birthdefects.org
Birth Defect Support Groups (A-F)
http://www.birthdefects.org/parent-services/support-groups
Birth Defect Research for Children. Because Every Birth Defect has a Cause. National Birth Defect Registry. Video & FAQ. Participate in the Registry. How the Registry was Developed. Research: Autistic Spectrum Disorders. Research: Alaska Community Action on Toxics. Research: Joplin, Mo. Research: Dickson, Tennessee. Research: Gulf War Birth Defects. Birth Defect Fact Sheets. National Birth Defect Registry Reports. Birth Defects vs. Birth Injuries. Zofran Birth Defect Lawsuits. Birth Defects and Litigation.
jptykes.wordpress.com
Pregnancy issues. « Chloe’s World
https://jptykes.wordpress.com/2008/02/27/pregnancy-issues
A Blog about a wonderful little girl. Suspected – Now ruled out. Benign Paroxysmal Torticollis – Does my child have it? The Breast Cancer Site. Laquo; Oilatum (Junior). Posted by Calke on 27 February, 2008. We started trying to conceive back in November of 2005 but our attempts were beset with problems. After four miscarriages, October 2006 finally brought a pregnancy that would last the course – though not without issues of its own. Foetal growth restriction;. Renal (kidney) problems;. In itself this ne...
jptykes.wordpress.com
Paraldehyde. « Chloe’s World
https://jptykes.wordpress.com/2008/02/19/paraldehyde
A Blog about a wonderful little girl. Suspected – Now ruled out. Benign Paroxysmal Torticollis – Does my child have it? The Breast Cancer Site. Laquo; Infantile spasms (West syndrome). Posted by Calke on 19 February, 2008. Is an anti-epileptic medicine belonging to a group of medicines called barbiturates. Paraldehyde is thought to act mainly by preventing chemicals from passing through openings on the nerve cells. In addition, paraldehyde acts to increase the effects of GABA and decrease the effect ...
sgmackie2304.wordpress.com
Fundraising | Georgia's Ride Through Life
https://sgmackie2304.wordpress.com/donations
Georgia's Ride Through Life. Background Info & Diagnosis. Currently we are fundraising for the following equipment for Georgia. Apple I-Pad for home and school based activities. Approx $1000.00. V6 Approx $800.00. Arm and Leg Wraps (for sensory based input and stability) $150.00. Dynamic Second Skin Support Suit $1,900.00. Attendance at Spectronics Conference in Brisbane, Qld (Flights, Accommodation and Conference, 4-5 days approx $2,500). FUNDRAISING EVENTS FOR 2012. Earth Food and Wine Cafe, Moama.
sgmackie2304.wordpress.com
CPEC Family Fun Day | Georgia's Ride Through Life
https://sgmackie2304.wordpress.com/2012/03/18/cpec-family-fun-day
Georgia's Ride Through Life. Background Info & Diagnosis. CPEC Family Fun Day. March 18, 2012. Today we enjoyed another lovely family fun day at CPEC. It’s always a great opportunity to meet other families from CPEC who we haven’t met through our time there, particularly because most of the families who attended today were early intervention families. There were baby farm animals, an Easter egg hunt, craft and painting activites plus a face painting fairy! Posted in: Cerebral Palsy. CPEC Family Fun Day.
i-count.org
Links | I Count
http://www.i-count.org/links
Welcome to I Count. A site dedicated to information for children with disabilities and adults with learning disabilities and their families. Website for Croydon Council Services. Website for Lambeth Social Services. Aims to enable practitioners to make informed referrals and provide more rounded, comprehensive support. It also aims to help children, young people and their families and carers access services in order to improve the outcomes for children and families. Website for Sutton Learning for Life.
rdstaging.geneticalliance.uk
Information and support
http://rdstaging.geneticalliance.uk/information-and-support
What is a rare disease? Patients tell us that one of the hardest things about having a rare condition is that often their doctor may not have much information about the condition. Many patients want information about how the condition will affect them in the future, what treatments are available and information and support on how best to live with and manage their symptoms. This can be hard to find when there are so few people diagnosed with a condition. How can I find out more about a condition? When tr...
cafamily.org.uk
Northern Ireland | Contact a Family
http://www.cafamily.org.uk/advice-and-support/in-your-area/offices/northern-ireland
Call our free helpline 0808 808 3555. Call our free helpline 0808 808 3555. Child and family wellbeing. Education, health and social care. Money, benefits, childcare and work. Go back a step. Contact a Family provides support, advice and information for families with disabled children, no matter what their condition or disability. What do we do? Groups provide parents of disabled children with essential practical and emotional support. Find more local and national groups. For more online support. Contact...
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