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Mikayla Love's Blog | My Daughter's Journey

Please enjoy the music by clicking on the play button below. Angels by Jessica Simpson   MIKAYLA'S STORY Mikayla Love was born on April 1, 2008. Mikayla was born at 36 weeks.  A Healthy, Beautiful little girl. A twin to her brother Michael Christopher. One of the happiest days of my life. I say that because…

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Mikayla Love's Blog | My Daughter's Journey | mikaylalove.wordpress.com Reviews
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Please enjoy the music by clicking on the play button below. Angels by Jessica Simpson   MIKAYLA'S STORY Mikayla Love was born on April 1, 2008. Mikayla was born at 36 weeks.  A Healthy, Beautiful little girl. A twin to her brother Michael Christopher. One of the happiest days of my life. I say that because…
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Mikayla Love's Blog | My Daughter's Journey | mikaylalove.wordpress.com Reviews

https://mikaylalove.wordpress.com

Please enjoy the music by clicking on the play button below. Angels by Jessica Simpson   MIKAYLA'S STORY Mikayla Love was born on April 1, 2008. Mikayla was born at 36 weeks.  A Healthy, Beautiful little girl. A twin to her brother Michael Christopher. One of the happiest days of my life. I say that because…

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103.5 KTU interview 10.27.09 | Mikayla Love's Blog

https://mikaylalove.wordpress.com/2009/10/28/103-5-ktu-interview-10-27-09

Mikayla Love's Blog. My Daughter's Journey. 1035 KTU interview 10.27.09. October 28, 2009. The kids did well considering we were there a few hours. We are so grateful to have been on KTU to speak about awareness and Mikaylas Benefit at Vanity Fare on December 6, 2009. I will keep you all posted as to when it will air. I am excited myself to hear it. Thank You again Cindy Vero! Entry Filed under: Uncategorized. Appt with Dr Staffenberg Sept 29 2009. Mikaylas Benefit at Vanity Fare →. The month of December.

2

Mikayla’s Story – OC Gazette 10/2/09 | Mikayla Love's Blog

https://mikaylalove.wordpress.com/2009/11/04/mikaylas-story-oc-gazette-10209

Mikayla Love's Blog. My Daughter's Journey. Mikayla’s Story – OC Gazette 10/2/09. November 4, 2009. Please click on story and it will open up in another window, where you can make the story larger by then again, clicking on the story! Entry Filed under: Uncategorized. Mikaylas Benefit at Vanity Fare. Mikaylas Bracelets →. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). Notify me of new comments via email.

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Dr Staffenberg calls | Mikayla Love's Blog

https://mikaylalove.wordpress.com/2009/09/24/dr-staffenberg-calls

Mikayla Love's Blog. My Daughter's Journey. September 24, 2009. I would like to share this with you. It was very touching for us . When we were at the Gala, we didn’t have the opportunity to meet Dr Staffenberg personally. We wanted to ask him if these lumps and bumps were normal since we are nervous as to how her head is taking on this whole new shape with these screws and plates popping up. The night ended way too soon. Entry Filed under: Uncategorized. Follow up with Dr Bartlett Sept 15 2009. He calle...

4

January | 2010 | Mikayla Love's Blog

https://mikaylalove.wordpress.com/2010/01

Mikayla Love's Blog. My Daughter's Journey. Archive for January 2010. Well what can I saw. It’s here and so far it started off good. Mikayla had a great report at Dr Turtell’s Office who is the Eye Dr who suggested we go to Chops. I thanked him Graciously for saving my daughters life literally. Had we not have gone to him she would have been still not treated for Craniosynostosis. That’s my Princess! January 28, 2010. The month of December. Back in November we met with our Mayor here in Toms River. M...

5

Photo Album – August 2009 | Mikayla Love's Blog

https://mikaylalove.wordpress.com/mikayla-loves-journey-of-craniosynostosis/photo-album-august-2009

Mikayla Love's Blog. My Daughter's Journey. Photo Album – August 2009. Mikayla the pirate 8/8/09. Chuck E. Cheese 8/12/09. 2 Comments Add your own. September 2, 2009 at 9:40 pm. Aunt Tara Loves You princess! June 23, 2011 at 2:38 pm. Hi, please give my love to your princess, she is beautiful and what a star! Much love Anna xxx. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). Notify me of new comments via email. Mikay...

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Sanity: 06.2008

http://coletwins.blogspot.com/2008_06_01_archive.html

All of these line across my face Tell you the story of who I am So many stories of where Ive been And how I got to where I am. B.C. Kaci King - life with 2 children who have Cranio and Chiari. September 20th, 2008. Here we go AGAIN. My scary, crazy, emotional, exciting week. Nearing the $600.00 mark. Here is a note from Debi -. Also, just an update on Carson. I was able to hunt down a local Neuro surgeon and he agreed to meet us here in the ER. Links to this post. Nearing the $600.00 mark. IF, you are in...

coletwins.blogspot.com coletwins.blogspot.com

Sanity: 03.2009

http://coletwins.blogspot.com/2009_03_01_archive.html

All of these line across my face Tell you the story of who I am So many stories of where Ive been And how I got to where I am. B.C. Kaci King - life with 2 children who have Cranio and Chiari. Tomorrow, my little friend Gabby. Will be in surgery for her craniosynostosis. Please keep her and her family in your prayers. Please say a little prayer for Dr. Jensen as well. Please keep her in your prayers on Friday. Dr. Lyons too, please. Links to this post. Just thought I would post an update. Of course we do!

