NPC in the Media. A Life with Niemann Pick C Welcome to Mael Oetterli’s Website. The intent of this website is to tell you about Mael’s disease and about his life with NPC. In the "Mael today". Section we describe a typical day for Mael and his brothers, with our experiences, worries, and crises. And anyone who wants to do something for Mael or others with Niemann-Pick C can find more information in the Donating and Helping.
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NPC in the Media. A Life with Niemann Pick C Welcome to Mael Oetterli’s Website. The intent of this website is to tell you about Mael’s disease and about his life with NPC. In the "Mael today". Section we describe a typical day for Mael and his brothers, with our experiences, worries, and crises. And anyone who wants to do something for Mael or others with Niemann-Pick C can find more information in the Donating and Helping.
maels-life.com
Solidarity Pin
http://www.maels-life.com/index.php/en/donate-help/solidarity-pin
NPC in the Media. Solidarity pin - a heart for children with rare diseases. Mael’s name is Celtic and means "Prince. When Mael was a baby we dressed him in a frog costume, and our little prince looked so adorable in it. Now that costume has taken on a very special meaning: it is the design for a solidarity pin. The pin should be worn as a symbol of solidarity for Mael and all children with rare diseases. A heart for children with rare diseases - that's the simple message of this pin.
Mael's Diagnosis
http://www.maels-life.com/index.php/en/mael-s-diagnosis
NPC in the Media. The Niemann Pick C diagnosis - A time of waiting and worrying. The suspected diagnosis of Niemann-Pick C: incurable and fatal. The time of worry and hope. The difficult search for mutations. Mael was genetically tested for types B and C at a laboratory in Germany. For a long time no mutations were found, and then, a few weeks before Lian’s birth, came the seemingly good news that they had found a type B mutation in Mael! The final, terribly painful diagnosis - all hope was lost.
Fund Raising Activities
http://www.maels-life.com/index.php/en/donate-help/fund-raising-activities
NPC in the Media. Here we list current or past fund-raising activities sponsored by the MAELS LEBEN foundation. Every bit of help counts! Do you have ideas for a fund-raising activity? We would love to hear from you! Run4Mael - Donations run for MAEL (4th/5th may 2013). Michel Wenger from Reinach BL runs the 12-hour run in Basel ( http:/ goo.gl/0wOcZ. For MAEL'S LIFE and wants to collect as many donations as possible. Information is available under www.facebook.com/run4mael.
Maels Leben - Ein Leben mit Niemann Pick C
http://www.maels-life.com/index.php/de
NPC in den Medien. Ein Leben mit Niemann Pick C Willkommen auf der Website von Mael Oetterli. Diese Website soll über Maels Krankheit und über sein Leben mit NPC informieren. In der Rubrik Mael heute. Berichten wir über den Alltag von Mael und seinen Geschwistern, über Erlebtes und über seine und unsere Sorgen und Nöte. Und wer etwas für Mael oder andere Betroffene mit Niemann Pick C tun will, der findet in der Rubrik Spenden und helfen. Der Verein MAELS LEBEN.
Mael's Life Foundation
http://www.maels-life.com/index.php/en/donate-help/mael-s-life-foundation
NPC in the Media. Donation to the MAELS LEBEN (Mael's Life) Foundation. We can do very little to fight Niemann Pick C disease. However, we can. Account information for donations to the MAELS LEBEN Foundation. IBAN: CH16 8116 8000 0038 8092 5. A bank wire transfer order is available here in pdf format. Direct help specifically for Mael. Donating to NPSuisse (Swiss Niemann Pick association). If you want to help in the fight against Niemann-Pick C disease, you can also become a member of our NPSuisse associ...
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Martes, 6 de octubre de 2009. MODULO 1. REFLEXIÓN. 191; De que manera pueden los proyectos contribuir a que mis alumnos logren los objetivos curriculares y desarrollen habilidades del siglo XXI? Habilidades del siglo XXI. Habilidades de aprendizaje e innovación. Pensamiento crítico y resolución de problemas. Habilidades de información, medios y tecnología. Alfabetización en ICT (Información, Comunicaciones y Tecnología). Habilidades para la vida personal y profesional. Lunes 5 de Octubre Primer Encuentro.
maelryyo's blog - MaelRyyo - Skyrock.com
Heyy C'est Un Blog Normal (Je Ne Raconterai Pa Tte ma vie ) mdrr. 14/10/2010 at 9:59 AM. 27/10/2010 at 3:52 AM. Subscribe to my blog! Parrapport o bloogg bien sur. Alors Aller lacher les comms. Don't forget that insults, racism, etc. are forbidden by Skyrock's 'General Terms of Use' and that you can be identified by your IP address (66.160.134.2) if someone makes a complaint. Please enter the sequence of characters in the field below. Posted on Wednesday, 27 October 2010 at 3:52 AM. Ah Ah mais kii? Don't...
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64 [X] 63[X] 62[X] 61[X] 60[X] 59 58 57 56 55 54 [] 53 [] 52 [] 51 50 . Montag, 2. November 2015. Soo nach Ewigkeiten melde ich mich jetzt auch mal wieder :). Tut mir leid, dass ich jedes Mal verspreche mich wieder regelmäßiger zu melden und es im Endeffekt dann doch nicht tue. Ich hab das dritte Semester meines Studiums ein wenig unterschätzt, was den Stress betrifft. Es ist einiges zu tun. Die Bachelorarbeit beginnen, 2 Interviews, eine Seminararbeit, eine 1000 Worte Aufgabe, Präsentationen etc.
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NPC in the Media. A Life with Niemann Pick C Welcome to Mael Oetterli’s Website. The intent of this website is to tell you about Mael’s disease and about his life with NPC. In the "Mael today". Section we describe a typical day for Mael and his brothers, with our experiences, worries, and crises. And anyone who wants to do something for Mael or others with Niemann-Pick C can find more information in the Donating and Helping.
Blog Music de MAELS-MUZiK - MàélS - Skyrock.com
Mot de passe :. J'ai oublié mon mot de passe. M and Zéér Muzzik. Trick'pa'Zéér Bad Og Zér. Mise à jour :. Abonne-toi à mon blog! Numéro de la piste. Ajouter à mon blog. Ajouter à mon blog. Tu n'as pas la bonne version de Flash pour utiliser le player Skyrock Music. Clique ici pour installer Flash. Ou poster avec :. Retape dans le champ ci-dessous la suite de chiffres et de lettres qui apparaissent dans le cadre ci-contre. Posté le dimanche 13 décembre 2009 11:26. Modifié le vendredi 19 mars 2010 17:06.
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