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Mark v MND/ALS | Smile! You’re at the best WordPress.com site ever

Smile! You’re at the best WordPress.com site ever

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Mark v MND/ALS | Smile! You’re at the best WordPress.com site ever | mads04.wordpress.com Reviews

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Smile! You’re at the best WordPress.com site ever

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1

Rebel without a cure | Mark v MND/ALS

https://mads04.wordpress.com/2014/12/09/rebel-without-a-cure

You’re at the best WordPress.com site ever. December 9, 2014. Rebel without a cure. I thought, is this spaceman who tweeted me this link sittin in his/her office listening to Lucy in the sky with diamonds? In a psychedelic state of mind with flowers in their hair? You should be because I fuckin was and I’ve had MND for four years now and not once have I thought about pyramids and palm trees when it comes to this fuckin awful illness. It’s taken all the clever people till now to figure it out though!

2

8 days a week  | Mark v MND/ALS

https://mads04.wordpress.com/2015/03/29/8-days-a-week

You’re at the best WordPress.com site ever. March 29, 2015. 8 days a week. This is my first blog writing with my eyes! I’m gonna try’n let u into the world of living with MND. Imagine if you can you wake up on a Monday morning and you can’t move you’re right arm. You try and get out of bed a bit unbalanced and you’re arm just dragging by you’re side. There’s a few men reading this now thinking “Fuck that, how do I sort this morning glory out? I’ve always got the hump with MND! MND has taken away you&#821...

3

“You ain’t got nothin to lose” | Mark v MND/ALS

https://mads04.wordpress.com/2014/08/29/you-aint-got-nothin-to-lose

You’re at the best WordPress.com site ever. August 29, 2014. 8220;You ain’t got nothin to lose”. People run for charity every year and whatever charity you choose I salute you, if your healthy enough to do one you really are making a difference to that charity. The ice bucket challenge is a lot easier unless your a fuckin scruff and your terrified of water! I can’t even pat myself on the front never mind me fuckin back! 100 miles with MND/ALS. Thanks for all your support. Leave a Reply Cancel reply.

4

Mark v MND/ALS | Smile! You’re at the best WordPress.com site ever | Page 2

https://mads04.wordpress.com/page/2

You’re at the best WordPress.com site ever. October 19, 2015. Happy birthday Santino, I wish you never knew what MND was but you’re strength gives me strength. I love you more than you will ever know and thank you for being there for me. May you stay Forever Young X. Please keep supporting MND awareness, we are a vulnerable community who never asked for or chose to get MND. Sometimes Shit just happens! To be continued…. September 27, 2015. When the going gets tough. How do we define tough? These so calle...

5

Dealing with it… | Mark v MND/ALS

https://mads04.wordpress.com/2014/10/16/dealing-with-it

You’re at the best WordPress.com site ever. October 16, 2014. Dealing with it…. When your diagnosed with MND after going through every test possible to rule everything else out, you’re told to try and take it easy andget as much rest as you can. Yeh right! Anyone with young kids will tell you rest is a four letter word when your trying to raise a young family! Thanks for your constant support I really do appreciate it. Shit happens in life, it’s how we deal with it that defines us. To be continued….

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Resources | Ok, so far

https://pattysoksofar.com/resources

Ok, so far. Figuring out this ALS thing as I go. Below is a list of resources for those affected by amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease. In the UK it is called motor neurone disease (MND.). Last updated February 2 20. Information about Amyotrophic Lateral Sclerosis. National Institutes of Health ALS page. University of California San Diego ALS Center. ALS Association: What is ALS? Muscular Dystrophy Association ALS overview. Mayo Clinic ALS page. April’s ALS Blog.

blokewithalimp.org blokewithalimp.org

Ice Bucket debate with Bill Heine on Radio Oxford « Bloke with a limp

https://blokewithalimp.org/2014/09/03/ice-bucket-debate-with-bill-heine-on-radio-oxford

