marfanworld.org

rarediseasesindia.org

marfan - Rare Diseases India

http://www.rarediseasesindia.org/marfan-1

About Rare Diseases India. Rare Diseases and Disorders L. Patient Advocacy Groups Database. Write rare disease reviews). Choose a rare disease to write. Instructions to write Reviews. Submit Your Review Article. Read Rare Diseases Reviews from list below. Alternating Hemiplegia of Childhood. Coarctation of the Aorta. Madras Motor Neuron Disease. Read Research Articles from list below. Septic Shock: A2M hypothesis. A2M and proteases in disease prevention. A2M and protease prevalence in chronic patients.

marfanforeningen.se

Links

http://marfanforeningen.se/Links.html

International Federation of Marfan Syndrome Organizations). Landsforeningen for Marfan Syndrom. The Canadian Marfan Association. För telefon etc. till närmaste specialistmottagning. Centrum för Sällsynta Diagnoser. Aorta Dissektion Föreningen Skandinavien. Nyhetsbrev från Danmark hösten 2014. Studie 2014 ang. Losartan. Informationscentrum för ovanliga diagnoser. Nationella Funktionen för Sällsynta Diagnoser. Stor databas sällsynta sjukdomar). Socialstyrelsens databas för ovanliga diagnoser.

marfanaorticrootsupport.org

Information on the Operation for People with an Enlarged Aorta, Particularly People with Marfan Syndrome: Marfan syndrome-related Websites

http://www.marfanaorticrootsupport.org/websites.html

In Their Own Words. Contact the PEARS Team. There are numerous foundations and associations dedicated to supporting individuals and families affected by Marfan syndrome. These organisations are a valuable source of information and practical and emotional support. International Federation of Marfan Syndrome Organizations (IFMSO). Marfan Association Victoria Inc. New South Wales, Australia. Association Belge du Syndrome de Marfan. The Fundação Marfan Brasil (Brasil Marfan Foundation.

gadacanada.ca

Links — Genetic Aortic Disorders Association Canada

http://www.gadacanada.ca/links

Montalcino Aortic Consortium (MAC). For Patients and Families. Research News and Publications. Montalcino Aortic Consortium (MAC). For Patients and Families. Research News and Publications. For Patients and Families. Research News and Publications. Organizations For Thoracic Aortic Aneurysms and Dissections. The John Ritter Foundation. The foundation located in the U.S.A. is focused on thoracic aortic disease education, support, and research. International Marfan syndrome Organizations. Web site of the M...

marfan.com

What are related disorders? | The Marfan Foundation

http://www.marfan.com/about/related-disorders

Skip to main content. Know the signs. Fight for victory. Marfan and Related Disorders. What is Marfan Syndrome? What are Related Disorders? What are the Signs? How is the Body Affected? Participate in a Study. Annual Report and Financials. Marfan and Related Disorders. What is Marfan Syndrome? What are Related Disorders? What are the Signs? How is the Body Affected? What are related disorders? What are related disorders.jpg. Many of these disorders are genetic conditions that, like Marfan syndrome, cause...

marfan.com

Getting Diagnosed | The Marfan Foundation

http://www.marfan.com/expectations/diagnosis

Skip to main content. Know the signs. Fight for victory. Marfan and Related Disorders. What is Marfan Syndrome? What are Related Disorders? What are the Signs? How is the Body Affected? Participate in a Study. Annual Report and Financials. Marfan syndrome is a serious, potentially life-threatening disorder, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related disorders. How is Marfan syndrome diagnosed? A complete physical examination.

marfan.com

Connect with Community | The Marfan Foundation

http://www.marfan.com/get-involved/community

Skip to main content. Know the signs. Fight for victory. Marfan and Related Disorders. What is Marfan Syndrome? What are Related Disorders? What are the Signs? How is the Body Affected? Participate in a Study. Annual Report and Financials. Participate in a Study. Local Support and Groups. Attend Our Annual Conference. Community groups thumb.png. Local Support and Groups. Annual conference thumb.png. Community calendar thumb.png. CALL OUR HELP CENTER:. 2014 Marfan Foundation Privacy Statement.

marfan.com

Healthcare Professionals | The Marfan Foundation

http://www.marfan.com/resources/professionals

Skip to main content. Know the signs. Fight for victory. Marfan and Related Disorders. What is Marfan Syndrome? What are Related Disorders? What are the Signs? How is the Body Affected? Participate in a Study. Annual Report and Financials. We hope you will see us as a valuable partner as you care for patients with Marfan syndrome and related disorders. CALL OUR HELP CENTER:. 2014 Marfan Foundation Privacy Statement.

altongiant.blogspot.com

Marfan Syndrome- Genetics Project: April 2010

http://altongiant.blogspot.com/2010_04_01_archive.html

Marfan Syndrome- Genetics Project. Sunday, April 25, 2010. What is the life expectancy of someone with this disease? How can the disease be treated? What is everyday life like? What is the quality of life? What limitations does the person have? What are some organizations that can help a family cope with a child's disorder? United States: National Marfan Foundation -www.marfan.org. United Kingdom: Marfan Association UK -. Canada: The Canadian Marfan Association -. Worldwide: Marfan World -. Today there i...

heartworksgala.net

Run or Walk for Victory | The Marfan Foundation

http://www.heartworksgala.net/get-involved/run-walk

Skip to main content. Know the signs. Fight for victory. Marfan and Related Disorders. What is Marfan Syndrome? What are Related Disorders? What are the Signs? How is the Body Affected? Run or Walk for Victory. Participate in a Study. Annual Report and Financials. Run or Walk for Victory. Participate in a Study. Run or Walk for Victory. As a part of our Team Victory program, Team Cassie participates annually in the Super Hero Half Marathon in Morristown, NJ, in honor of her daughter, Cassie, who is affec...