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Lungs Behaving Badly.

Enjoying life with our daughter Sophie who has Cystic Fibrosis and was also born with a Tracheo-Oesophageal Fistula and Oesophageal Atresia. Monday, 1 June 2015. A little while ago I mentioned that Sophie had started ice skating lessons and was doing rather well. She was picked up by a coach who wanted to coach her privately and as Sophie loves skating we allowed this to happen. The hope is that the scoring criteria can be used to allow Ice skating to be included in the Paralympics! And I'm incredibly pr...

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Lungs Behaving Badly. | lungsbehavingbadly.blogspot.com Reviews
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Enjoying life with our daughter Sophie who has Cystic Fibrosis and was also born with a Tracheo-Oesophageal Fistula and Oesophageal Atresia. Monday, 1 June 2015. A little while ago I mentioned that Sophie had started ice skating lessons and was doing rather well. She was picked up by a coach who wanted to coach her privately and as Sophie loves skating we allowed this to happen. The hope is that the scoring criteria can be used to allow Ice skating to be included in the Paralympics! And I'm incredibly pr...
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1 lungs behaving badly
2 pages
3 what is cf
4 what is tof/oa
5 tof/oa story
6 daily treatments
7 operations
8 ice ice baby
9 posted by
10 gemma
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lungs behaving badly,pages,what is cf,what is tof/oa,tof/oa story,daily treatments,operations,ice ice baby,posted by,gemma,1 comment,email this,blogthis,share to twitter,share to facebook,share to pinterest,shingle bells,it's a rash,labels shingles,hi all
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Lungs Behaving Badly. | lungsbehavingbadly.blogspot.com Reviews

https://lungsbehavingbadly.blogspot.com

Enjoying life with our daughter Sophie who has Cystic Fibrosis and was also born with a Tracheo-Oesophageal Fistula and Oesophageal Atresia. Monday, 1 June 2015. A little while ago I mentioned that Sophie had started ice skating lessons and was doing rather well. She was picked up by a coach who wanted to coach her privately and as Sophie loves skating we allowed this to happen. The hope is that the scoring criteria can be used to allow Ice skating to be included in the Paralympics! And I'm incredibly pr...

INTERNAL PAGES

lungsbehavingbadly.blogspot.com lungsbehavingbadly.blogspot.com
1

Lungs Behaving Badly.: MRSA Vs Vancomycin

http://lungsbehavingbadly.blogspot.com/2013/02/mrsa-vs-vancomycin.html

Enjoying life with our daughter Sophie who has Cystic Fibrosis and was also born with a Tracheo-Oesophageal Fistula and Oesophageal Atresia. Tuesday, 26 February 2013. Very long overdue post, sorry! Well in my defence I have a reason why I have left it so long before writing this. Right lets zoom back to Sophie's 5 day admission for nebulised Vancomycin. This was our last real shot of trying to eradicate MRSA. To stop promixin for the 5 days while Soph had the Vanc. To nebulise Vancomycin 4 times per day.

2

Lungs Behaving Badly.: Shingle bells.

http://lungsbehavingbadly.blogspot.com/2015/06/shingle-bells.html

Enjoying life with our daughter Sophie who has Cystic Fibrosis and was also born with a Tracheo-Oesophageal Fistula and Oesophageal Atresia. Monday, 1 June 2015. Sounds lovely doesn't it? Nice little ring to its name you'd say. A tiny little 'dry' patch of skin, which someone (that would be me) assumed was a small graze from a tumble Sophie had taken while playing. Off to school we go. I receive a phone call from the hubster to inform me of a weird rash Sophie has. What kind of a rash is it? Knowing seve...

3

Lungs Behaving Badly.: VX770/VX809

http://lungsbehavingbadly.blogspot.com/p/vx770vx809.html

Enjoying life with our daughter Sophie who has Cystic Fibrosis and was also born with a Tracheo-Oesophageal Fistula and Oesophageal Atresia. Link to original post. There has been a huge buzz in the CF community for some time now but last week some results were announced that could potentially change the future for our little ones and the many many people living with Cystic Fibrosis. The drug is VX770. Here's the science bit. This is the reason that when a person with CF sweats, they taste very salty and ...