Bloke with a limp. Diary of an East Oxford dad with MND. Ice Bucket debate with Bill Heine on Radio Oxford. September 3, 2014. And to finish the week of radio interviews with Radio Oxford. There was a panel discussion on the Ice Bucket challenge, hosted by Bill Heine. Leader of Oxford County Council). Social commentator, futurist and broadcaster). Fiona Callister from WaterAid. It was a wide-ranging discussion and powerful in parts. Hope you find it interesting! This entry was tagged Bill Heine. One Man ...

blokewithalimp.org blokewithalimp.org

3 mins of your time? « Bloke with a limp

https://blokewithalimp.org/2013/03/17/3-mins-of-your-time

Bloke with a limp. Diary of an East Oxford dad with MND. 3 mins of your time? March 17, 2013. A quick post…. If you’ve got a spare 3 mins, what about signing the MND Charter here. It’s a simple 5-point charter to raise awareness of MND and help achieve quality of life, dignity and respect for those of us with the condition – and our families and carers:. 1 People with MND have the right to an early diagnosis and information. 2 People with MND have the right to access quality care and treatments. Fill in ...

blokewithalimp.org blokewithalimp.org

Thoughts… « Bloke with a limp

https://blokewithalimp.org/2014/08/05/thoughts

Bloke with a limp. Diary of an East Oxford dad with MND. August 5, 2014. 8216;Up and down, up and down. I will lead them up and down. I am feared in field in town. Goblin, lead them up and down’. Midsummer Night’s Dream, Act III, Scene ii. As Puck to the lovers in Midsummer Night’s Dream (Shakespeare’s ‘MND’? Motor Neurone Disease has proved a rollercoaster ride for this mere mortal. The process is subtle, gradual, inexorable:. Snip, you can’t keep up with your family in the street;. Snip, you can’...

blokewithalimp.org blokewithalimp.org

UPP film & interview on Radio Oxford « Bloke with a limp

https://blokewithalimp.org/2013/06/13/upp-film-interview-on-radio-oxford

Bloke with a limp. Diary of an East Oxford dad with MND. UPP film and interview on Radio Oxford. June 13, 2013. On Tue evening, we had a showing of Jason Becker: Not Dead Yet. What an extraordinary story and what an extraordinary person. I found it a powerful experience on many levels:. 8211; the story of the devastating impact of MND on an individual: including really quite sobering footage of a person’s very real decline. We had a great audience, who were clearly moved by the film. Https:/ blokewithali...

blokewithalimp.org blokewithalimp.org

Ice Buckets on Radio Oxford! « Bloke with a limp

https://blokewithalimp.org/2014/08/28/ice-buckets-on-radio-oxford

Bloke with a limp. Diary of an East Oxford dad with MND. Ice Buckets on Radio Oxford! August 28, 2014. This week I had a couple more interviews with Malcolm Boyden. Malcolm accepted the Ice Bucket Challenge and recorded it for playback on air! You can hear the first interview, when Malcolm did the Ice Bucket Challenge, here:. Https:/ blokewithalimp.files.wordpress.com/2014/08/radio-oxford-malcolm-boyden-ice-bucket-challenge.mp3. And, for any disbelievers amongst you, here he is on video. Enter your email...

blokewithalimp.org blokewithalimp.org

Emma is skydiving for MND! « Bloke with a limp

https://blokewithalimp.org/2013/05/12/emma-is-skydiving-for-mnd

Bloke with a limp. Diary of an East Oxford dad with MND. Emma is skydiving for MND! May 12, 2013. Next month, our lovely daughter, Emma, will turn 16, finish her GCSEs, go to a couple of large mudbaths (aka music festivals)…. 8230; AND jump out of an aeroplane to raise money for the MND Association. While there are hundreds (if not tens of thousands! Apparently, this is known as ‘fun’. Here’s a picture of what Emma will be doing at about 1:30pm on June 20:. By clicking on this Justgiving link. Fill in yo...

blokewithalimp.org blokewithalimp.org

June « 2013 « Bloke with a limp

https://blokewithalimp.org/2013/06

Bloke with a limp. Diary of an East Oxford dad with MND. Monthly Archives: June 2013. UPP film and interview on Radio Oxford. June 13, 2013. On Tue evening, we had a showing of Jason Becker: Not Dead Yet. What an extraordinary story and what an extraordinary person. I found it a powerful experience on many levels:. 8211; the story of the devastating impact of MND on an individual: including really quite sobering footage of a person’s very real decline. You can hear the interview here:. Https:/ blokewitha...

