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Max 'der Starke'Wiskott Aldrich Syndrome WAS Cord blood transplant Bone marrow transplant Graft vs. Host Disease GVHD
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Wiskott Aldrich Syndrome WAS Cord blood transplant Bone marrow transplant Graft vs. Host Disease GVHD
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Wiskott Aldrich Syndrome WAS Cord blood transplant Bone marrow transplant Graft vs. Host Disease GVHD
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Max 'der Starke': March 2011
http://maxderstarke.blogspot.com/2011_03_01_archive.html
Tuesday, March 15, 2011. You've come a long way baby! Just a short blog update to commemorate the delivery of Max's new immune system. On this day last year Max received a cord blood transplant which cured him of his Wiskott Aldrich syndrome. I expect this day will be a special day for us for the rest of our lives.it really is another birthday for Max. March 15th for his immune system. June 29th for the rest of his body. Max receiving those golden cord blood cells March 15th 2010.
Max 'der Starke': 2012 was a good year....
http://maxderstarke.blogspot.com/2014/01/2012-was-good-year.html
Friday, January 17, 2014. 2012 was a good year. Not only has he made many leaps in terms of his health, he has also made a stellar introduction to school, having commenced Prep in January of this year. He continues to regularly astound us with the things that he is learning and the confidence and enthusiasm at which he is handling school life. It was very satisfying for us to see him so enthusiastically take to it, particularly when he had spent so much of the previous year stuck in a hospital bed. This ...
Max 'der Starke': Permacath 2: Return of the Line
http://maxderstarke.blogspot.com/2012/10/permacath-2-return-of-line.html
Saturday, October 6, 2012. Permacath 2: Return of the Line. So, where were we …. At the conclusion of our last instalment, Max had just had his Permacath central line removed. After two weeks of ‘plastic line in body’ free time, he was readmitted to hospital to have another Permacath line inserted. This time, thankfully, it was in a much better position than the first. Max recommenced photopherisis treatment twice weekly in the new Day Medical Suites, which are now next door to the Day Cancer Outpatient ...
Max 'der Starke': November 2011
http://maxderstarke.blogspot.com/2011_11_01_archive.html
Monday, November 21, 2011. There and back again - the prequel (Day 616). Since we last wrote (sorry to keep you hanging! Max first admitted in Emergency.before the fluid boluses blew up his body. On the BiPap machine 24/7! Somebody by the child's bed. Intubated.fluid all gone from his body.but still playing havoc in his lungs. Bacterial, viral or fungal? Was it possibly Graft Versus Host disease manifesting itself in his lungs? Or was it something altogether unexpected? One of the MANY scans Max had.
Max 'der Starke': October 2012
http://maxderstarke.blogspot.com/2012_10_01_archive.html
Tuesday, October 16, 2012. Septic showers ain't fun! March - April 2012). At the end of our last update, Max had successfully undergone a circumcision. Although rather tender 'downstairs', he was recovering very well. Everything seemed to be going along 'happy chappy'. However, the next week (March 22nd) during his weekly photopherisis treatment, Max suffered from a serious septic shower. It was horrid! This is a summary for those that don’t know what a septic shower is:. How can I plan my escape? Howeve...
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Find a Family - The Wiskott-Aldrich Foundation
http://www.wiskott.org/patients-and-families/find-a-family
Application Process and Timeline. Find a Clinical Trial. Find a Support Group. Find a Clinical Trial. ASCGT NIH Gene Therapy Symposium. September 26-27, 2011. Bethesda, MD. Physicians in the U.S. Find a Clinical Trial. Clinical Trials and Studies. IL 2, Eltrombopag, IVIG. Find a Support Group. Please register and sign up for the Wiskott-Aldrich Syndrome group). This is an active forum where many families have come together to provide support and share information with each other. If you have a mo...Happy...
RUGLESS BOYS WISKOTT ALDRICH SYNDROME: August 2009
http://zacruglesswas.blogspot.com/2009_08_01_archive.html
RUGLESS BOYS WISKOTT ALDRICH SYNDROME. Welcome.I have two beauitful Boys James 9 and Zac 5. Both were born with Wiskott Aldrich Syndrome, both have recevied a Cord Blood Transplant (Bone Marrow), James also has Aspergers. Here you can follow our family's story before, during and after Transplant and all our Highs and Lows. Copy Right . Do not use any of my blog for any reason Read Only. Tuesday, August 18, 2009. Tuesday 18th August 2009. Very Important DAVID McNALLY has now reached 3 years post transplant.
RUGLESS BOYS WISKOTT ALDRICH SYNDROME: May 2010
http://zacruglesswas.blogspot.com/2010_05_01_archive.html
RUGLESS BOYS WISKOTT ALDRICH SYNDROME. Welcome.I have two beauitful Boys James 9 and Zac 5. Both were born with Wiskott Aldrich Syndrome, both have recevied a Cord Blood Transplant (Bone Marrow), James also has Aspergers. Here you can follow our family's story before, during and after Transplant and all our Highs and Lows. Copy Right . Do not use any of my blog for any reason Read Only. Monday, May 10, 2010. No News is Good News though. Zac is still having mass behaviours problems he just does not unders...
RUGLESS BOYS WISKOTT ALDRICH SYNDROME: March 2009
http://zacruglesswas.blogspot.com/2009_03_01_archive.html
RUGLESS BOYS WISKOTT ALDRICH SYNDROME. Welcome.I have two beauitful Boys James 9 and Zac 5. Both were born with Wiskott Aldrich Syndrome, both have recevied a Cord Blood Transplant (Bone Marrow), James also has Aspergers. Here you can follow our family's story before, during and after Transplant and all our Highs and Lows. Copy Right . Do not use any of my blog for any reason Read Only. Tuesday, March 3, 2009. First James started school this year my boy is all grown up.(sad) but happy too he he he. Zac i...