4

Lungs Behaving Badly.: Ice Ice Baby.

http://lungsbehavingbadly.blogspot.com/2015/06/ice-ice-baby.html

Enjoying life with our daughter Sophie who has Cystic Fibrosis and was also born with a Tracheo-Oesophageal Fistula and Oesophageal Atresia. Monday, 1 June 2015. A little while ago I mentioned that Sophie had started ice skating lessons and was doing rather well. She was picked up by a coach who wanted to coach her privately and as Sophie loves skating we allowed this to happen. The hope is that the scoring criteria can be used to allow Ice skating to be included in the Paralympics! And I'm incredibly pr...

5

Lungs Behaving Badly.: Super Doc

http://lungsbehavingbadly.blogspot.com/2015/02/super-doc.html

Enjoying life with our daughter Sophie who has Cystic Fibrosis and was also born with a Tracheo-Oesophageal Fistula and Oesophageal Atresia. Tuesday, 24 February 2015. Long time no blog :). I'm going to do a big update on Sophie but I'm waiting until March for reasons I will hopefully be able to divulge then. For now I'm asking for your help (begging if it suits). So please, if you are able, help him reach his target of £10,000. Any amount no matter how small will help. Subscribe to: Post Comments (Atom).

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caloriesandcreon.blogspot.com caloriesandcreon.blogspot.com

Calories and Creon: November 2012

http://caloriesandcreon.blogspot.com/2012_11_01_archive.html

Thursday, 8 November 2012. Guest Blog - Smart Snacking :). Everyone with CF knows the relationship with food is very much a love/hate thing so here is a guest blog from the lovely Laura. With a little guide on how to pack in the high calorie snack when not really feeling the love! I think we all have those moments when we don't want to eat anything, but know we should. Too full, too sick, too fed up. Me? Crispy bacon (300 cals a pack). Coke (142 cals per 330ml can). Sainsbury's peanuts, raisins and choco...

joeyhughes2009.blogspot.com joeyhughes2009.blogspot.com

"Little Miss CF......": "Little Miss Joey"

http://joeyhughes2009.blogspot.com/p/little-miss-joey.html

Little Miss CF.". There is way more to me than just a life with Cystic Fibrosis, but its a huge part of my life, it affects everything i can do! Somedays i hate CF others i just get on with it! This is my life, my story, the way i deal with CF and the way it affects me! So read with an open mind, don't judge me or feel sorry for me! I'm stronger than you think and i'll keep fighting till the very end! To me there is no reason to live life, do things and the regret them! Sophie is her name, she's tiny lik...

joeyhughes2009.blogspot.com joeyhughes2009.blogspot.com

"Little Miss CF......": My World Falls Apart.........

http://joeyhughes2009.blogspot.com/2012/10/my-world-falls-apart.html

Little Miss CF.". There is way more to me than just a life with Cystic Fibrosis, but its a huge part of my life, it affects everything i can do! Somedays i hate CF others i just get on with it! This is my life, my story, the way i deal with CF and the way it affects me! So read with an open mind, don't judge me or feel sorry for me! I'm stronger than you think and i'll keep fighting till the very end! Monday, 29 October 2012. My World Falls Apart. It didnt matter what i was thinking about, somehow i'd cr...

joeyhughes2009.blogspot.com joeyhughes2009.blogspot.com

"Little Miss CF......": The Best Thing I've Ever Done - The Skydive

http://joeyhughes2009.blogspot.com/2012/05/best-thing-ive-ever-done-skydive.html

Little Miss CF.". There is way more to me than just a life with Cystic Fibrosis, but its a huge part of my life, it affects everything i can do! Somedays i hate CF others i just get on with it! This is my life, my story, the way i deal with CF and the way it affects me! So read with an open mind, don't judge me or feel sorry for me! I'm stronger than you think and i'll keep fighting till the very end! Monday, 28 May 2012. The Best Thing Ive Ever Done - The Skydive. Lungs are you ready to jump! My next jo...

