complicated Child. Thursday, August 1, 2013. It's every parent's nightmare - one that feels all too real for those of us whose children are dealing with food allergies. Natalie Giorgi. A 13 year old girl, camping with her family, took a bite ( one bite. Where did everything go so wrong? I think this article ( Click here for The Article. Explains it very well. So many of our allergy action plans list EpiPens as a second line of defense. I'll admit - ou...Yes, ...

aidanwitheos.blogspot.com aidanwitheos.blogspot.com

Aidan... With Eos: December 2014

http://aidanwitheos.blogspot.com/2014_12_01_archive.html

Living, Loving, and Thriving with a Medically Complicated Child. Tuesday, December 30, 2014. The Flu, and Farewell to 2014. Two posts in one week? We must be inpatient. The Great Influenza of 2014. You know, I'd just been saying to Tom that it was going to be so nice to have one nice healthy Christmas for Aidan. So, truly, I asked for this. Around the mall on his own feet. Feverish, lethargic, and still retching. The ER was a madhouse - clearly, everyone ELSE in the world was ALSO sick on Christmas week,...

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Aidan... With Eos: January 2015

http://aidanwitheos.blogspot.com/2015_01_01_archive.html

Living, Loving, and Thriving with a Medically Complicated Child. Thursday, January 22, 2015. Tube Change - January 2015. January found us inpatient for a tube change (I can't believe it's already been three months! It's been a tough month for Aidan for a number of reasons, so I wasn't sure how this hospital visit would go, but they're certainly not optional, so off we went. This was an important visit for Aidan. For starters, it was his first hospital stay where he used a hospital bed. He "woke up" from ...

aidanwitheos.blogspot.com aidanwitheos.blogspot.com

Aidan... With Eos: January 2014

http://aidanwitheos.blogspot.com/2014_01_01_archive.html

Living, Loving, and Thriving with a Medically Complicated Child. Friday, January 3, 2014. My Sweet Little Boy is THREE! I'm almost certain it was only a few days ago that he was born. I just found this comparison shot of Aidan on the day I brought him home from the hospital, and then 11 weeks later. How did either one of those Baby Bears turn into the little meatball rolling around my living room today? A visit to Nutrition yesterday told us that he is up to 27lb 5oz (8th Percentile! Aidan adores his bes...

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Aidan... With Eos: July 2014

http://aidanwitheos.blogspot.com/2014_07_01_archive.html

Living, Loving, and Thriving with a Medically Complicated Child. Monday, July 14, 2014. Feeding Tube Awareness Foundation - A Parent's Introduction to Tube Feeding. I think everyone knows by now how much I love the Feeding Tube Awareness Foundation. They were a really helpful source of information for us when Aidan got his tube, and I still go back there when I'm troubleshooting a problem or feeling a little discouraged. Send them in this direction. Http:/ www.feedingtubeawareness.com/. Links to this post.

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Lucas' Journey With EoE

Lucas' Journey With EoE. Monday, November 25, 2013. Elimination Diet.2 years later. I know it's been awhile since I've updated. Life gets in the way like that. Since my last post, Lucas started Kindergarten and is doing great in school. Before he started, I had a 504 meeting with his teachers, counselor, and county NP. Everyone was on board and eager to make accommodations as needed. Sunday, August 25, 2013. Fish Is Not What It Seems For The Boy.Scope #9 Results. For the score keepers:. Dr P expressed co...

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