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Ruby Valentine

Wednesday, July 2, 2014. I got to cuddle this little bug this morning as we waited to meet all the Dr.'s for surgery. It always kills me to send her back with the nurse just as she's so happy and doing well. I just want to run away, and say "we changed our mind! Tuesday, June 24, 2014. 1 week until surgery. Levels of Laryngeal Clefts. Everyday stuff is miniscule compared to what she has to go through in the hospital. Why cry about it? She teaches us so much. I said I was so thankful, and she informed me ...

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Ruby Valentine | meetrubyv.blogspot.com Reviews

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Wednesday, July 2, 2014. I got to cuddle this little bug this morning as we waited to meet all the Dr.'s for surgery. It always kills me to send her back with the nurse just as she's so happy and doing well. I just want to run away, and say we changed our mind! Tuesday, June 24, 2014. 1 week until surgery. Levels of Laryngeal Clefts. Everyday stuff is miniscule compared to what she has to go through in the hospital. Why cry about it? She teaches us so much. I said I was so thankful, and she informed me ...

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Ruby Valentine | meetrubyv.blogspot.com Reviews

https://meetrubyv.blogspot.com

Wednesday, July 2, 2014. I got to cuddle this little bug this morning as we waited to meet all the Dr.'s for surgery. It always kills me to send her back with the nurse just as she's so happy and doing well. I just want to run away, and say "we changed our mind! Tuesday, June 24, 2014. 1 week until surgery. Levels of Laryngeal Clefts. Everyday stuff is miniscule compared to what she has to go through in the hospital. Why cry about it? She teaches us so much. I said I was so thankful, and she informed me ...

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meetrubyv.blogspot.com

1

Ruby Valentine: April 2014

http://www.meetrubyv.blogspot.com/2014_04_01_archive.html

Friday, April 25, 2014. It looks like we'll be getting out of the hospital soon.it's looking like tomorrow (fingers crossed). Ruby has held her o2 level and progressed so amazingly well this last week. I have had a few nurses/residents come check on her and they are all so amazed at her progression. Such a blessing. I can't express how grateful we are for the prayers and well wishes. We know they make a difference! I know I say it over and over again, but it's true. But as my Dad reminded me.3 weeks ...

2

Ruby Valentine: September 2013

http://www.meetrubyv.blogspot.com/2013_09_01_archive.html

Sunday, September 22, 2013. 2 days post op. I can't believe how well Ruby did after surgery. She stayed off of oxygen and went right to sleeping on her tummy again. I was shocked. We even got back to bolus feeds in the hospital, which I wasn't planning on, so that has Been an even better transition. As soon as we put her in her own bed, she immediately relaxed as if an, "I'm home! Was going to come out of her mouth. It's so great to see her sweet little face without tubes being taped to her cheeks! She s...

3

Ruby Valentine: February 2014

http://www.meetrubyv.blogspot.com/2014_02_01_archive.html

Thursday, February 20, 2014. So because she basically has acid coming up into her throat all the time, the last two stitch repairs on her laryngeal cleft. Have not taken because the acid was probably eating away the sutures. Sad! Sad that we tried and tried and put her through the surgery and it was inevitably going to fail. So now we need to get the acid under control so we can schedule another stitch repair.which means 24 hour feeds (G-tube), 24 hour feeds ( GJ-tube. And there is a Dr. in New York ...

4

Ruby Valentine: August 2013

http://www.meetrubyv.blogspot.com/2013_08_01_archive.html

Monday, August 26, 2013. It's 3 am and I sit here holding my sweet Ruby as she tries so desperately to take a breath without following it up with a cough at the end. I am balancing holding in her pacifier and the blow by oxygen mask so she'll calm down. It's Monday morning and I should be driving carpool this week, but instead I sit here in my recliner/bed that I have had for almost a week now. I can't help but wonder what happened? Friday, August 23, 2013. I ended up taking Ruby to the PCH ER on Tuesday...

5

Ruby Valentine: March 2014

http://www.meetrubyv.blogspot.com/2014_03_01_archive.html

Friday, March 21, 2014. Surgery Thursday went really well. Ruby bounced back and she's already opening her eye more.as if it was uncomfortable because the shunt was irritating. Poor thing. It's so hard to find things out that are going on and only to realize that, "well, duh, that's why she wasn't opening her eye very much! I am hopeful. I am scared if I go back and have him say the words referring us away, but it'll all be ok. And I have comfort in me knowing that. Labels: Shunt revision follow up.

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This Little Miggy Stayed Home: Special Needs Spotlight || Ruby

http://www.thislittlemiggy.com/2015/07/special-needs-spotlight-ruby.html

Friday, July 31, 2015. Special Needs Spotlight Ruby. Nathan and I were married in 2005 and we wanted kids right away. I was 26 and wanted to be a young mom! So our 4 kids are all 2ish years apart. Landon is almost 9, Olivia is 7, Henry is 4 and Ruby is 2. We never expected in that planning to have a child with special needs! Talk about a surprise and talk about busy! You can check out our blog. That hasn't been updated in a LONG while). Or follow along on my Instagram account, cferb,that I update. And le...

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Ruby Valentine

Wednesday, July 2, 2014. I got to cuddle this little bug this morning as we waited to meet all the Dr.'s for surgery. It always kills me to send her back with the nurse just as she's so happy and doing well. I just want to run away, and say "we changed our mind! Tuesday, June 24, 2014. 1 week until surgery. Levels of Laryngeal Clefts. Everyday stuff is miniscule compared to what she has to go through in the hospital. Why cry about it? She teaches us so much. I said I was so thankful, and she informed me ...

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