speciallovesnetwork.blogspot.com
Special Loves Network: undiagnosed.
http://speciallovesnetwork.blogspot.com/p/undiagnosed.html
An article for the Undiagnosed. http:/ special-needs.families.com/blog/agnoizing-journey-the-undiagnosed-child. Info for Genetic Disorders through National Institutes of Health. http:/ www.genome.gov/10001204. Syndromes without a Name. http:/ www.undiagnosed-usa.org/. Subscribe to: Posts (Atom). Children with Special Needs. Enjoying the Small Things. This Little Miggy Stayed Home. Special Needs Spotligt Hannah, Katie, Nano and Davy. Coffee in my cup. Up up and away. View my complete profile.
peekabookabuki.com
Developmental delays | Peekaboo Kabuki
https://peekabookabuki.com/category/developmental-delays
Special Needs Parenting – Loving a Child with Kabuki Syndrome and Aspergers. Category Archives: Developmental delays. September 26, 2015. Invisible Disabilities (Otherwise known as … “She seems fine to me”). Some kids with special needs have obvious challenges. They may be in a wheel chair, or have a naso-gastric feeding tube, or facial deformities, or missing limbs. Something that people can see, that people may make allowances for, and (hopefully) have compassion for. How much therapy is not enough?
peekabookabuki.com
Feeding | Peekaboo Kabuki
https://peekabookabuki.com/category/feeding-2
Special Needs Parenting – Loving a Child with Kabuki Syndrome and Aspergers. October 13, 2014. Dietary Intervention – The GAPs Diet. I have wanted to write this post for a very long time. But every time I even thought about it, I developed terrible writer’s block. A new experience for me. Writing normally comes easily to me. Why such a blockage? We suspected from early on that she was intolerant of dairy. Removing dairy from my diet while I was breastfeeding helped somewhat, for a little while. B...Well ...
speciallovesnetwork.blogspot.com
Special Loves Network: parenting a child with disabilities.
http://speciallovesnetwork.blogspot.com/2011/04/parenting-child-with-disabilities.html
Wednesday, April 6, 2011. Parenting a child with disabilities. Program titled "Parenting a Child with Disabilities". Date: Tuesday, April 19, 2011. Time: 6:30 pm to 8:30 pm. Location: Medina County University Center. Medina, OH 44256. Melanie or Bev at 330-722-1900 or 1-877-546-8568. Subscribe to: Post Comments (Atom). Children with Special Needs. Enjoying the Small Things. This Little Miggy Stayed Home. Special Needs Spotligt Hannah, Katie, Nano and Davy. Coffee in my cup. Up up and away.
speciallovesnetwork.blogspot.com
Special Loves Network: a father's quest.
http://speciallovesnetwork.blogspot.com/2011/05/fathers-quest.html
Tuesday, May 17, 2011. This piece is by npr, and worth the read. Http:/ www.npr.org/2011/05/10/136137429/a-fathers-quest-to-help-his-severely-disabled-son. Subscribe to: Post Comments (Atom). Children with Special Needs. Enjoying the Small Things. This Little Miggy Stayed Home. Special Needs Spotligt Hannah, Katie, Nano and Davy. Coffee in my cup. Up up and away. View my complete profile. Ethereal template. Powered by Blogger.
allthingskabuki.org
Kabuki Blogs - All Things Kabuki, Inc.
http://www.allthingskabuki.org/home/kabuki-blogs
All Things Kabuki, Inc. Awareness, Education and Support for Kabuki Syndrome. What is Kabuki Syndrome? Kabuki Syndrome: An Inside Look. Kabuki - In the News. All Things Kabuki, Inc. Awareness, Education and Support for Kabuki Syndrome. What is Kabuki Syndrome? Kabuki Syndrome: An Inside Look. Kabuki - In the News. Thank you for your tax deductible donation! Earn $ for ATK by shopping Amazon! Sign up at smile.amazon.com. And select All Things Kabuki. Wasilla, Alaska 99687. Thank you for visiting!
sandjhebert.blogspot.com
Walking Through Fire: The Beginning: 3 months to 2 years old
http://sandjhebert.blogspot.com/2015/02/the-beginning-3-months-to-2-years-old.html
When you pass through the waters, I will be with you; and through the rivers, they shall not overflow you: when you walk through the fire, you shalt not be burned, neither shall the flame kindle upon you. -Isaiah 43:2. Tuesday, February 3, 2015. The Beginning: 3 months to 2 years old. You can find the first part of Eva's story (birth to 3 months) HERE. Eventually, I was unable to keep up with her milk demand. I was blessed with a good supply for a long time though! This way of feeding continued pretty mu...
speciallovesnetwork.blogspot.com
Special Loves Network: April 2011
http://speciallovesnetwork.blogspot.com/2011_04_01_archive.html
Tuesday, April 26, 2011. We will be meeting tomorrow evening, April 27th, at 7pm at the First Presbyterian Church. We will be in Classroom 1 Downstairs. We have no formal agenda for this first meeting, as we just want to meet and greet. We will provide the refreshments, and we're asking everyone to bring an appetizer or dessert to share. Hope to see you there! Wednesday, April 6, 2011. Just Kid's Stuff Garage Sale. Saturday, April 16th. At the new Multi-Purpose Building behind Orrville High School.
sandjhebert.blogspot.com
Walking Through Fire: Jesse Tree Elf on the Shelf
http://sandjhebert.blogspot.com/2014/12/jesse-tree-elf-on-shelf.html
When you pass through the waters, I will be with you; and through the rivers, they shall not overflow you: when you walk through the fire, you shalt not be burned, neither shall the flame kindle upon you. -Isaiah 43:2. Monday, December 1, 2014. Jesse Tree Elf on the Shelf. I love the idea of the "game" part of elf on the shelf. I love that the kids get excited about finding the elf every morning. Its like playing hide and seek everyday! Anyway, my husband's sweet cousin offered us an elf on the shelf thi...
sandjhebert.blogspot.com
Walking Through Fire: Kabuki TRIUMPHS
http://sandjhebert.blogspot.com/2014/05/trials-and-triumphs.html
When you pass through the waters, I will be with you; and through the rivers, they shall not overflow you: when you walk through the fire, you shalt not be burned, neither shall the flame kindle upon you. -Isaiah 43:2. Saturday, May 17, 2014. There is a wonderful group of moms and dads of Kabuki kids (KK) on Facebook and I've come to love and appreciate them, all of their support and the wealth of information they can provide for the searching Kabuki parent like me! Post from Andrea, mom to Ry. Didn't th...
