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Martim´s life with Alpha 1: Funny...
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Martim´s life with Alpha 1. Martim was playing with us today and told us " Baby Martim was in mum´s tummy and baby Marta was in dad´s tummy! Mummy, what colour is my pajama? It´s my "paferred" colour! You are so beautiful! Mummy, I want to see my block! Martim: Grandma, tomorrow I´m going to do a tattoo! Martim: I´m going to do a tattoo in my arm saying " Marta, the most beautiful! Mãe, que cor é o meu pijama? É a minha cor pafarida! Tu és tão linda! Mãe, e o pum? Sim, para que serve o pum? Ah não é não!
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Martim´s life with Alpha 1: Liver Transplant
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Martim´s life with Alpha 1. Martim had a living donor Liver transplant, on the 24th of October of 2009, at the age of 2 years and 10 months, due to a chronic liver disease called Alpha 1 Antitrypsin Def. Martim´s father, Paulo, gave him a beautiful liver graft with 300gr from his own liver. It was a Gift of Life! Prof Nigel Heaton, Dr Hector Vilca- Melendez and team performed Martim and Paulo´s surgeries, at King´s College Hospital, UK. Subscribe to: Posts (Atom). There was an error in this gadget. Marti...
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Martim´s life with Alpha 1
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Martim´s life with Alpha 1. Subscribe to: Post Comments (Atom). There was an error in this gadget. You can follow Martim by email. Martim´s medical updates. Pre - transplante assessment. My friends in the Liver Land. Two months before transplant. 2 meses antes do transplante. Gavin is an angel who was born like me. He will always be remembered in every milestones of my life. Martim´s eyes before transplant. Olhos do Martim antes do transplante. Em Português-clique na imagem. FEEDJIT Live Traffic Feed.
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Martim´s life with Alpha 1: Medication
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Martim´s life with Alpha 1. Cellcept- variable dose- actually 280 mg x 2 times a day. Tacrolimus- variable dose- actually 1 mg x 2 times a day. Ursofalk suspension- ursodeoxicolic acid. Konakion paediatric- vitamin K. Aqua-E- vitamin E with tocopherols and tocotrienols. Generaid Plus- special milk formula. Subscribe to: Posts (Atom). There was an error in this gadget. You can follow Martim by email. Martim´s medical updates. Pre - transplante assessment. My friends in the Liver Land.
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Martim´s life with Alpha 1: Martim and Maria- fighting alpha1 together
http://martimmargaca.blogspot.com/2015/04/martim-and-maria-fighting-alpha1.html
Martim´s life with Alpha 1. Martim and Maria- fighting alpha1 together. Today was blood tests day. Let me start by saying that i hate this. Taking my kids to the hospital to take bloods is always heartbreaking. I will never get use to this. So, Martim knew we were going to the hospital, he cried a little, told me his liver was ok, no need for bloods.Had is magical bandaid ( Emla) and told me he was going to be brave so that Maria would not see him crying. Maria´s liver enzymes are NORMAL! Alice Margaça&#...
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Martim´s life with Alpha 1: Football
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Martim´s life with Alpha 1. Subscribe to: Post Comments (Atom). There was an error in this gadget. You can follow Martim by email. Martim´s medical updates. Pre - transplante assessment. My friends in the Liver Land. Two months before transplant. 2 meses antes do transplante. Gavin is an angel who was born like me. He will always be remembered in every milestones of my life. Martim´s eyes before transplant. Olhos do Martim antes do transplante. Em Português-clique na imagem. FEEDJIT Live Traffic Feed.
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Martim´s life with Alpha 1: Liver disease
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Martim´s life with Alpha 1. HOW IMPORTANT IS THE LIVER? The liver is a vital organ. Without it we would not be able to live. Apart from the brain, it is the most complex organ in the body. It has a wide range of functions and acts very much like a factory. One of its mostamazing features is its regenerative power. Some 9/10ths of the liver can be cut away and provided the remaining 1/10th is healthy, the liver will grow back to its original. The liver is a processor. The liver is a manufacturer. 2 The li...
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Martim´s life with Alpha 1: Alpha1 Disease
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Martim´s life with Alpha 1. Alpha-1 Antitrypsin Deficiency (Alpha-1) is a condition that is passed from parents to their children through their genes. This condition may result in serious lung and/or liver disease at various ages in life. For each trait a person inherits, there are usually two genes and one gene comes from each parent. People with Alpha-1 have received two defective alpha-1 antitrypsin genes. One defective gene came from their mother and one from their father. An estimated 20 million peo...
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Martim´s life with Alpha 1: AA1P
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Martim´s life with Alpha 1. Em Fevereiro de 2011 foi criada a AA1P- Associação Alfa 1 de Portugal. Na qual eu sou um dos membros fundadores. A AA1P nasceu da vontade de duas famílias Alfa em ajudarem outras famílias que estão de momento a passar pelo mesmo que passámos. Queremos ser um apoio, como desejámos um dia tê-lo quando os nossos filhos foram diagnosticados. Como sabemos que há muitas pessoas com Défice de Alfa 1 Antitripsina que não estão ainda diagnosticadas, criamos um protocolo com o laboratór...
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Martim´s life with Alpha 1
http://martimmargaca.blogspot.com/2015/05/martims-story-on-childrens-liver.html
Martim´s life with Alpha 1. Martim´s story on Children´s Liver Disease Foundation´s website:. Http:/ www.childliverdisease.org/blogpost/88/Martim-Marga%C3%A7a-alpha-1-kid. Subscribe to: Post Comments (Atom). There was an error in this gadget. You can follow Martim by email. Martim´s medical updates. Pre - transplante assessment. My friends in the Liver Land. Two months before transplant. 2 meses antes do transplante. Martim´s eyes before transplant. Olhos do Martim antes do transplante.
