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Madilyn Our Hero

My name is Madilyn Newman, and I am 2 years old. I was just recently diagnosed with a rare disease called Mitochondrial Disorder. This is my story and my fight for life!

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Madilyn Our Hero | madilynourhero.blogspot.com Reviews
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My name is Madilyn Newman, and I am 2 years old. I was just recently diagnosed with a rare disease called Mitochondrial Disorder. This is my story and my fight for life!
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Madilyn Our Hero | madilynourhero.blogspot.com Reviews

https://madilynourhero.blogspot.com

My name is Madilyn Newman, and I am 2 years old. I was just recently diagnosed with a rare disease called Mitochondrial Disorder. This is my story and my fight for life!

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Madilyn Our Hero: The Diagnosis I wasn't Expecting:

http://madilynourhero.blogspot.com/2011/12/diagnosis-i-wasnt-expecting.html

My name is Madilyn Newman, and I am 2 years old. I was just recently diagnosed with a rare disease called Mitochondrial Disorder. This is my story and my fight for life! Click Link: What is Hypotonia? Click Link: National Institute of Neurological Disorders. Wednesday, December 14, 2011. The Diagnosis I wasn't Expecting:. Dear Family and Friends,. Where do I begin? What does this mean, what his her prognosis, what can we do to save her, is there a treatment? I am really scared what is to come, and I can'...

2

Madilyn Our Hero: Madilyn and Baby Jack

http://madilynourhero.blogspot.com/2011/09/madilyn-and-baby-jack.html

My name is Madilyn Newman, and I am 2 years old. I was just recently diagnosed with a rare disease called Mitochondrial Disorder. This is my story and my fight for life! Click Link: What is Hypotonia? Click Link: National Institute of Neurological Disorders. Thursday, September 8, 2011. Madilyn and Baby Jack. Madilyn Currently 24 months. Grandma Julie says this is a beautiful picture. September 10, 2011 at 1:16 PM. September 18, 2011 at 9:51 PM. Nice list of ideas to try. December 11, 2011 at 3:35 PM.

3

Madilyn Our Hero: August 2011

http://madilynourhero.blogspot.com/2011_08_01_archive.html

My name is Madilyn Newman, and I am 2 years old. I was just recently diagnosed with a rare disease called Mitochondrial Disorder. This is my story and my fight for life! Click Link: What is Hypotonia? Click Link: National Institute of Neurological Disorders. Friday, August 26, 2011. 10 Things I love about a Child with Disabilities. 1 Don't have to worry about their hands and knees getting dirty from crawling. 2 Don't have to worry about them putting things in their mouth they aren't suppose to. I really ...

4

Madilyn Our Hero: February 2011

http://madilynourhero.blogspot.com/2011_02_01_archive.html

My name is Madilyn Newman, and I am 2 years old. I was just recently diagnosed with a rare disease called Mitochondrial Disorder. This is my story and my fight for life! Click Link: What is Hypotonia? Click Link: National Institute of Neurological Disorders. Monday, February 28, 2011. As most of you may know, Madilyn had blood work done a couple weeks ago. Remember the miserable 5 viles of blood by IV, how can we forget? Madilyn Currently 24 months. Sunday, February 27, 2011. When you're going to have a ...

5

Madilyn Our Hero: A Big Week

http://madilynourhero.blogspot.com/2011/03/big-week.html

My name is Madilyn Newman, and I am 2 years old. I was just recently diagnosed with a rare disease called Mitochondrial Disorder. This is my story and my fight for life! Click Link: What is Hypotonia? Click Link: National Institute of Neurological Disorders. Sunday, March 13, 2011. The day is finally near, the blood work results from our Genetic/Metabolic doctor will be here on Tuesday. Madilyn Currently 24 months. Love ya, grandma and grandpa. March 14, 2011 at 1:58 AM. March 14, 2011 at 8:03 PM. You wi...

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The Gunnell Family: December 2009

http://bradandheidi.blogspot.com/2009_12_01_archive.html

Thursday, December 31, 2009. Holidays= Family, Family and more Family! We had our Wells Family Christmas Party the day after Christmas at my sister Kambria's house. It was complete chaos as it always is with all of us together, but we loved every minute of it. We played Christmas Carol pictionary. Girls against guys. the girls of coarse won! We played ping pong, ate lots of food, held new babies, watched football, ate some more food and opened presents. It was a great night. A new Big Screen TV! The stoc...

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The Gunnell Family: Reflections

http://bradandheidi.blogspot.com/2012/10/reflections.html

Thursday, October 25, 2012. Her Principal Mr. Giles. We have loved the changes he has brought to the school this year, and she thinks he is about the coolest principal ever! He plays funny songs on the speaker in the morning and when they reached their fundraising goal for the fun run he had to wear a tutu and roller skates all day (my kids still talk about how funny it was). Grandma and Grandpa Wells came to see her get her award. And Ashlyn is never one to shy away from attention! Random tips from Karen.

