mcadd.be
Medium-chain acyl-coenzyme A dehydrogenase deficiencyAlles over MCAD deficientie
http://www.mcadd.be/
Alles over MCAD deficientie
http://www.mcadd.be/
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Medium-chain acyl-coenzyme A dehydrogenase deficiency | mcadd.be Reviews
https://mcadd.be
Alles over MCAD deficientie
mcadd.be
Medium-chain acyl-coenzyme A dehydrogenase deficientie - home
http://www.mcadd.be/NL/home.html
Opzet van deze website. Medium-chain acyl-coenzyme A dehydrogenase deficiëntie of MCAD deficiëntie is een aangeboren stofwisselingsziekte waarbij de patiënt een probleem heeft met de verbranding van vetten. Deze aandoening is zeldzaam en relatief onbekend bij hulpverleners die zich niet specialiseerden in stofwisselingsziekten. De bedoeling is om het resultaat van dat opzoekingswerk te delen met andere (ouders van) patiënten met MCAD deficiëntie omdat die misschien met dezelfde vragen zitten. Om de ident...
Medium-chain acyl-coenzyme A dehydrogenase deficiency - home
http://www.mcadd.be/EN/home.html
Purpose of this website. Medium-chain acyl-coenzyme A dehydrogenase deficiency or MCAD deficiency is an inherited metabolic disorder where the patient has a problem with breaking down fat. The disorder is rare and relatively unknown amongst care takers who are not specialized in metabolic disorders. The purpose of this website is to share the results of this research with other patients with MCAD deficiency and their parents because they may have the same questions and the same need for information.
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MCADD - MCAD-defekt
http://www.mcadd.dk/links
MCADD-foreningen - www.mcadd.dk. Hvordan behandler man MCADD? Vi lever (fint) med MCADD. Folderen fra diætisterne Mad til MCADD-patienter. Generel vejledning for behandling af MCADD-børn. Folderen Information om sygdommen MCADD. Vejledning til behandling af MCADD på engelsk. Vejledning til behandling af MCADD-børn på hospitaler på engelsk. Allan Meldgaard Lunds oplæg fra årsmødet 2013. Allan Meldgaard Lunds oplæg fra årsmødet 2010. Inkl alternative forslag til akutregime. Fra årsmødet 2013. De før...
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MCADD Climb Support Group
Jump to Content [AccessKey 'c']. Jump to Navigation [AccessKey 'n']. Supporting families, Changing lives. Helpline: 0800 652 3181. Regretfully the recommendation by Climb and many other organisations to include Long Chain 3 Hydroxyacyl CoA Dehydrogenase Deficiency (LCHADD) was not supported. Climb is pleased to be providing training materials to Midwives, Health Visitors and Screening Co-ordinators on MCADD and the new disorders recently added to the Newborn Screening Programme. MCADD Presentations avail...
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Medium-chain acyl-coenzyme A dehydrogenase deficiency
Medium-chain acyl-coenzyme A dehydrogenase deficiency. Ga verder in het Nederlands. Voulez-vous m'aider à traduire cette.
MCADD - MCAD-defekt
MCADD-foreningen - www.mcadd.dk. Hvordan behandler man MCADD? Vi lever (fint) med MCADD. Velkommen til MCADD-foreningens hjemmeside. Til alle, der selv har MCADD eller har MCADD i familien. Her på hjemmesiden kan du læse mere om MCADD - og ikke mindst om MCADD-foreningen i Danmark. Vi håber, det kan forklare og afdramatisere, hvad MCADD er for en størrelse - især hvis I lige har fået diagnosen i jeres familie. Ring eller skriv, hvis I vil tale med andre MCADD-familier. MCADD - kort fortalt. Alle bø...
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MCADD UK Support
MCADD forum
16 augustus 2015, 17:21:34. Login met gebruikersnaam, wachtwoord en sessielengte. 23 november 2014, 13:34:29). Midden-keten Acyl-CoA Dehydrogenase Deficiëntie. Is een van de meest voorkomende stofwisselingsziekten, ongeveer 1 op 12000 levendgeborenen lijdt er aan. In het forum vind je meer informatie over deze aandoening. Deze website is bedoeld om informatie te delen onder lotgenoten / betrokkenen / ouders / geïnteresseerden enz. Dus medische vragen met betrekking tot medicatie of urgente vragen kun je ...
