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The Adventures of Macsen the Grayt

The Adventures of Macsen the Grayt. A Chronicle of Our Experience with HLHS. Friday, August 14, 2015. Friday, August 7, 2015. The pastor at our church recommended we look into a organization called Pilots for Christ. They are a wonderful organization that helps families get to their treatment centers. They have arranged and paid for our plane tickets to Philadelphia! Fbid=805878302865753&set=a.110899489030308.13374.100003307727875&type=1. We have our surgery date! Thursday, July 23, 2015.

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The Adventures of Macsen the Grayt | macsenthegrayt.blogspot.com Reviews
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The Adventures of Macsen the Grayt. A Chronicle of Our Experience with HLHS. Friday, August 14, 2015. Friday, August 7, 2015. The pastor at our church recommended we look into a organization called Pilots for Christ. They are a wonderful organization that helps families get to their treatment centers. They have arranged and paid for our plane tickets to Philadelphia! Fbid=805878302865753&set=a.110899489030308.13374.100003307727875&type=1. We have our surgery date! Thursday, July 23, 2015.
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The Adventures of Macsen the Grayt | macsenthegrayt.blogspot.com Reviews

https://macsenthegrayt.blogspot.com

The Adventures of Macsen the Grayt. A Chronicle of Our Experience with HLHS. Friday, August 14, 2015. Friday, August 7, 2015. The pastor at our church recommended we look into a organization called Pilots for Christ. They are a wonderful organization that helps families get to their treatment centers. They have arranged and paid for our plane tickets to Philadelphia! Fbid=805878302865753&set=a.110899489030308.13374.100003307727875&type=1. We have our surgery date! Thursday, July 23, 2015.

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May 2015 | The Adventures of Macsen the Grayt

http://macsenthegrayt.blogspot.com/2015_05_01_archive.html

The Adventures of Macsen the Grayt. A Chronicle of Our Experience with HLHS. Made it to MD. Sunday, May 31, 2015. Nice to be greeted by several generations in Maryland where we will leave the girls for several days of spoiling by their Grandmother, Great Grandmother, and Great Aunt and Uncle. They're going to have a ball. Another Stop on Skyline Drive during a short cloud burst. Dancing in the rain. Macsen wanted to run on this rock wall, back and forth. Started the trail in the backpack. On our way - but.

2

August 2015 | The Adventures of Macsen the Grayt

http://macsenthegrayt.blogspot.com/2015_08_01_archive.html

The Adventures of Macsen the Grayt. A Chronicle of Our Experience with HLHS. Monday, August 31, 2015. Macsen's appointment went well today - chest X-ray was "beautiful," his breathing looks good, he's drinking milk again, his chest tube suture was removed and his O2 saturation was 90! We get to lower his dose of his 2 diuretics and when we asked when we need to come up next his cardiologist said the most beautiful words "not for 3 more years (if he continues to do well)! Discharged from the hospital!

3

Nana has arrived | The Adventures of Macsen the Grayt

http://macsenthegrayt.blogspot.com/2015/08/nana-has-arrived.html

The Adventures of Macsen the Grayt. A Chronicle of Our Experience with HLHS. Friday, August 14, 2015. Subscribe to: Post Comments (Atom). We started it in May 2012 following our unborn son's HLHS diagnoses. He is currently 2 and waiting for his 3rd open heart surgery. This blog gives us a place to reach out to other families, to have an outlet to vent and share, and to document our journey with our baby we call Macsen the Grayt. Discharged from the hospital! Not getting out of here today. Day 5 post op.

4

January 2015 | The Adventures of Macsen the Grayt

http://macsenthegrayt.blogspot.com/2015_01_01_archive.html

The Adventures of Macsen the Grayt. A Chronicle of Our Experience with HLHS. Friday, January 30, 2015. After this weeks angst filled days - fretting about M's heart function I worriedly put on his pulse ox - something I haven't done in a while. Check out that 91! Incredible. That is awesome for Macsen and that heart rate is unbelievable - it never drops below 125 when he's awake. Giving thanks today for this gift of reassurance. Thursday, January 29, 2015. Macsen is blowing me away with his talking!

5

July 2015 | The Adventures of Macsen the Grayt

http://macsenthegrayt.blogspot.com/2015_07_01_archive.html

The Adventures of Macsen the Grayt. A Chronicle of Our Experience with HLHS. We have our surgery date! Thursday, July 23, 2015. Camping and cardiology appointment. Tuesday, July 14, 2015. Resting with Mr.Gopher Turtle. Aaron kept getting fairy cards. Macsen ate some hot dog pieces for his sister. Aaron did M's hair. I can do my own echo thank you. Macsen is a go. Monday, July 6, 2015. We have sent all Macsen's info to Boston Children's for a second opinion. Subscribe to: Posts (Atom). Macsen is a go.

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Caelen Gorman: October 2014

http://caelengorman.blogspot.com/2014_10_01_archive.html

My day to day life with an amazing little boy named Caelen who was born on August 17, 2009 with a congenital heart defect called HLHS - Hypoplastic Left Heart Syndrome. Sunday, October 19, 2014. But come on, has anyone ever seen Caelen get stage fright? But overall, it was an absolutely amazing experience, and I can't thank Brian, Tyler and their team enough for giving us that gift. Plus.they totally rocked it! How lucky is Caelen that his first concert was FGL? Mine was Paul Anka, thanks mom. Captain Ma...

