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Madison-NEHIThis blog is created to share Madison's story and to hopefully promote awareness about children's interstitial lung disease.
http://madison-nehi.blogspot.com/
This blog is created to share Madison's story and to hopefully promote awareness about children's interstitial lung disease.
http://madison-nehi.blogspot.com/
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Madison-NEHI | madison-nehi.blogspot.com Reviews
https://madison-nehi.blogspot.com
This blog is created to share Madison's story and to hopefully promote awareness about children's interstitial lung disease.
madison-nehi.blogspot.com
Madison-NEHI: Madison's Journey
http://madison-nehi.blogspot.com/2008/07/february-2005.html
This blog is created to share Madison's story and to hopefully promote awareness about children's interstitial lung disease. Our Little Lady Was Born. In April, at 2 months, we continued to notice that Madison's breathing seemed rapid and a little labored. However, she seemed very healthy and happy and we. Were told not to worry. 6 months.rapid breathing. Then we took Madison to her 6 month well check, the pediatrician was concerned that Madison. 9 months.symptoms continue. While in the hospital, Madison...
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life with a rare lung diseased child: shopping with a lung disease...yuck
http://rarelungmom.blogspot.com/2008/07/shopping-with-lung-diseaseyuck.html
Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Tuesday, July 29, 2008. Shopping with a lung disease.yuck. By noon we were hungry. After lunch Julia just became so tired out. I felt bad because I had thought of bringing the oxygen but decided against it. She has been doing so well this summer and well it is a pain in the arse to haul around, even though we have one of the battery portable oxygen concentrators (Inogen One .it rocks! Babette and Robert Gierke.
life with a rare lung diseased child: August 2008
http://rarelungmom.blogspot.com/2008_08_01_archive.html
Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Wednesday, August 13, 2008. Well I think we set a record for how many days we can go without. Missing school. Only not the kind you would hope for. Julia made. It the first full day. BUT.apparently she fell back in her chair. And hit a desk that is behind her. She did not tell the teacher nor. Did she go to the nurse. Yet at around 5pm on Monday she keeps. All kinds of questions, did she fall? Did she get hit?
life with a rare lung diseased child: Hike for Lung Health 2008
http://rarelungmom.blogspot.com/2008/10/hike-for-lung-health-2008.html
Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Sunday, October 12, 2008. Hike for Lung Health 2008. Julia did an amazing job with the help from friends, family, and even people we have never even met. She was able to raise over $2,000. The Children's Interstitial Lung Disease Foundation came in 3rd place with over all funds raised. This is great news. We are so lucky to have people care about Julia the way they do. God Bless each of you. And so here we are.
life with a rare lung diseased child: NEHI: A Rare Diagnosis after Misdiagnosis
http://rarelungmom.blogspot.com/2008/10/nehi-rare-diagnosis-after-misdiagnosis.html
Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Sunday, October 12, 2008. NEHI: A Rare Diagnosis after Misdiagnosis. Below is a link to an article a friend of mine (whose son has the same lung disease as Julia) wrote. It is quite informative. Http:/ www.articles.complexchild.com/Oct2008/00078.html. Subscribe to: Post Comments (Atom). Help find a cure.let me breathe! Visit the chILD Foundation's website. View my complete profile. She's not contagious.really.
life with a rare lung diseased child: October 2008
http://rarelungmom.blogspot.com/2008_10_01_archive.html
Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Sunday, October 12, 2008. NEHI: A Rare Diagnosis after Misdiagnosis. Below is a link to an article a friend of mine (whose son has the same lung disease as Julia) wrote. It is quite informative. Http:/ www.articles.complexchild.com/Oct2008/00078.html. Julia is looking forward to Halloween. She still hasn't made up her mind on her costume. She is either going as Cinderella again or going as a Lion. Grant Hall fro...
life with a rare lung diseased child: Julia's health update
http://rarelungmom.blogspot.com/2008/10/julias-health-update.html
Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Sunday, October 12, 2008. At Julia's teacher's request we have added a mid-morning snack. She has been doing much better eating every 3 hrs or so. She has breakfast at 7am, then snack at 10am. Lunch is at 12 and after school snack is at 3:30. Dinner is at 6pm and night time snack is at 8:30pm. She is maintaining her weight(even gained a pound), and has grown in height. So that is all good. And so here we are.
life with a rare lung diseased child: my back hurts
http://rarelungmom.blogspot.com/2008/08/my-back-hurts.html
Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Wednesday, August 13, 2008. Well I think we set a record for how many days we can go without. Missing school. Only not the kind you would hope for. Julia made. It the first full day. BUT.apparently she fell back in her chair. And hit a desk that is behind her. She did not tell the teacher nor. Did she go to the nurse. Yet at around 5pm on Monday she keeps. All kinds of questions, did she fall? Did she get hit?
Kids with ILD: August 2008
http://kidswithild.blogspot.com/2008_08_01_archive.html
These are our children that have an Interstitial Lung Disease. A lot of us are part of the chILD Foundation. You can find the chILD Foundation at www.childfoundation.us Please read the story's and help spread the awareness. Want to see more? Hi there.If you feel that there is something that is really missing from this page, please e-mail me at: nina.melsdad@yahoo.com. Include what it is that you would like to add, then a link to the page. E-mail: nina.melsdad@yahoo.com. Thought's of a Mom". Http:/ www...
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Madison-NEHI
This blog is created to share Madison's story and to hopefully promote awareness about children's interstitial lung disease. Our Little Lady Was Born. In April, at 2 months, we continued to notice that Madison's breathing seemed rapid and a little labored. However, she seemed very healthy and happy and we. Were told not to worry. 6 months.rapid breathing. Then we took Madison to her 6 month well check, the pediatrician was concerned that Madison. 9 months.symptoms continue. While in the hospital, Madison...
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