RUGLESS BOYS WISKOTT ALDRICH SYNDROME
http://zacruglesswas.blogspot.com/2012/05/23-rd-may-2012-da-y-plus-1505-okay-so.html
RUGLESS BOYS WISKOTT ALDRICH SYNDROME. Welcome.I have two beauitful Boys James 9 and Zac 5. Both were born with Wiskott Aldrich Syndrome, both have recevied a Cord Blood Transplant (Bone Marrow), James also has Aspergers. Here you can follow our family's story before, during and after Transplant and all our Highs and Lows. Copy Right . Do not use any of my blog for any reason Read Only. Wednesday, May 23, 2012. It has been a busy few months for us, everything going on good and bad never stops really.
RUGLESS BOYS WISKOTT ALDRICH SYNDROME: April 2014
http://zacruglesswas.blogspot.com/2014_04_01_archive.html
RUGLESS BOYS WISKOTT ALDRICH SYNDROME. Welcome.I have two beauitful Boys James 9 and Zac 5. Both were born with Wiskott Aldrich Syndrome, both have recevied a Cord Blood Transplant (Bone Marrow), James also has Aspergers. Here you can follow our family's story before, during and after Transplant and all our Highs and Lows. Copy Right . Do not use any of my blog for any reason Read Only. Saturday, April 19, 2014. Getting back On Track. A lot has stayed the same from previous posts but. I will update again...
RUGLESS BOYS WISKOTT ALDRICH SYNDROME: November 2012
http://zacruglesswas.blogspot.com/2012_11_01_archive.html
RUGLESS BOYS WISKOTT ALDRICH SYNDROME. Welcome.I have two beauitful Boys James 9 and Zac 5. Both were born with Wiskott Aldrich Syndrome, both have recevied a Cord Blood Transplant (Bone Marrow), James also has Aspergers. Here you can follow our family's story before, during and after Transplant and all our Highs and Lows. Copy Right . Do not use any of my blog for any reason Read Only. Saturday, November 10, 2012. Getting There Slowly. Happy Times. Never because I know they are not. I never ask for ...
RUGLESS BOYS WISKOTT ALDRICH SYNDROME: Getting back On Track
http://zacruglesswas.blogspot.com/2014/04/getting-back-on-track.html
RUGLESS BOYS WISKOTT ALDRICH SYNDROME. Welcome.I have two beauitful Boys James 9 and Zac 5. Both were born with Wiskott Aldrich Syndrome, both have recevied a Cord Blood Transplant (Bone Marrow), James also has Aspergers. Here you can follow our family's story before, during and after Transplant and all our Highs and Lows. Copy Right . Do not use any of my blog for any reason Read Only. Saturday, April 19, 2014. Getting back On Track. A lot has stayed the same from previous posts but. I will update again...
RUGLESS BOYS WISKOTT ALDRICH SYNDROME: May 2009
http://zacruglesswas.blogspot.com/2009_05_01_archive.html
RUGLESS BOYS WISKOTT ALDRICH SYNDROME. Welcome.I have two beauitful Boys James 9 and Zac 5. Both were born with Wiskott Aldrich Syndrome, both have recevied a Cord Blood Transplant (Bone Marrow), James also has Aspergers. Here you can follow our family's story before, during and after Transplant and all our Highs and Lows. Copy Right . Do not use any of my blog for any reason Read Only. Friday, May 29, 2009. Saturday 30th May 2009. A very big congrats to Kristy on her baby boy Jai he is so cute. Http:/ w...
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Max 'der Starke'
Friday, January 17, 2014. 2012 was a good year. Not only has he made many leaps in terms of his health, he has also made a stellar introduction to school, having commenced Prep in January of this year. He continues to regularly astound us with the things that he is learning and the confidence and enthusiasm at which he is handling school life. It was very satisfying for us to see him so enthusiastically take to it, particularly when he had spent so much of the previous year stuck in a hospital bed. This ...
Malcolm DeRungs
From the career of. This website's Creative Commons license allows you to copy and reuse stuff that's in these pages. in the unlikely event you want to do so, please just tell people where it comes from. Don't mess with it and/or try to sell it. Made in Oregon, since 1960. 169;2018, Malcolm DeRungs.
maxderungs | Just another WordPress.com site
Just another WordPress.com site. Skip to primary content. Skip to secondary content. Start Up Fusion Solr as Non-root User in CentOS 6.6. December 23, 2015. One of the basic things to do when installing and configuring Lucidworks. Fusion 2.x on a single-server using the Solr instance included in the Fusion distribution is getting all Fusion services to start up on their own on a server reboot. Lucidworks included the fundamentals for how to do this in their Fusion 2.1 User Guide. Add commands to script.
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maxdervaux's blog - maxxxxxxxou - Skyrock.com
Vous etes sur l'album photo virtuel. de maxxx dervaux! 24/02/2004 at 7:30 AM. 12/08/2006 at 11:39 AM. Subscribe to my blog! Le colruyt au déluge. Don't forget that insults, racism, etc. are forbidden by Skyrock's 'General Terms of Use' and that you can be identified by your IP address (66.160.134.14) if someone makes a complaint. Please enter the sequence of characters in the field below. Posted on Tuesday, 08 August 2006 at 5:03 AM. Edited on Saturday, 12 August 2006 at 11:39 AM. Don't forget that insul...
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