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Motor Neuron Diseases

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A classic by Berlin. One Day at a Time. Hi, I'm Mark and I'd like to welcome you to my. Fighting Progressive Bulbar Palsy A type of Lou Gehrig's Disease. The Rambling Man of ALS. Was diagnosed in 2004, and continues to be challenged by ALS. "In my life I have had my share of dark days, but none darker than Jan., 2004, the day that three letters changed my life.". Patrick the incurable optimist. John Saunders - My. And he is trying to raise money to help other people get better. Archive Fresh hope for.

livingwithalsbytomswift.blogspot.com

Living with ALS by Tom Swift: A Few Words In Closing

http://livingwithalsbytomswift.blogspot.com/2013/01/a-few-words-in-closing.html

Living with ALS by Tom Swift. A Few Words In Closing. This is my last article for the St. James Epistle. I developed pneumonia in early January and I did not recover fully. By the time you read this, I may be dead. I realize that is blunt, but I want to be clear. Here are a few thoughts before I go. Why didn't God heal me? I am not afraid of dying and death. I am not afraid of dying because I am in hospice care. The caring and professional staff will make sure I die in comfort and dignity. I ...I feel sa...

livingwithalsbytomswift.blogspot.com

Living with ALS by Tom Swift: I Love St. James Episcopal Church

http://livingwithalsbytomswift.blogspot.com/2012/08/i-love-st-james-episcopal-church.html

Living with ALS by Tom Swift. I Love St. James Episcopal Church. The following article was first published in the St. James Episcopal Church newsletter,. And is used here by permission.). I invited a friend to church recently. It wasn't hard. You should try it sometime. She came to worship with me. I was able to look at our church anew through her eyes. This is what I saw:. The Service of the Eucharist: We heard the great story of God's creation of the universe and ourselves, our falling away from God, a...

livingwithalsbytomswift.blogspot.com

Living with ALS by Tom Swift: A Life or Death Decision

http://livingwithalsbytomswift.blogspot.com/2012/10/a-life-or-death-decision.html

Living with ALS by Tom Swift. A Life or Death Decision. The result of my breathing test at my August ALS Clinic visit was poor. It was so poor that the time has come for me to decide if I will extend my life by getting a tracheotomy or refuse the tracheotomy and die within the next year. I knew this day would come, but when it did, I felt like I had been hit in the stomach. What is my quality of life and what will it be on a ventilator? How much am I willing to endure to live longer? What is best for me?

livingwithalsbytomswift.blogspot.com

Living with ALS by Tom Swift: Families with ALS value every second of life

http://livingwithalsbytomswift.blogspot.com/2012/09/families-with-als-value-every-second-of.html

Living with ALS by Tom Swift. Families with ALS value every second of life. I was diagnosed with ALS (Lou Gehrig's disease) in February 2007. The disease has robbed me of my ability to walk, talk, eat, hug, and take care of myself. I live in a nursing home and spend all day in a power wheelchair. 65279;. Michelle Farr, her husband, and their boys. 65279; . Michelle has asked me to ask you to contribute to two organizations which work to find a cure for ALS: The Robert Packard Center at.

livingwithalsbytomswift.blogspot.com

Living with ALS by Tom Swift: Is Lou Gehrig's Disease a Joke?

http://livingwithalsbytomswift.blogspot.com/2012/08/is-lou-gehrigs-disease-joke.html

Living with ALS by Tom Swift. Is Lou Gehrig's Disease a Joke? This article was first published in the. Citizen-Times newspaper and is used here by permission.). Movie scriptwriter Seth McFarlane thinks it is. Actor Mark Wahlberg thinks it is, too. I am referring to a joke in the recently released movie, Ted. Maybe I should let it go. It is only a movie. Other movies are now box office leaders. There is some consolation that the words "Lou Gehrig's disease" are known well enough to be included...Lou Gehri...

livingwithalsbytomswift.blogspot.com

Living with ALS by Tom Swift: January 2012

http://livingwithalsbytomswift.blogspot.com/2012_01_01_archive.html

Living with ALS by Tom Swift. I Have Decided to Live, or Die Trying. The following article first appeared in the Asheville (NC) Citizen-Times newspaper.). First, there are exciting developments in ALS research and treatment. For the first time in many years, there will be new drugs available to fight ALS. Four drugs that have shown promise in delaying the progression of the disease are in clinical trials. Stem cell research is proceeding well at. Third, I have a Swedish mother and an. Sweetheart who are ...

livingwithalsbytomswift.blogspot.com

Living with ALS by Tom Swift: The Great Dance

http://livingwithalsbytomswift.blogspot.com/2012/11/the-great-dance.html

Living with ALS by Tom Swift. I woke up and did not know where I was. It was cold. It was dark. I was curled up on a forest floor. I shivered a little. I got up, brushed the dirt and leaves off my clothes, and looked around. I saw a light a long way off through the trees and headed in that direction. I stopped as if struck by lightning. I could walk! I could lift my arms and work my fingers! I said, "Hello," tentatively and shouted, "I can talk! My daughter, Emma, and friends in Haiti. Citizen-Times news...

livingwithalsbytomswift.blogspot.com

Living with ALS by Tom Swift: March 2012

http://livingwithalsbytomswift.blogspot.com/2012_03_01_archive.html

Living with ALS by Tom Swift. I Have ALS but ALS does not Have Me. The following article first appeared in the Asheville (NC) Citizen-Times newspaper on 4 March 2012.). Amyotrophic Lateral Sclerosis (ALS) attacks the nerves that lead to voluntary muscles. When the nerves die, the muscles they control wither away to uselessness. The illness ended the career of Lou Gehrig, the great New York Yankees' first baseman. It is also known as Lou Gehrig's disease in the United States and Canada. With friends at St...

livingwithalsbytomswift.blogspot.com

Living with ALS by Tom Swift: December 2012

http://livingwithalsbytomswift.blogspot.com/2012_12_01_archive.html

Living with ALS by Tom Swift. A black-and-white photograph that is dear to me hangs on the wall of my room. It is a picture of the Cill Einne cemetery on one of the Aran Islands off the west coast of. I bought it from a street vendor during a festival about twelve years ago. The grave markers are topped by crosses and some of them are Celtic crosses. When Saint Enda arrived, he found what is called a "sun cross" symbol consisting of a circle surrounding a cross. It was used by the people of the i...Chris...