A mommy blog about our undiagnosed son w/ special needs: a faith journey in deaf-blindness, genetic disease, therapy, tube feeding, delayed milestones
http://masonjosias.blogspot.com/
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THIS I KNOW | a mommy blog about our son with special needs | masonjosias.blogspot.com Reviews
https://masonjosias.blogspot.com
A mommy blog about our undiagnosed son w/ special needs: a faith journey in deaf-blindness, genetic disease, therapy, tube feeding, delayed milestones
masonjosias.blogspot.com
THIS I KNOW | a mommy blog about our son with special needs: Is It Genetic?
http://masonjosias.blogspot.com/2011/06/is-it-genetic.html
Our familys journey with deaf-blindness, multiple disabilities and undiagnosed genetic disease.stories, updates, mental notes and spiritual reminders to help our family stay grounded in faith and focus on the facts as we navigate the mysteries and uncertainties of our little boys health. Monday, June 13, 2011. Your nose on either side) - but according to National Institutes of Health, " A child who is not Asian and is born with epicanthal folds may be examined for additional signs of Down syndrome or oth...
THIS I KNOW | a mommy blog about our son with special needs: 11/9/14 - 11/16/14
http://masonjosias.blogspot.com/2014_11_09_archive.html
Our familys journey with deaf-blindness, multiple disabilities and undiagnosed genetic disease.stories, updates, mental notes and spiritual reminders to help our family stay grounded in faith and focus on the facts as we navigate the mysteries and uncertainties of our little boys health. Monday, November 10, 2014. Hip Dysplasia Second Opinion, and a Tough Decision. In August we found out that Mason's hips are partially dislocated and need a very big surgery. Here is a pic of NORMAL HIPS. I asked his NIH ...
THIS I KNOW | a mommy blog about our son with special needs: Head, shoulders, knees and toes...
http://masonjosias.blogspot.com/2012/01/head-shoulders-knees-and-toes.html
Our familys journey with deaf-blindness, multiple disabilities and undiagnosed genetic disease.stories, updates, mental notes and spiritual reminders to help our family stay grounded in faith and focus on the facts as we navigate the mysteries and uncertainties of our little boys health. Sunday, January 22, 2012. Head, shoulders, knees and toes. Well, after a day of appointments there are some highs and lows. Mostly highs. We knew Mason's head was flat in spots from being flat on his back or sides so muc...
THIS I KNOW | a mommy blog about our son with special needs: Mason's Story
http://masonjosias.blogspot.com/2010/08/masons-story.html
Our familys journey with deaf-blindness, multiple disabilities and undiagnosed genetic disease.stories, updates, mental notes and spiritual reminders to help our family stay grounded in faith and focus on the facts as we navigate the mysteries and uncertainties of our little boys health. Saturday, August 28, 2010. Before He Was Born, God Knew. How vast is the sum of them! And hairline (yes, we knew he would have at least a little! But never a really clear straight-on clear face picture. I was really disa...
THIS I KNOW | a mommy blog about our son with special needs: 9/7/14 - 9/14/14
http://masonjosias.blogspot.com/2014_09_07_archive.html
Our familys journey with deaf-blindness, multiple disabilities and undiagnosed genetic disease.stories, updates, mental notes and spiritual reminders to help our family stay grounded in faith and focus on the facts as we navigate the mysteries and uncertainties of our little boys health. Tuesday, September 09, 2014. Deafblind preschool (at home! Outside Boston. Since it's across the country and not a financial option, we had to think outside the box and make his classroom with some unique adaptations.
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Why are we so afraid of Down syndrome? - Sipping Lemonade
http://sippinglemonade.com/why-are-we-so-afraid-of-down-syndrome-2
Stories about family, faith & farm. Why are we so afraid of Down syndrome? January 7, 2014. The grandfatherly man smiled at Kate from the cart in front of us at the grocery store. 8220;Well, you’re just. 8221; he gushed. Kate did what she usually does (if she’s had a nap) and flirted back. Her toothy smile took over her cheeks and her almond eyes turned into half-moon slivers bright enough to light up the night sky. Was that what I was afraid of the day she was born? Well, of course not. What I was afrai...
thejellychronicles.blogspot.com
The Jelly Chronicles: March 2011
http://thejellychronicles.blogspot.com/2011_03_01_archive.html
Steven our CTICU roomate. This Mom's Gonna Snap! Luck of the Irish. I really did try. The happiest place on earth. Excuse me did I say Thursday? Were going to Disneyland! From bad to much much worse. This morning pus started to leak out from under your dressing. Dr. Bailey held your oxygen treatments, had the dressing changed, and wanted . We aren't going home today. We arent going home anytime in the near future. You wound is bad. Real bad. The first few dressing changes it didnt look lik. It's thanksgi...