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The Gunnell Family: October 2010

http://bradandheidi.blogspot.com/2010_10_01_archive.html

Saturday, October 2, 2010. Check out all that hair! LOVE, LOVE, LOVE it! But it just had to be cut! The old man comb over was just not staying down no matter what we did to tame it! My cousin Tammy is the women with many talents. She cuts our hair and teaches Ashlyn piano. Look at all that hair. Yes, we saved some in a bag! Logan wondering what in the world we are doing to him. I wish we could know what they are thinking. Cutting it also made it look more red. I think we have a red head!

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The Gunnell Family: September 2010

http://bradandheidi.blogspot.com/2010_09_01_archive.html

Monday, September 27, 2010. Ashlyn is a big 6. I can't believe how fast she is growing up. She was up bright and early to see what birthday surprises we had in store for her. I didn't get a picure of the decorations, but I had streamers, balloons and Happy Birthday signs for her. She was thrilled. I LOVE making birthdays a big deal- after all that is the only holiday that you don't have to share! A new shirt from mom (mom's always get stuck giving the boring gifts)! She had a primary activity right after...

bradandheidi.blogspot.com bradandheidi.blogspot.com

The Gunnell Family: July 2010

http://bradandheidi.blogspot.com/2010_07_01_archive.html

Thursday, July 29, 2010. Watch out there's a train a commin'. I am so glad that mopping the floor is fun for some! Ashlyn and Tanner love playing "train" when I mop the kitchen floor. They have recently included Logan in their imaginary world. He was assigned to be the conductor. Every time he would fall asleep Tanner would be sure to wake him up and remind him he was the one driving the train. Tuesday, July 27, 2010. Growing like a weed! He weighs 11 lbs 8 oz- 50th percentile. He is our little fighter!

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Curly Girly Sue's: Sunless Tanning In The Summer!

http://curlygirlysues.blogspot.com/2011/06/sunless-tanning-in-summer.html

What Is This All About? The main gist of my blog is to test out beauty products, or an at home remedy for dry hair or acne or whatever else that deals with health, home or beauty, then write a review about it. Was it worth buying, or trying? Does it really work? So if my friends, family, or followers have any suggestions, or are wondering about a new product they want to try, ask me, and maybe I'll write my thoughts on it. Thursday, June 16, 2011. Sunless Tanning In The Summer! June 26, 2011 at 10:48 PM.

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Curly Girly Sue's: July 2011

http://curlygirlysues.blogspot.com/2011_07_01_archive.html

What Is This All About? The main gist of my blog is to test out beauty products, or an at home remedy for dry hair or acne or whatever else that deals with health, home or beauty, then write a review about it. Was it worth buying, or trying? Does it really work? So if my friends, family, or followers have any suggestions, or are wondering about a new product they want to try, ask me, and maybe I'll write my thoughts on it. Wednesday, July 20, 2011. The Many Uses of Yogurt. Monday, July 4, 2011. I just bo...

mygabbybaby.blogspot.com mygabbybaby.blogspot.com

My Gabby Baby: Wheel chair has arrived!

http://mygabbybaby.blogspot.com/2011/08/wheel-chair-has-arrived.html

Gabriel was born 10/12/09, 6lb 4oz baby boy. He is my 4th and last child, this is the story of my lil man. Saturday, August 27, 2011. Wheel chair has arrived! Gabriel getting casted for new AFO (leg braces). Only 2 of the employees were there that helped me the other day. They were so excited to see Gabriel and very impressed! This experience so made my day, week, month! There really are good people out there, don't waste time looking for them, they will find you! October 5, 2012 at 6:08 AM. Your babys w...

bradandheidi.blogspot.com bradandheidi.blogspot.com

The Gunnell Family: Carving Pumpkins

http://bradandheidi.blogspot.com/2012/10/carving-pumpkins.html

Sunday, October 21, 2012. One of the best parts of growing your own garden is the pumpkins! He insisted on carving his own pumpkin by HIMSELF. In his words, "No, Logan do.". Ashlyn looks ready to operate on the pumpkin! She hates the smell of the "guts" but wasn't about to wimp out and let mom and dad carve her pumpkin so she came up with her own solution. A medical mask. why not? Tanner wasn't going to let a little smell get to him. he dug right in and cleaned out his own pumpkin. Random tips from Karen.

bradandheidi.blogspot.com bradandheidi.blogspot.com

The Gunnell Family: January 2010

http://bradandheidi.blogspot.com/2010_01_01_archive.html

Saturday, January 30, 2010. January came. and January finally left! Yes, that is how I feel about January and will probably feel the same way about February! I want Spring to come! Here are a few pics of the kids from January. Tanner was mad at Brad and I one night after we put him to bed so Ashlyn went ahead and took care of things. She brought all of his puppies and blankets into her bed with her and let him sleep with her. The funny thing is they actually went right to bed and slept this way f...3 yea...

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Madilyn Our Hero

My name is Madilyn Newman, and I am 2 years old. I was just recently diagnosed with a rare disease called Mitochondrial Disorder. This is my story and my fight for life! Click Link: What is Hypotonia? Click Link: National Institute of Neurological Disorders. Wednesday, December 14, 2011. The Diagnosis I wasn't Expecting:. Dear Family and Friends,. Where do I begin? What does this mean, what his her prognosis, what can we do to save her, is there a treatment? I am really scared what is to come, and I can'...

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