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Living with Lamellar Ichthyosis

Living with Lamellar Ichthyosis. Wednesday, December 9, 2009. More about collodion babies and Lamellar Ichthyosis. One little boy down for his nap so we will continue! A couple more things about collodion babies before I go onto Lamellar Ichthyosis. Broviac line went in fine, no problem with the skin! No anaesthetic at at all.done over again, I would have insisted but I didn't really know what was going to happen as I was clueless about a lot of this. When Brandyn's membrane shed, there was no scaling at...

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Living with Lamellar Ichthyosis | mbgotfried.blogspot.com Reviews

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Living with Lamellar Ichthyosis. Wednesday, December 9, 2009. More about collodion babies and Lamellar Ichthyosis. One little boy down for his nap so we will continue! A couple more things about collodion babies before I go onto Lamellar Ichthyosis. Broviac line went in fine, no problem with the skin! No anaesthetic at at all.done over again, I would have insisted but I didn't really know what was going to happen as I was clueless about a lot of this. When Brandyn's membrane shed, there was no scaling at...

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Living with Lamellar Ichthyosis | mbgotfried.blogspot.com Reviews

https://mbgotfried.blogspot.com

Living with Lamellar Ichthyosis. Wednesday, December 9, 2009. More about collodion babies and Lamellar Ichthyosis. One little boy down for his nap so we will continue! A couple more things about collodion babies before I go onto Lamellar Ichthyosis. Broviac line went in fine, no problem with the skin! No anaesthetic at at all.done over again, I would have insisted but I didn't really know what was going to happen as I was clueless about a lot of this. When Brandyn's membrane shed, there was no scaling at...

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mbgotfried.blogspot.com

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Living with Lamellar Ichthyosis: Introduction

http://mbgotfried.blogspot.com/2009/12/introduction.html

Living with Lamellar Ichthyosis. Tuesday, December 8, 2009. My name is Morgan and I'm 25 years old. I have a gorgeous little boy named Brandyn who is 17 months old. I also feel that if people knew more about the condition, they would be less judgemental and accepting. I hope one day that people won't judge a person because of how they look but who they are inside. I realize this blog won't change the world but I feel I need to do my part. So lets get started! Brandyn was transferred via NETS (Neonatal Em...

2

Living with Lamellar Ichthyosis: More about collodion babies and Lamellar Ichthyosis

http://mbgotfried.blogspot.com/2009/12/more-about-collodion-babies-and.html

Living with Lamellar Ichthyosis. Wednesday, December 9, 2009. More about collodion babies and Lamellar Ichthyosis. One little boy down for his nap so we will continue! A couple more things about collodion babies before I go onto Lamellar Ichthyosis. Broviac line went in fine, no problem with the skin! No anaesthetic at at all.done over again, I would have insisted but I didn't really know what was going to happen as I was clueless about a lot of this. When Brandyn's membrane shed, there was no scaling at...

3

Living with Lamellar Ichthyosis: December 2009

http://mbgotfried.blogspot.com/2009_12_01_archive.html

Living with Lamellar Ichthyosis. Wednesday, December 9, 2009. More about collodion babies and Lamellar Ichthyosis. One little boy down for his nap so we will continue! A couple more things about collodion babies before I go onto Lamellar Ichthyosis. Broviac line went in fine, no problem with the skin! No anaesthetic at at all.done over again, I would have insisted but I didn't really know what was going to happen as I was clueless about a lot of this. When Brandyn's membrane shed, there was no scaling at...

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Fishy Skin: Living with Ichthyosis Vulgaris: Ichthyosis Confessions: Is It True?

http://fishyskin.blogspot.com/2012/03/ichthyosis-confessions-is-it-true.html

Fishy Skin: Living with Ichthyosis Vulgaris. Friday, March 2, 2012. Ichthyosis Confessions: Is It True? This is part of a series of blog posts I dubbed "Ichthyosis confessions" which features people on youtube talking about their experiences and concerns about Ichthyosis. A Singaporean teen video blogs about Ichthyosis, looking for possible treatments to ease the condition. Subscribe to: Post Comments (Atom). Yes, I have Ichthyosis Vulgaris. Would you like some tea? Call me your Ichthyosister! Dr Keith C...

fishyskin.blogspot.com

Fishy Skin: Living with Ichthyosis Vulgaris: November 2011

http://fishyskin.blogspot.com/2011_11_01_archive.html

Fishy Skin: Living with Ichthyosis Vulgaris. Saturday, November 19, 2011. A Video that Explains it All. I think of all the Ichthyosis skin conditions, I am afflicted with the mildest form, I consider myself still fortunate despite how aggravating the "mildest" form is. I cannot begin to fathom the severity and difficulty of living with Ichthyosis of the extreme or rare kind. If you can't see the video, watch it here. Subscribe to: Posts (Atom). Yes, I have Ichthyosis Vulgaris. Would you like some tea?