blokewithalimp.org blokewithalimp.org

One year on (how I am in Feb 2013) « Bloke with a limp

https://blokewithalimp.org/2013/02/23/one-year-on-how-i-am-in-feb-2013

Bloke with a limp. Diary of an East Oxford dad with MND. One year on (how I am in Feb 2013). February 23, 2013. Well, it’s more than a year since I was first diagnosed – and, yes, it would not be inappropriate to say “What a year…”. At some stage I’ll get round to talking about the early days: the onset of the disease, the long process of diagnosis, the ‘bombshell’ of the diagnosis itself, the few days and weeks after etc. Just now, I’ll talk about how I am now. I’m still walking – just. Best of all has ...

blokewithalimp.org blokewithalimp.org

August « 2013 « Bloke with a limp

https://blokewithalimp.org/2013/08

Bloke with a limp. Diary of an East Oxford dad with MND. Monthly Archives: August 2013. DIY SOS for family with MND on iPlayer – do watch. August 2, 2013. It’s been an extremely busy couple of months, with more to report than I have time just now. Will try to post some updates in the coming month. You can watch it here. Until next Thur (Aug 8) – please do. Ice Bucket debate with Bill Heine on Radio Oxford. Ice Buckets on Radio Oxford! An interview with Radio Oxford in June. Follow Blog via Email. Taking ...

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..::::Girls_Mads:::..

BRASIL, Mulher, de 12 a 15 anos, Senemba.8ª.Relevé.Festinhas.Bja. MSN - gabrieli dias@hotmail.com. Blog da Maria Clara. Dê uma nota para meu blog. A Ni e eu . hehehehe . sem nd pra posta . Ah as fotus da viajem ainda naum disponiveis. Tirando as q já estão aqui . Postado por: .: : GAß! FLORIPÁÁÁ . nossa mto boa essa viajem . Eu e a Nizinha fomo certeza . DIAS PERFEITOS. Ai tá algumas fotenhas . Postado por: .: : GAß! Fotinhu mto feia . mas a unica q eu tenhu de nois duas. Juntas rs* . bjocasss!

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Blog de mads01 - O0oblog de didouwnetteoO0 - Skyrock.com

Mot de passe :. J'ai oublié mon mot de passe. 9829; Comms: répondus. 9829; Amis: Acceptés, si vous laissez au moins 1 commentaire. 9829; Chiffres: Refusés. 9829; Favoris: mes coups de 3. 9829; Pubs: acceptées. 9829; Imag℮(s) : D℮viantArt. Mise à jour :. Abonne-toi à mon blog! Envie de faire un tour de manège,. De me rouler dans la neige,. D'inventer des chansons,. De regarder des dessins animés,. D'avoir le droit de dire des bêtises. Sans craindre le regard des gens. Marre de grandir,. De faire des choix,.

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Blog de mads013 - lє ๓๏ภ๔є єรt ครรєz Ŧ๏ย ς๏๓๓є çà... - Skyrock.com

Mot de passe :. J'ai oublié mon mot de passe. Lє ๓๏ภ๔є єรt ครรєz Ŧ๏ย ς๏๓๓є çà. 7894;σỖσỖσ. 7894;σỖσỖσỖσ. 7894;σỖσỖσỖσỖσỖ. 963;ỖσỖσ. Mise à jour :. Abonne-toi à mon blog! Ce blog n'a pas encore d'articles. Poster sur mon blog.

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Blog de mads02 - le-danois - Skyrock.com

Mot de passe :. J'ai oublié mon mot de passe. Ben moi Je m'appelle Mads (sa se prononce mess - -). Ben je suis 1 Vicking ki vient du Danmark ;p. J'ai 14 ans! Bientot 15 (dans longtemps mdr). Ben o file du temp je v vous présenté mes Amis XD. Et ma passion(Street ParkOur). Et plein dotres truks. N'Oublié pO de mEttre d cOm'S. Mise à jour :. Abonne-toi à mon blog! Ou poster avec :. Retape dans le champ ci-dessous la suite de chiffres et de lettres qui apparaissent dans le cadre ci-contre. Ou poster avec :.

