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Sophie's WebsiteThis is Sophie's Diary, she was diagnosed with Hurlers Disease in April 2003.
http://melroseroad.co.uk/
This is Sophie's Diary, she was diagnosed with Hurlers Disease in April 2003.
http://melroseroad.co.uk/
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Sophie's Website | melroseroad.co.uk Reviews
https://melroseroad.co.uk
This is Sophie's Diary, she was diagnosed with Hurlers Disease in April 2003.
Forever Mighty Max: August 2003
http://mighty-max.blogspot.com/2003_08_01_archive.html
Born in July of 2002, our son Max was soon diagnosed with Hurler Syndrome, a rare genetic disorder. Our beautiful boy passed away from complications with a stem cell transplant in November of 2003. This site's purpose is to update our family and friends on our progress of grief. And the continued celebration of the memory of our courageous son. Sunday, August 31, 2003. Day 16, 17. Sunday, August 31. Keep rooting for our guy! Posted by Mike Ciacciarelli. Links to this post. Saturday, August 30, 2003.
Mighty-Max: Friends with Hurlers
http://www.mighty-max.com/friends.html
How Can I Help? Tommy and Kaitlyn Ries. Anthony Cimarrusti (Tony the Tigre).
Forever Mighty Max: October 2003
http://mighty-max.blogspot.com/2003_10_01_archive.html
Born in July of 2002, our son Max was soon diagnosed with Hurler Syndrome, a rare genetic disorder. Our beautiful boy passed away from complications with a stem cell transplant in November of 2003. This site's purpose is to update our family and friends on our progress of grief. And the continued celebration of the memory of our courageous son. Friday, October 31, 2003. Day 78 - Happy Halloween! Posted by Mike Ciacciarelli. Links to this post. Thursday, October 30, 2003. Please think about Max's little b...
missmollyb.com - Friends with Hurler Syndrome
http://www.missmollyb.com/hurlerlinks.html
Friends With Hurler Syndrome. Molly has made lots of little friends who share similar struggles in their plight against Hurler Syndrome. Please visit their websites, by clicking on the pictures below, and keep them in your prayers. Parents of Hurler kiddos: please email. Us a jpeg picture of your child and a website address to link to. We'll gladly place additions to Molly's Hurler friends! No website available at this time). No website available at this time). No website available at this time).
Forever Mighty Max: June 2003
http://mighty-max.blogspot.com/2003_06_01_archive.html
Born in July of 2002, our son Max was soon diagnosed with Hurler Syndrome, a rare genetic disorder. Our beautiful boy passed away from complications with a stem cell transplant in November of 2003. This site's purpose is to update our family and friends on our progress of grief. And the continued celebration of the memory of our courageous son. Monday, June 30, 2003. We've decided on Minnesota. 3 On a less significant note, MN is closer to home, making it easier for travel and for people to visit us.
Forever Mighty Max: September 2003
http://mighty-max.blogspot.com/2003_09_01_archive.html
Born in July of 2002, our son Max was soon diagnosed with Hurler Syndrome, a rare genetic disorder. Our beautiful boy passed away from complications with a stem cell transplant in November of 2003. This site's purpose is to update our family and friends on our progress of grief. And the continued celebration of the memory of our courageous son. Tuesday, September 30, 2003. Thanks for reading this far, and thanks for supporting us. Posted by Mike Ciacciarelli. Links to this post. Sunday, September 28, 2003.
Forever Mighty Max: July 2003
http://mighty-max.blogspot.com/2003_07_01_archive.html
Born in July of 2002, our son Max was soon diagnosed with Hurler Syndrome, a rare genetic disorder. Our beautiful boy passed away from complications with a stem cell transplant in November of 2003. This site's purpose is to update our family and friends on our progress of grief. And the continued celebration of the memory of our courageous son. Thursday, July 31, 2003. Posted by Mike Ciacciarelli. Links to this post. Wednesday, July 30, 2003. Please pray for Grace's new friend Kendall who was admitted to...
Forever Mighty Max: May 2003
http://mighty-max.blogspot.com/2003_05_01_archive.html
Born in July of 2002, our son Max was soon diagnosed with Hurler Syndrome, a rare genetic disorder. Our beautiful boy passed away from complications with a stem cell transplant in November of 2003. This site's purpose is to update our family and friends on our progress of grief. And the continued celebration of the memory of our courageous son. Wednesday, May 21, 2003. Dear Max Fans,. Less severe forms of Hurlers Syndrome, whose intelligence is not as affected. 1 Grace is a donor match (and does not have...
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