ludicrousbunglings.blogspot.com ludicrousbunglings.blogspot.com

Ludicrous Bunglings: Watching the rain

http://ludicrousbunglings.blogspot.com/2015/03/watching-rain.html

8220;It only amuses me,” said K., “because it gives me an insight into the ludicrous bungling that in certain circumstances may decide the life of a human being.” (Kafka, The Castle). Saturday, 21 March 2015. Ticking away the moments that make up a dull day. Fritter and waste the hours in an off-hand way. Kicking around on a piece of ground in your home town. Waiting for someone or something to show you the way. Tired of lying in the sunshine staying home to watch the rain. Home, home again. It's slightl...

ludicrousbunglings.blogspot.com ludicrousbunglings.blogspot.com

Ludicrous Bunglings: August 2014

http://ludicrousbunglings.blogspot.com/2014_08_01_archive.html

8220;It only amuses me,” said K., “because it gives me an insight into the ludicrous bungling that in certain circumstances may decide the life of a human being.” (Kafka, The Castle). Thursday, 21 August 2014. Weight Gain and Summer Fun. It's been pretty shittily long since i've written - there's much and simultaneously not much to write however I felt I should check in and let whoever reads this thing know that I'm not dead, but very much alive. Links to this post. Subscribe to: Posts (Atom). Happy reci...

willmychildevereat.blogspot.com willmychildevereat.blogspot.com

Will my child ever eat?: Tube wean begins.

http://willmychildevereat.blogspot.com/2010/09/tube-wean-begins.html

Will my child ever eat? Help and support for parents and carers of children with feeding problems. The aim of this blog is to provide a meeting place for parents who have children with feeding problems. We also hope to provide support and offer our own personal experiences. Please join our facebook group, follow the blog, comment, use the questions/answer section at the bottom of the blog, or if you prefer, send us an email and share your stories with us. Tuesday, 28 September 2010. Monitoring her weight...

willmychildevereat.blogspot.com willmychildevereat.blogspot.com

Will my child ever eat?: July 2010

http://willmychildevereat.blogspot.com/2010_07_01_archive.html

Will my child ever eat? Help and support for parents and carers of children with feeding problems. The aim of this blog is to provide a meeting place for parents who have children with feeding problems. We also hope to provide support and offer our own personal experiences. Please join our facebook group, follow the blog, comment, use the questions/answer section at the bottom of the blog, or if you prefer, send us an email and share your stories with us. Friday, 30 July 2010. I know this isn't going to ...

caloriesandcreon.blogspot.com caloriesandcreon.blogspot.com

Calories and Creon: June 2012

http://caloriesandcreon.blogspot.com/2012_06_01_archive.html

Monday, 4 June 2012. Cheese and cauliflower souffles. Cheese and cauliflower souffles. 200g cauliflower (trimmed weight), cut into small florets. 150ml semi skimmed milk. 25g butter, plus extra for greasing. 1 level tsp Dijon mustard. 100g mature Cheddar cheese, grated. 2 large eggs, seperated. Preheat the oven to 200C/180C Fan/Gas 6. Grease 4 ramekins with butter and line the bases with discs of baking paper. Line a baking tray with baking paper. Run a knife round the edge of the souffles, turn them...

kevinsmonkeyfamily.blogspot.com kevinsmonkeyfamily.blogspot.com

Kevin The Monkey: June 2011

http://kevinsmonkeyfamily.blogspot.com/2011_06_01_archive.html

Rugeley, Staffs, United Kingdom. I'm Kevin, yep, that's a photo of me, handsome aren't I? Came all the way across the sea in a big ship with my wife Monica to find a better life in the UK. I was a little sea sick but you should have seen Monica but that's another story. View my complete profile. Monday, 13 June 2011. Super - High Flying Humanoid. Wow what a humanoid! Well if you click on this link Skydive. You can see a video of him. If you click on this link Sophie's Story. Subscribe to: Posts (Atom).

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lungsbehavingbadly.blogspot.com lungsbehavingbadly.blogspot.com

Lungs Behaving Badly.

Enjoying life with our daughter Sophie who has Cystic Fibrosis and was also born with a Tracheo-Oesophageal Fistula and Oesophageal Atresia. Monday, 1 June 2015. A little while ago I mentioned that Sophie had started ice skating lessons and was doing rather well. She was picked up by a coach who wanted to coach her privately and as Sophie loves skating we allowed this to happen. The hope is that the scoring criteria can be used to allow Ice skating to be included in the Paralympics! And I'm incredibly pr...

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