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mads03 (mavin) - DeviantArt

Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')" class="mi". Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')". Join DeviantArt for FREE. Forgot Password or Username? Deviant for 6 Years. This deviant's full pageview. Last Visit: 194 weeks ago. This is the place where you can personalize your profile! My name...

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Mark v MND/ALS | Smile! You’re at the best WordPress.com site ever

You’re at the best WordPress.com site ever. June 1, 2015. Https:/ m.youtube.com/watch? Here’s a few videos upto now, please watch them and you will see how much fun they are to do. Ones a bit disturbing. I’m not sure if it’s Lily Savage or Lilo Lil from the BBC’s old comedy series “Bread” plus the fact that he/she has dedicated it to me makes it even weirder! I’ve set a just giving page up and you can txt MIME73 to 70070 or visit https:/ www.justgiving.com/MimeForMND1. To be continued…. PS I’m not ...

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Mads04Anime (mads) - DeviantArt

Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')" class="mi". Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')". Join DeviantArt for FREE. Forgot Password or Username? Deviant for 2 Years. This deviant's full pageview. Last Visit: 3 days ago. This is the place where you can personalize your profile! Nov 3, 2016.

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Blog de mads07 - la vie c'est pas le paradis - Skyrock.com

Mot de passe :. J'ai oublié mon mot de passe. La vie c'est pas le paradis. La vie nous donne toujours une nouvelle chanse mais il faut savoir le profiter parce que elle peut etre la dernier. Mise à jour :. Abonne-toi à mon blog! N'oublie pas que les propos injurieux, racistes, etc. sont interdits par les conditions générales d'utilisation de Skyrock et que tu peux être identifié par ton adresse internet (67.219.144.114) si quelqu'un porte plainte. Ou poster avec :. Posté le mardi 21 avril 2009 15:43.

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Les Infos de Marie Antoinette - Gestion de biens &amp; syndic - Marne - Epernay - Ay - Syndic de copropriété, Marie Antoinette vous propose de vous faire part de l'actualité en copropriété ou en gestion locative. No

Les informations de Marie Antoinette. Destinées aux propriétaires de biens immobiliers. Tel : 03 26 56 94 60. Mail : sos-syndic@orange.fr. Ce blog a pour but de répondre à certaines questions ou à présenter l'actualité immobiliere. Bonne nouvelle : plus d'attestation TVA pour des travaux en dessous de 300. A qui incombe le changement de la platine d'interphone? Un amendement à la loi Macron prolonge le délai d’installation des DAAF, mais pas celui pour leur achat. La formation est indispensable. Elle n'i...

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Blog de Mads12 - Vampire Diaries - Skyrock.com

Mot de passe :. J'ai oublié mon mot de passe. Il vas être très bien.[i. Mise à jour :. Abonne-toi à mon blog! Vampire Diaries - 1x13 - Elena/Stefan et Katerine/Damon Flashback(français). Ajouter cette vidéo à mon blog. Regarder vite la video et dite moi si vous reconnaisser les deux filles merci . L'auteur de ce blog n'accepte que les commentaires de ses amis. Tu n'es pas identifié. Clique ici pour poster un commentaire en étant identifié avec ton compte Skyrock. Posté le dimanche 29 décembre 2013 10:34.

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Blog de Mads16 - ***c'est ok*** - Skyrock.com

Mot de passe :. J'ai oublié mon mot de passe. C'est ok* *. Bienvenue sur mon blog! Une Australienne en France . Mise à jour :. Abonne-toi à mon blog! N'oublie pas que les propos injurieux, racistes, etc. sont interdits par les conditions générales d'utilisation de Skyrock et que tu peux être identifié par ton adresse internet (67.219.144.170) si quelqu'un porte plainte. Ou poster avec :. Retape dans le champ ci-dessous la suite de chiffres et de lettres qui apparaissent dans le cadre ci-contre. N'oublie ...