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Gifts

Friday, April 18, 2014. The blog is back! I was searching Facebook the other day for a post in which I mentioned Tomas' aortic dilation value (to compare it to his current value), but was frustrated by my inability to search through posts. So here I am, back at the place that stores all things Tomas in an easy-to-use format. Wednesday, November 28, 2012. Short(ish) Update - Brain dump #2. 1 Chronic Neutropenia (not otherwise specified)- check. 2 Chronic Anemia (not otherwise specified)- check. There is a...

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Gifts | mandd3.blogspot.com Reviews
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Friday, April 18, 2014. The blog is back! I was searching Facebook the other day for a post in which I mentioned Tomas' aortic dilation value (to compare it to his current value), but was frustrated by my inability to search through posts. So here I am, back at the place that stores all things Tomas in an easy-to-use format. Wednesday, November 28, 2012. Short(ish) Update - Brain dump #2. 1 Chronic Neutropenia (not otherwise specified)- check. 2 Chronic Anemia (not otherwise specified)- check. There is a...
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Gifts | mandd3.blogspot.com Reviews

https://mandd3.blogspot.com

Friday, April 18, 2014. The blog is back! I was searching Facebook the other day for a post in which I mentioned Tomas' aortic dilation value (to compare it to his current value), but was frustrated by my inability to search through posts. So here I am, back at the place that stores all things Tomas in an easy-to-use format. Wednesday, November 28, 2012. Short(ish) Update - Brain dump #2. 1 Chronic Neutropenia (not otherwise specified)- check. 2 Chronic Anemia (not otherwise specified)- check. There is a...

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Gifts: Back to the basics: The big players; part 3 - The GI tract (a.k.a. the root of all evil)

http://mandd3.blogspot.com/2012/07/back-to-basics-big-players-part-3-gi.html

Tuesday, July 31, 2012. Back to the basics: The big players; part 3 - The GI tract (a.k.a. the root of all evil). I don't even know if I have enough energy for this post - or brain cells. During my pregnancy the maternal fetal doctor found a birth defect that made the Down syndrome diagnosis insignificant; Tomas stomach and intestines had never fully fused together and he would need urgent surgery shortly after birth. He had part of his stomach herniate up into his chest cavity and push on his heart, par...

2

Gifts: Down Syndrome Awareness month wrap up 2012

http://mandd3.blogspot.com/2012/11/down-syndrome-awareness-month-wrap-up.html

Thursday, November 8, 2012. Down Syndrome Awareness month wrap up 2012. You want to know what real feminism is? November 12, 2012 at 12:41 AM. Subscribe to: Post Comments (Atom). The real choice in accepting or rejecting a child with special needs is never between some imaginary perfection or imperfection. The. Charles J. Chaput - Archbishop of Denver. The Tales of Two Thirty-Somethings, Two Kids, Two Dogs, and a Fish. She is Our Angel. A Letter to my kids on Mother's Day. Let Your Troubles Roll By.

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Gifts: April 2011

http://mandd3.blogspot.com/2011_04_01_archive.html

Friday, April 15, 2011. We had Tomas' appt. with the new GI and it was a good one. He is a man who likes the puzzle kids, and he and Tomas' oncologist share a few of the more challenging kids at the hospital, so I really think it will be a good team for him. It sounds so simple doesn't it? Truely, who do you listen to? In this case it was easy, since it was do nothing and hope it gets better or let's do a CT and see what we can see. But it is not always that clear cut a choice. Tuesday, April 5, 2011.

4

Gifts: Boston Recap

http://mandd3.blogspot.com/2012/11/boston-recap.html

Sunday, November 11, 2012. Tomas was seen by two specialists at Boston Children's Hospital last week - one for GI/motility and the other for hematology. First up was hematology. The entire visit led off with the question, "How is he doing? At least I'm not bitter, lol. Into bed to sleep for 8 straight hours. Bliss! The coming week should be very informative - so stay tuned! Oh and some pics from before we left - he uses his tushy to clean the white board. November 11, 2012 at 9:38 PM. She is Our Angel.

5

Gifts: PART 2: A brief interruption on Tomas' biology; in which I make the resident doctor wake the attending at 11:00pm

http://mandd3.blogspot.com/2012/07/part-2-brief-interruption-on-tomas.html

Friday, July 27, 2012. PART 2: A brief interruption on Tomas' biology; in which I make the resident doctor wake the attending at 11:00pm. Shortly after the resident left (and she did not come back) the night nurse walked in. I told her about the lab values and she said that made know sense; what she was told at shift change was they were waiting on an improvement in results before he could go home. That's what I took away from the morning rounds as well, so nice to know I am not yet certifiable. I told a...

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My Journey Into Holland: February 2012

http://myjourneyintoholland.blogspot.com/2012_02_01_archive.html

My Journey Into Holland. This is about my journey into "Holland" and my experiences with my daughter, Elizabeth. Elizabeth has multiple disabilties - Dandy Walker Malformation, hepatic fibrosis, vison impairment, seizures, aspiration/swallowing issues, low tone and developmental delay - but she doesn't let that slow her down! We have had a pretty crazy journey, but it's been a learning experience and an absolutely wonderful ride. Thursday, February 23, 2012. Thank yous and updates on Elizabeth. Fluid has...