fishyskin.blogspot.com

Fishy Skin: Living with Ichthyosis Vulgaris: A Child with Granny Hands: A Case of Hyperlinear Palms

http://fishyskin.blogspot.com/2011/07/child-with-granny-hands-case-of.html

Fishy Skin: Living with Ichthyosis Vulgaris. Friday, July 29, 2011. A Child with Granny Hands: A Case of Hyperlinear Palms. I've been called many things and many names growing up. People would discuss my fishy skin right in front me as if I wasn't there. They would prod and stare at it and theorize how this came about. But thinking about all that name calling, amuses me now. It seemed to mystify people that someone like me can actually live with something like this. The act of strange food cravings by a ...

confettiskin.com

Glossary « Confetti Skin, Beauty Within

http://confettiskin.com/wp/glossary

Confetti Skin, Beauty Within. Navigating life with ichthyosis. What’s a Gene? Genetic Mutations Video Explanation. Confetti Skin, Beauty Within. Is our blog about ichthyosis. And its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2". Read more about us and this blog. Here's our summary of our best and most important posts of 2012. 2014 Ichthyosis Conference An Update from Dr. Choate. 2014 Ichthyosis Conference: Day 1. Dermis &#8...

confettiskin.com

About Ichthyosis « Confetti Skin, Beauty Within

http://confettiskin.com/wp/ichthyosisinfo

Confetti Skin, Beauty Within. Navigating life with ichthyosis. What’s a Gene? Genetic Mutations Video Explanation. Confetti Skin, Beauty Within. Is our blog about ichthyosis. And its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2". Read more about us and this blog. Here's our summary of our best and most important posts of 2012. 2014 Ichthyosis Conference An Update from Dr. Choate. 2014 Ichthyosis Conference: Day 1. Congenital...

confettiskin.com

Genetics Part 2 – Recessive Inheritance « Confetti Skin, Beauty Within

http://confettiskin.com/wp/2012/11/01/recessive-inheritance

Confetti Skin, Beauty Within. Navigating life with ichthyosis. What’s a Gene? Genetic Mutations Video Explanation. Confetti Skin, Beauty Within. Is our blog about ichthyosis. And its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2". Read more about us and this blog. Here's our summary of our best and most important posts of 2012. 2014 Ichthyosis Conference An Update from Dr. Choate. 2014 Ichthyosis Conference: Day 1. Because th...

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Harlequin « Confetti Skin, Beauty Within

http://confettiskin.com/wp/category/arci/harlequin

Confetti Skin, Beauty Within. Navigating life with ichthyosis. What’s a Gene? Genetic Mutations Video Explanation. Confetti Skin, Beauty Within. Is our blog about ichthyosis. And its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2". Read more about us and this blog. Here's our summary of our best and most important posts of 2012. 2014 Ichthyosis Conference An Update from Dr. Choate. 2014 Ichthyosis Conference: Day 1. Malawi med...

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Free Aquaphor for patients with ichthyosis from Beiersdorf « Confetti Skin, Beauty Within

http://confettiskin.com/wp/free-aquaphor-program

Confetti Skin, Beauty Within. Navigating life with ichthyosis. What’s a Gene? Genetic Mutations Video Explanation. Confetti Skin, Beauty Within. Is our blog about ichthyosis. And its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2". Read more about us and this blog. Here's our summary of our best and most important posts of 2012. 2014 Ichthyosis Conference An Update from Dr. Choate. 2014 Ichthyosis Conference: Day 1. Even with ...

confettiskin.com

Genetics « Confetti Skin, Beauty Within

http://confettiskin.com/wp/category/genetics

Confetti Skin, Beauty Within. Navigating life with ichthyosis. What’s a Gene? Genetic Mutations Video Explanation. Confetti Skin, Beauty Within. Is our blog about ichthyosis. And its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2". Read more about us and this blog. Here's our summary of our best and most important posts of 2012. 2014 Ichthyosis Conference An Update from Dr. Choate. 2014 Ichthyosis Conference: Day 1. When she a...

confettiskin.com

Genetics Part 5: Dominant Inheritance « Confetti Skin, Beauty Within

http://confettiskin.com/wp/2013/08/20/dominant-inheritance

Confetti Skin, Beauty Within. Navigating life with ichthyosis. What’s a Gene? Genetic Mutations Video Explanation. Confetti Skin, Beauty Within. Is our blog about ichthyosis. And its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2". Read more about us and this blog. Here's our summary of our best and most important posts of 2012. 2014 Ichthyosis Conference An Update from Dr. Choate. 2014 Ichthyosis Conference: Day 1. We set up ...

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Living with Lamellar Ichthyosis

Living with Lamellar Ichthyosis. Wednesday, December 9, 2009. More about collodion babies and Lamellar Ichthyosis. One little boy down for his nap so we will continue! A couple more things about collodion babies before I go onto Lamellar Ichthyosis. Broviac line went in fine, no problem with the skin! No anaesthetic at at all.done over again, I would have insisted but I didn't really know what was going to happen as I was clueless about a lot of this. When Brandyn's membrane shed, there was no scaling at...

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