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Caelen Gorman: November 2013

http://caelengorman.blogspot.com/2013_11_01_archive.html

My day to day life with an amazing little boy named Caelen who was born on August 17, 2009 with a congenital heart defect called HLHS - Hypoplastic Left Heart Syndrome. Thursday, November 28, 2013. Happy Thanksgiving and Happy Chanukah friends. We have so much to be thankful for this year. I'm grateful for our first Thanksgiving in Florida with family and friends. Caelen is adapting well and the weather is certainly helping his lungs. And sorry to our friends up north, but being able to wear flip...Caele...

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Caelen Gorman: December 2013

http://caelengorman.blogspot.com/2013_12_01_archive.html

My day to day life with an amazing little boy named Caelen who was born on August 17, 2009 with a congenital heart defect called HLHS - Hypoplastic Left Heart Syndrome. Tuesday, December 24, 2013. Merry Christmas Eve to all of our friends. We just had a wonderful family dinner with our friends the Cohens again, and it was more reflective this time for me. Merry Christmas to all, and to all of our prayer angels, we wish you a good night. And a Happy Anniversary in Heaven to Grandma Doris and Grandpa Joe.

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Caelen Gorman: Heart Walk tomorrow - please donate

http://caelengorman.blogspot.com/2014/09/heart-walk-tomorrow-please-donate.html

My day to day life with an amazing little boy named Caelen who was born on August 17, 2009 with a congenital heart defect called HLHS - Hypoplastic Left Heart Syndrome. Friday, September 26, 2014. Heart Walk tomorrow - please donate. Tomorrow we walk for the American Heart Association, Caelen and all of our heart warrior friends. We are $875 short of our goal, sooo close! I'm putting out a last minute request to try and reach our goal. Thank you all,. Subscribe to: Post Comments (Atom).

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Caelen Gorman: March 2015

http://caelengorman.blogspot.com/2015_03_01_archive.html

My day to day life with an amazing little boy named Caelen who was born on August 17, 2009 with a congenital heart defect called HLHS - Hypoplastic Left Heart Syndrome. Friday, March 27, 2015. I know I haven't updated since FL GA Line concert, but those of you on FB have watched Caelen's updates, so I'm only partly behind. Speaking of, if you haven't already seen, I created a FB page just for Caelen it's called Super Caelen, check it out:. Https:/ www.facebook.com/SuperCaelen. There are even more excitin...

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Caelen Gorman: May 2014

http://caelengorman.blogspot.com/2014_05_01_archive.html

My day to day life with an amazing little boy named Caelen who was born on August 17, 2009 with a congenital heart defect called HLHS - Hypoplastic Left Heart Syndrome. Thursday, May 29, 2014. I am really excited to share that Caelen and I have moved into our new house! Like, over the moon excited! Now, every single toy of his is now on display and out of boxes. Caelen gets his own room where he has a desk for school, his art on the walls, and his insane Disney Cars collection all in one place. So now it...

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Caelen Gorman: Celebrating 5 with a cover story

http://caelengorman.blogspot.com/2014/08/celebrating-5-with-cover-story.html

My day to day life with an amazing little boy named Caelen who was born on August 17, 2009 with a congenital heart defect called HLHS - Hypoplastic Left Heart Syndrome. Friday, August 22, 2014. Celebrating 5 with a cover story. There is so much good going on right now that I have to try and contain my excitement in this blog. I will try and minimize additional exclamation points, but it's going to be hard.cause I'm so excited! First off, Caelen is doing really well! Now, on the the good stuff! Twice as m...

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Caelen Gorman: 2014 Heart Walk

http://caelengorman.blogspot.com/2014/09/2014-heart-walk.html

My day to day life with an amazing little boy named Caelen who was born on August 17, 2009 with a congenital heart defect called HLHS - Hypoplastic Left Heart Syndrome. Thursday, September 18, 2014. Our goal is to raise $10,000 this year between Troy and Caelen, and we are so close! Out of all the teams walking, we are in the top 4 with only 9 days to go, thanks to all of the wonderful friends that have donated! Http:/ palmbeachheartwalk.kintera.org/faf/donorReg/donorPledge.asp? Love, Katye and Caelen.

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Caelen Gorman: March 2014

http://caelengorman.blogspot.com/2014_03_01_archive.html

My day to day life with an amazing little boy named Caelen who was born on August 17, 2009 with a congenital heart defect called HLHS - Hypoplastic Left Heart Syndrome. Friday, March 28, 2014. This one's for you Weston. I returned last night from Weston's memorial and celebration of life in Philly. It's hard to sum up all of the 24 hrs of my short trip, but if there is one word I could use, it would be Love. All of our lives will go on, and we should make the most that we can with the time we're given.

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The Adventures of Macsen the Grayt. A Chronicle of Our Experience with HLHS. Friday, August 14, 2015. Friday, August 7, 2015. The pastor at our church recommended we look into a organization called Pilots for Christ. They are a wonderful organization that helps families get to their treatment centers. They have arranged and paid for our plane tickets to Philadelphia! Fbid=805878302865753&set=a.110899489030308.13374.100003307727875&type=1. We have our surgery date! Thursday, July 23, 2015.

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