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My Journey Into Holland: Thank yous and updates on Elizabeth

http://myjourneyintoholland.blogspot.com/2012/02/thank-yous-and-updates-on-elizabeth.html

My Journey Into Holland. This is about my journey into "Holland" and my experiences with my daughter, Elizabeth. Elizabeth has multiple disabilties - Dandy Walker Malformation, hepatic fibrosis, vison impairment, seizures, aspiration/swallowing issues, low tone and developmental delay - but she doesn't let that slow her down! We have had a pretty crazy journey, but it's been a learning experience and an absolutely wonderful ride. Thursday, February 23, 2012. Thank yous and updates on Elizabeth.

myjourneyintoholland.blogspot.com myjourneyintoholland.blogspot.com

My Journey Into Holland: February 2011

http://myjourneyintoholland.blogspot.com/2011_02_01_archive.html

My Journey Into Holland. This is about my journey into "Holland" and my experiences with my daughter, Elizabeth. Elizabeth has multiple disabilties - Dandy Walker Malformation, hepatic fibrosis, vison impairment, seizures, aspiration/swallowing issues, low tone and developmental delay - but she doesn't let that slow her down! We have had a pretty crazy journey, but it's been a learning experience and an absolutely wonderful ride. Wednesday, February 16, 2011. Monday, February 7, 2011. Much like her mom, ...

ejbamommy.blogspot.com ejbamommy.blogspot.com

JOURNEY TO US: Eli's Journey

http://ejbamommy.blogspot.com/p/elis-story.html

Books, Toys, and Goodies. This may not be the best organized story. It may not flow well. But our journey hasn't flowed perfectly. It’s been a bumpy road, and continues to be. I will keep this page updated and try over time to smooth out some of the writing. But for now this gives our bumpy journey in some sort of order. January 2010 was spent at doctor’s offices and labs. Eli couldn't seem to gain weight. He kept choking and gagging and throwing up. The NG tube was in and out. Noth...Then came March 201...

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My Journey Into Holland: October 2010

http://myjourneyintoholland.blogspot.com/2010_10_01_archive.html

My Journey Into Holland. This is about my journey into "Holland" and my experiences with my daughter, Elizabeth. Elizabeth has multiple disabilties - Dandy Walker Malformation, hepatic fibrosis, vison impairment, seizures, aspiration/swallowing issues, low tone and developmental delay - but she doesn't let that slow her down! We have had a pretty crazy journey, but it's been a learning experience and an absolutely wonderful ride. Wednesday, October 20, 2010. One of those days . Wednesday, October 13, 2010.

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My Journey Into Holland: August 2011

http://myjourneyintoholland.blogspot.com/2011_08_01_archive.html

My Journey Into Holland. This is about my journey into "Holland" and my experiences with my daughter, Elizabeth. Elizabeth has multiple disabilties - Dandy Walker Malformation, hepatic fibrosis, vison impairment, seizures, aspiration/swallowing issues, low tone and developmental delay - but she doesn't let that slow her down! We have had a pretty crazy journey, but it's been a learning experience and an absolutely wonderful ride. Wednesday, August 24, 2011. Subscribe to: Posts (Atom). Bird On the Street.

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My Journey Into Holland: January 2012

http://myjourneyintoholland.blogspot.com/2012_01_01_archive.html

My Journey Into Holland. This is about my journey into "Holland" and my experiences with my daughter, Elizabeth. Elizabeth has multiple disabilties - Dandy Walker Malformation, hepatic fibrosis, vison impairment, seizures, aspiration/swallowing issues, low tone and developmental delay - but she doesn't let that slow her down! We have had a pretty crazy journey, but it's been a learning experience and an absolutely wonderful ride. Friday, January 13, 2012. Also, to me, a world with special needs is normal...

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JOURNEY TO US: What happened??

http://ejbamommy.blogspot.com/2013/05/what-happened.html

Books, Toys, and Goodies. Tuesday, May 7, 2013. This will be disorganized. things won't be spelled right. punctuation will be wrong. sentences will be wrong. i simply have to type the words. feeling may show so strongly at points and others may sound so numb. this is the best i can do now. We were supposed to have more time. we weren't on hospice. this shouldn't be our story. They sent Eli home Friday April 26th around 6pm. The attending begged his primary doc to take over at home care. We got ho...Aroun...

ejbamommy.blogspot.com ejbamommy.blogspot.com

JOURNEY TO US: Goals

http://ejbamommy.blogspot.com/2014/08/goals.html

Books, Toys, and Goodies. Tuesday, August 26, 2014. Goals Most of us have them. Sometimes we meet them, sometimes we don't. Sometimes we forget we even set goals days later. Finally I said enough. This cycle had to stop. I was simply setting myself up for failure over and over again. I joined a monthly mileage group, I started posting every single mile on a document for my online running group to see. I started telling people what my goals were. This month I won't reach my utmost goal. My fall Sunday has...

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Gifts

Friday, April 18, 2014. The blog is back! I was searching Facebook the other day for a post in which I mentioned Tomas' aortic dilation value (to compare it to his current value), but was frustrated by my inability to search through posts. So here I am, back at the place that stores all things Tomas in an easy-to-use format. Wednesday, November 28, 2012. Short(ish) Update - Brain dump #2. 1 Chronic Neutropenia (not otherwise specified)- check. 2 Chronic Anemia (not otherwise specified)- check. There is a...

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