ellas-corner.blogspot.com
Ella's Corner: Ella's Hip Surgery Update (7-10-15)
http://ellas-corner.blogspot.com/2015/07/ellas-hip-surgery-update-7-10-15.html
Friday, July 10, 2015. Ella's Hip Surgery Update (7-10-15). She was wheeled away to surgery in silence. She didn't bat an eyelash as they took her away. Mom and Dad, on the other hand, fought back the tears and tried to quell the butterflies in their stomachs. How did her respiratory system hold up? Was extubation successful or was she still intubated? How was our Squishy? We found a stuffed giraffe that we knew Ella would love and headed back up to the OR floor. Shortly after, Ella's surgeon brought...
ellas-corner.blogspot.com
Ella's Corner: Helping Hands
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Here you will find three ways that you can support Ella and/or SMA research. Donate to Cure SMA. Formerly Families of Spinal Muscular Atrophy) to help them in their research efforts. To help them in their research efforts. Donate directly to Ella Casten. To help her with her immediate and long-term needs. Subscribe to: Posts (Atom). Summer 2016 Tutoring with Casten's Key to Learning. Click the key to visit Casten's Key to Learning's Website. Help with Ella's Daily Expenses! Check Around Ella's Corner.
ellas-corner.blogspot.com
Ella's Corner: October 2011
http://ellas-corner.blogspot.com/2011_10_01_archive.html
Monday, October 31, 2011. I've Noticed.(by Michael). Two-and-a-half months ago Ella was diagnosed with Spinal Muscular Atrophy Type 2. So much has happened since that day. I've noticed much in the past two-and-a-half months- more so in the past week. Ella has regressed physically yet has progressed mentally. She fights her SMA by being smarter than it is. She finds ways to do what she wants and if she cannot- she finds ways to get the help she needs. We will have to move for her, with her. Technology...
ellas-corner.blogspot.com
Ella's Corner: Simply Asking...(by Michael & Lindsay)
http://ellas-corner.blogspot.com/2015/07/simply-askingby-michael-lindsay.html
Sunday, July 5, 2015. Simply Asking.(by Michael and Lindsay). Surgery is set for Thursday, July 9, 2015. As this is written it is Sunday, July 5, 2015. We've worked out plans for Ava, Henry and Sasa. We're still working on Doublestuff (the cat.that should be no problem, though). While pride often hinders us in asking for help we know we must set it aside for now and simply ask. Sunday, July 05, 2015. July 6, 2015 at 1:36 AM. Please could you post the address to which we can send Ella a card? You can be n...
ellas-corner.blogspot.com
Ella's Corner: August 2011
http://ellas-corner.blogspot.com/2011_08_01_archive.html
Monday, August 29, 2011. A Look in the Eyes.(by Michael). I walked into my sister-in-law's pre-wedding gathering with Henry and Ella in tow. Lindsay and Ava were part of the wedding party and were already there. The planning done by so many, the preparations all set for the day, and the gathering of family and friends would soon begin.with it bringing many people together after long stretches of time. I would say that if no one said a word to me about Ella, SMA, or how our family is doing, I could have s...
ellas-corner.blogspot.com
Ella's Corner: December 2011
http://ellas-corner.blogspot.com/2011_12_01_archive.html
Saturday, December 31, 2011. There could be a lot said for the past year, 2011. There could also be a lot not. Said Looking back over the year in review I cannot help but sit back, take a deep breath, and sigh. I sigh for lives lost and for precious lives gifted to us. I sigh for dreams lost and for depth of soul gained. I sigh for arguments waged and for forgiveness expressed. I sigh for seemingly endless moments of fear and for comforts found in an embrace. I sigh for the darkness that covers our minds...
ellas-corner.blogspot.com
Ella's Corner: Three...(by Michael & Lindsay)
http://ellas-corner.blogspot.com/2015/07/threeby-michael-lindsay.html
Monday, July 27, 2015. Three(by Michael and Lindsay). Three more weeks that Ella has to stay lying flat, 100% of the time, with her brace on most of the time. And while were were not surprised by the cracked bone we were surprised that she must remain in the same position for three more weeks that she's been in for two weeks already. Surprised and feeling low. And poor Ella.it is difficult for her to sleep and she keeps getting pumped full of narcotics to battle the pain. Her screams are deafenin...So ou...
ellas-corner.blogspot.com
Ella's Corner: Hannah's Help...(by Michael)
http://ellas-corner.blogspot.com/2015/06/hannahs-helpby-michael.html
Thursday, June 25, 2015. Hannah's Help.(by Michael). One is just leaving elementary school; the other is just entering. One is a big sister; the other is a little sister. One fights to help find treatments or a cure for SMA; the other fights to survive the effects of SMA. Yet they really don't know one another. Until just recently. Not only was this an act of extreme kindness, selflessness, and love, it came at a time that found Ella's bank account nearly at 'zero'. The expense required to care for E...
ellas-corner.blogspot.com
Ella's Corner: Hip-Hip-Not Hooray...(by Michael & Lindsay)
http://ellas-corner.blogspot.com/2015/06/hip-hip-not-hoorayby-michael-lindsay.html
Thursday, June 11, 2015. Hip-Hip-Not Hooray.(by Michael and Lindsay). One of the criteria for the diagnosis of SMA Type 2 is that the patient has reached the milestone of sitting unassisted. Ella fits that criteria well. In fact, almost her entire day is spent sitting, either independently or strapped in a wheelchair. If Ella's hips go untreated they will continue to dislocate; producing a pronounced pelvic tilt, contributing to scoliosis, and causing pain.much pain. Not to mention thwarting her ...Not o...
ellas-corner.blogspot.com
Ella's Corner: Her Story Leading to the SMA Diagnosis
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Her Story Leading to the SMA Diagnosis. A compilation of blog posts from the summer of 2011. The first is the blog of her birth and the remaining are blog posts leading up to her diagnosis of SMA Type 2. She'll melt every heart she meets. Ella Sabine Casten, born on June 10, 2010. Lindsay went into labor on June 10th in the wee hours of the morning. We called Carrie and she was on her way. In the meantime, Lindsay began to really feel the pains of labor. we decided to go for a walk. Up to thi...Carrie ar...