Tube Tales: April 2011
http://blog.shef.ca/2011_04_01_archive.html
Noah's Parents' journey. A baby with no desire to eat, tube feeding, and no diagnosis. Thursday, April 21, 2011. So the big anticipation of the month was Noah's tube change. To recap, about a month ago we noticed a tiny hole in Noah's PEG tube. We continued to feed him as normal and found that the leak only occurred when the tube was kinked. I called the g-tube clinic and was told to book Noah in for a tube change with the surgeon. Done and done. Why was this person saying yes? Blending food is going wel...
Tube Tales: August 2012
http://blog.shef.ca/2012_08_01_archive.html
Noah's Parents' journey. A baby with no desire to eat, tube feeding, and no diagnosis. Saturday, August 11, 2012. Never Once Did We Ever Walk Alone. Standing on this mountaintop. Looking just how far we've come. Knowing that for every step. You were with us. Scars and struggles on the way. But with joy our hearts can say. Yes, our hearts can say. Never once did we ever walk alone. Never once did You leave us on our own. You are faithful, God, You are faithful. Lyrics from Never Once. If you are currently...
thejellychronicles.blogspot.com
The Jelly Chronicles: September 2011
http://thejellychronicles.blogspot.com/2011_09_01_archive.html
Steven our CTICU roomate. This Mom's Gonna Snap! A comment on comments. Not better but no worse. From bad to much much worse. Yesterday, today, and tomorrow. We arent going home today. Some good moments, some bad moments. From bad to much much worse. This morning pus started to leak out from under your dressing. Dr. Bailey held your oxygen treatments, had the dressing changed, and wanted . We aren't going home today. Mason is in Surgery! I really did try. Exactly what I expected I didn't want to hear.
thejellychronicles.blogspot.com
The Jelly Chronicles: December 2010
http://thejellychronicles.blogspot.com/2010_12_01_archive.html
Steven our CTICU roomate. This Mom's Gonna Snap! Just for the record. The 6th it is! The stressful Non-stress test. 2 Dr visits today the old and the new. Road built in hope. A letter to Mason. From bad to much much worse. This morning pus started to leak out from under your dressing. Dr. Bailey held your oxygen treatments, had the dressing changed, and wanted . We aren't going home today. Mason is in Surgery! I really did try. Exactly what I expected I didn't want to hear. Friday, December 31, 2010.
thejellychronicles.blogspot.com
The Jelly Chronicles: October 2011
http://thejellychronicles.blogspot.com/2011_10_01_archive.html
Steven our CTICU roomate. This Mom's Gonna Snap! From bad to much much worse. This morning pus started to leak out from under your dressing. Dr. Bailey held your oxygen treatments, had the dressing changed, and wanted . We aren't going home today. We arent going home anytime in the near future. You wound is bad. Real bad. The first few dressing changes it didnt look lik. Mason is in Surgery! I really did try. Exactly what I expected I didn't want to hear. Monday, October 31, 2011. My mom, my brother in l...
thejellychronicles.blogspot.com
The Jelly Chronicles: From bad to much much worse
http://thejellychronicles.blogspot.com/2011/09/from-bad-to-much-much-worse.html
Steven our CTICU roomate. This Mom's Gonna Snap! A comment on comments. Not better but no worse. From bad to much much worse. Yesterday, today, and tomorrow. We arent going home today. Some good moments, some bad moments. From bad to much much worse. This morning pus started to leak out from under your dressing. Dr. Bailey held your oxygen treatments, had the dressing changed, and wanted . We aren't going home today. Mason is in Surgery! I really did try. Exactly what I expected I didn't want to hear.
thejellychronicles.blogspot.com
The Jelly Chronicles: Mason's Milestones
http://thejellychronicles.blogspot.com/p/masons-milestones.html
Steven our CTICU roomate. This Mom's Gonna Snap! Happy BIRTH day Mason! Happy birthday to meeeee! From bad to much much worse. This morning pus started to leak out from under your dressing. Dr. Bailey held your oxygen treatments, had the dressing changed, and wanted . We aren't going home today. We arent going home anytime in the near future. You wound is bad. Real bad. The first few dressing changes it didnt look lik. Mason is in Surgery! I really did try. Exactly what I expected I didn't want to hear.
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THIS I KNOW | a mommy blog about our son with special needs
Our familys journey with deaf-blindness, multiple disabilities and undiagnosed genetic disease.stories, updates, mental notes and spiritual reminders to help our family stay grounded in faith and focus on the facts as we navigate the mysteries and uncertainties of our little boys health. Sunday, July 31, 2016. A sensory pod from an improvised black-out tent. Ever since we went to Myseum,. One solution is using a black pop-up portable pod like this one. Links to this post. Thursday, February 25, 2016.
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