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Lupus Really Sucks!

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Lupus Really Sucks! | lupusreallysucks.wordpress.com Reviews

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lupusreallysucks | Lupus Really Sucks!

https://lupusreallysucks.wordpress.com/author/tziporah

Post 25: It’s a Family Affair. Right now my daughter is insisting on more tests. She’s in denial. I don’t blame her. Who would WANT a lupus diagnosis? On the other hand, when my diagnosis finally came, I had been sick for 4 years and finally having a diagnosis was a relief, albeit a bitter one. Her younger brother and sister ( in their early 30’s) were immediately terrified. There were tears. What if they too end up with lupus? September 23, 2016. Post 24: Ain’t Dead Yet. I see my last post was 6 months ...

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Post 17: The Flu…..Really? | Lupus Really Sucks!

https://lupusreallysucks.wordpress.com/2015/02/18/post-17-the-flu-really

Post 17: The Flu….Really? It’s often said the one advantage to having lupus is your immune system will kill anything else that comes near you. Except, apparently, the flu. I am just getting over the flu. It was horrid to say the least. I have no idea what my immune system was busy doing but it was NOT busy attacking the flu virus. It was preoccupied with killing my hips for some reason. So while plastered to my wet sweaty bed I was in additional agony with severe hip pain. Then I woke up. Create a free w...

3

Post 9: Jekyll and Hyde | Lupus Really Sucks!

https://lupusreallysucks.wordpress.com/2014/04/30/post-9-jekyll-and-hyde

Post 9: Jekyll and Hyde. I don’t know about everyone else, but who I am when I’m in remission and who I am when I’m sick is like night and day. But when I’m sick, I am…well….pretty much the opposite. I recently thought I should be careful about making major life decisions when I’m sick. I’m sure the brain fog, depression, fatigue, pain and, worst of all, the loss of self colors my ability to make good decisions….when I feel even capable of making a decision. Or you used to be (fill in the blank) . Tr...

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Lupus Really Sucks! | Page 2

https://lupusreallysucks.wordpress.com/page/2

Post 15: Decisions, Decisions……More Decisions. With lupus I feel like I’m in that position a lot. Is this bad enough to warrant a trip to the emergency room or can it wait until my next doctor appointment? Is this pain just typical inflammation or is it something more? If I just give it a few days will my immune system just move on to something else or is serious damage being done that requires immediate attention? In fact, I find myself coming to that same conclusion more often than not these days.

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Post 13: So Far, So Good | Lupus Really Sucks!

https://lupusreallysucks.wordpress.com/2014/05/08/post-13-so-far-so-good

Post 13: So Far, So Good. Just got home from the first doctor visit….the internist. I liked her. It’s good to have a positive doctor experience for a change. Her response to all my years of medical crap was, How could anyone NOT think you have lupus! And she had no problem writing that as the diagnosis. She even commented, I bet no one ever wrote that as a diagnosis did they. Said you had to see a rheumatologist? DIAGNOSIS: Shortness of breath. But, the internist made a referral to both a nephrologist.

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lupusexperience.wordpress.com lupusexperience.wordpress.com

mkingr | My Experience with Lupus

https://lupusexperience.wordpress.com/author/mkingr

My Experience with Lupus. The Havoc that Lupus SLE can Wreak. Gallery 3.8.14. I Tell You What. First of all, I’m hoping that 2016. I saw the Ophthalmologist on December 30th. She said my Macula looked fine and she saw no signs of Macular Degeneration. I asked her how is it that someone thinks they see something and then there is nothing there? The best way for me to ask, “Wtf? 8221; I thought. How could I have dropped the ball? 8221; I was a little angry and wondering, if people live without Plaquenil wh...

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Post 18: Feeling Overwhelmed and Need Feedback. I ended up in the emergency again a couple of weeks ago, primarily because my legs didn’t want to work right. They kept me there all day and ran a zillion tests including 2 MRIs and 2 different sets of blood tests (among other things). Here is the list of things they diagnosed me with:. Final: OTHER MALAISE AND FATIGUE. Final: SYSTEMIC LUPUS ERYTHEMATOSUS. Final: PAIN IN JOINT INVOLVING PELVIC REGION AND THIGH. Final: Chronic kidney disease, unspecified.

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