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Bread of Life: What is Prader-Willi Syndrome?
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Then Jesus declared, “I am the bread of life. Whoever comes to me will never go hungry, and whoever believes in me will never be thirsty." John 6:35. Our Story, Our Gift. What is Prader-Willi Syndrome? What is Prader-Willi Syndrome? From the National Institute of Child Health and Human Development: http:/ www.nichd.nih.gov/health/topics/Prader Willi Syndrome.cfm. What is Prader-Willi syndrome? What are the symptoms of Prader-Willi syndrome? Stage 1- As newborns, babies with Prader-Willi can have low musc...
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Bread of Life: Disclosure
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Then Jesus declared, “I am the bread of life. Whoever comes to me will never go hungry, and whoever believes in me will never be thirsty." John 6:35. Our Story, Our Gift. What is Prader-Willi Syndrome? This policy is valid from 21 April 2012. This blog does not contain any content which might present a conflict of interest. To get your own policy, go to http:/ www.disclosurepolicy.org. Subscribe to: Posts (Atom). Amazing Adventures of Ayden Jane. Diving Into the Waves. She will amaze you. Happy First Bir...
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Bread of Life: June 2012
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Then Jesus declared, “I am the bread of life. Whoever comes to me will never go hungry, and whoever believes in me will never be thirsty." John 6:35. Our Story, Our Gift. What is Prader-Willi Syndrome? Saturday, June 2, 2012. And we know that in all things God works for the good of those who love Him.even Pitocin. I’m thinking.not so much. So easy, lemon squeezy. I ordained this. You may not understand it, but I do. And I am in control of it so you need not fear.”. It was simply amazing to think that the...
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Bread of Life: May 2012
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Then Jesus declared, “I am the bread of life. Whoever comes to me will never go hungry, and whoever believes in me will never be thirsty." John 6:35. Our Story, Our Gift. What is Prader-Willi Syndrome? Tuesday, May 29, 2012. Riding the Roller Coaster. Well, its been a couple of weeks since I last posted and after this post, I think you’ll understand why. Since writing last, we have ticked the following off of our “to do” list:. 1 Visited Aerin’s pulmonologist and gastroenterologist in Orlando. Admittedly...
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Bread of Life: Rock 'n Roll
http://breadoflifealvarado.blogspot.com/2012/08/rock-n-roll.html
Then Jesus declared, “I am the bread of life. Whoever comes to me will never go hungry, and whoever believes in me will never be thirsty." John 6:35. Our Story, Our Gift. What is Prader-Willi Syndrome? Wednesday, August 15, 2012. And the PT who wrote it was able to describe it within the context of us regular-toned folks:. It's just so very hard not to compare her to other sweet babies and, at those times, the discouragement is so very tangible it hurts. Will help give Aerin more proprioceptive feedback ...
breadoflifealvarado.blogspot.com
Bread of Life: Sweet Sounds
http://breadoflifealvarado.blogspot.com/2012/08/strength-for-day.html
Then Jesus declared, “I am the bread of life. Whoever comes to me will never go hungry, and whoever believes in me will never be thirsty." John 6:35. Our Story, Our Gift. What is Prader-Willi Syndrome? Thursday, August 30, 2012. We talked about starting solids soon (ack! Speech delays are a common issue in PWS. Many children develop speech apraxia and remain nonverbal for a long time. It is another hurdle that we face, not knowing if it will affect Aerin or how severe it might be. It brought tears to my ...
breadoflifealvarado.blogspot.com
Bread of Life: October 2012
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Then Jesus declared, “I am the bread of life. Whoever comes to me will never go hungry, and whoever believes in me will never be thirsty." John 6:35. Our Story, Our Gift. What is Prader-Willi Syndrome? Wednesday, October 17, 2012. I have sat down to write an update several times and each time I have had to abandon my mission for some pressing matter or another. Well, today I am determined to get something up on this blog! After the second miscarriage, I came across the book One Thousand Gifts. I am a ful...
breadoflifealvarado.blogspot.com
Bread of Life: Black Friday
http://breadoflifealvarado.blogspot.com/2012/11/black-friday.html
Then Jesus declared, “I am the bread of life. Whoever comes to me will never go hungry, and whoever believes in me will never be thirsty." John 6:35. Our Story, Our Gift. What is Prader-Willi Syndrome? Friday, November 23, 2012. I had it in my mind to write up this great post on how Thanksgiving came and served to reinforce the sense of gratitude that has bloomed (sometimes through disciplined care) in the face of this hardship. But it just didn't happen that way. It just hurt so much. Only the Good Stuf...
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Bread of Life: April 2012
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Then Jesus declared, “I am the bread of life. Whoever comes to me will never go hungry, and whoever believes in me will never be thirsty." John 6:35. Our Story, Our Gift. What is Prader-Willi Syndrome? Thursday, April 26, 2012. I was reading over yesterday's post and marveling at how excited we were over 27 mls. I mean, think about it. 27 milliliters. It's not even an ounce! And then I read this, posted by fellow PWS mom Ali, on her blog Diving Into the Waves. Our kids are freaking champions. Yesterday w...
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