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Sanity: 08.2008

http://coletwins.blogspot.com/2008_08_01_archive.html

All of these line across my face Tell you the story of who I am So many stories of where Ive been And how I got to where I am. B.C. Kaci King - life with 2 children who have Cranio and Chiari. And we are off! It even followed us out East! Its a DIFFERENT Green. Did you catch it? That never happened to me. The saddest thing Ive ever seen. Today is surgery day for Carson. She is in as we speak. I will not be posting her progress here. If you care to check in on her, got to. Please keep her in your prayers.

coletwins.blogspot.com coletwins.blogspot.com

Sanity: 07.2008

http://coletwins.blogspot.com/2008_07_01_archive.html

All of these line across my face Tell you the story of who I am So many stories of where Ive been And how I got to where I am. B.C. Kaci King - life with 2 children who have Cranio and Chiari. Are you FLIPPING kidding me? Gain weight, Lose weight, REPEAT. Our 4th of July. Tough enough to wear PINK? Update on HELL week. 6397 miles later - Were Home! Two years and sixteen days later. Lets throw some OIL on the FIRE. Let's throw some OIL on the FIRE. She has been diagnosied with. Treatment for pseudotumor c...

coletwins.blogspot.com coletwins.blogspot.com

Sanity: 03.2008

http://coletwins.blogspot.com/2008_03_01_archive.html

All of these line across my face Tell you the story of who I am So many stories of where Ive been And how I got to where I am. B.C. Kaci King - life with 2 children who have Cranio and Chiari. Add a little bounce to your day. A sad day in Wisconsin. A cause for a cure. Rileys Sponge bob meeting. Im such a bad friend. Chiari coming out of the wood work. Just a few things. Tom would be so proud! Happy friggin St. Pattys day! Laying on the bottom of the pool looking up. Chiari bracelet making party. Riley w...

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Sanity: 04.2008

http://coletwins.blogspot.com/2008_04_01_archive.html

All of these line across my face Tell you the story of who I am So many stories of where Ive been And how I got to where I am. B.C. Kaci King - life with 2 children who have Cranio and Chiari. 1 week from today. Add another one to the list. 1 foot in front of the other. Happy 34th Birthday to me. Oh what to do. Chiari l: Imagining A Patient's View. We all have them. I’m getting dizzy. Don’t be absurd. I’m staying home. Too tired to go. Go see your doctor. You must be stressed. And get some rest. I came a...

coletwins.blogspot.com coletwins.blogspot.com

Sanity: 02.2008

http://coletwins.blogspot.com/2008_02_01_archive.html

All of these line across my face Tell you the story of who I am So many stories of where Ive been And how I got to where I am. B.C. Kaci King - life with 2 children who have Cranio and Chiari. A change of pace. A turn for the better and to blog or not to blog. STOP this rollercoaster, I NEED to get off! Birth to 3 saves the day! Each day, a day closer. A little somthing to help me through. Blog a girlfriend for 30 days. A great start to a shitty day. The night before, the night before. Update # 1 -1:30.

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Sanity: 12.2008

http://coletwins.blogspot.com/2008_12_01_archive.html

All of these line across my face Tell you the story of who I am So many stories of where Ive been And how I got to where I am. B.C. Kaci King - life with 2 children who have Cranio and Chiari. Alas, Children updates. Weigh in Wednesday and other news. Weigh in Wednesday and stuff. Posting from Comer Hospital. Chicago bears at Comer. Yesterday I tried taking everyone to the lake for a bit of a change. We packed up all of our snow gear and headed West. When we got there it was SO. Links to this post. We ar...

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Sanity: 01.2008

http://coletwins.blogspot.com/2008_01_01_archive.html

All of these line across my face Tell you the story of who I am So many stories of where Ive been And how I got to where I am. B.C. Kaci King - life with 2 children who have Cranio and Chiari. Their leaving on a jet plane. My favorite time of the day. Quest to cure chiari. A little ME time. Oh what to do. Packers 42, Seahawks 20. A short road to the Superbowl! Strike 2 and 3? Livin in the windy city. Happy Birthday to you! Happy 2 year blogiversary. Only because people are tired of hearing, Nope, . Thank...

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Sanity: 10.2007

http://coletwins.blogspot.com/2007_10_01_archive.html

All of these line across my face Tell you the story of who I am So many stories of where Ive been And how I got to where I am. B.C. Kaci King - life with 2 children who have Cranio and Chiari. Out with the old, and in with the new. Since when do they get to decided whats best for . Just what a mother of 4 DOESNT need. On my death bed and barely surviving. I finally got a call today! Hi Ho Hi ho its off to Indiana we go. Hi Ho Hi ho it's off to Indiana we go. Because he had to work on Thursday! Which was ...

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My Corner: Do I have Asperger’s Syndrome? Update #3… In Conclusion! Ok, so I know I’ve been on hiatus for the past few weeks and that I feel rather bad about. However, I do have reasons for my absence! Frankly I just haven’t had much time or motivation to blog. Life gets in the way, you know how it is. Two weeks ago I went on an East Coast road trip (which I will talk about eventually, I promise! FB: Mikayla Larkey Art. October 17, 2014. Posted in My Corner. Update No. 2. Aren’t tests FUN? Then I wouldn&...

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Mikayla Love's Blog | My Daughter's Journey

Mikayla Love's Blog. My Daughter's Journey. Mikayla Love’s Journey of Craniosynostosis. Please enjoy the music by clicking on the play button below. Angels by Jessica Simpson. Https:/ mikaylalove.files.wordpress.com/2009/06/01-angels.mp3. Mikayla Love was born on April 1, 2008. Mikayla was born at 36 weeks. A Healthy, Beautiful little girl. I took Mikayla to my ENT Dr. Chu and asked the Dr. “What do you think”? He said yes, her nose is crooked but get her eyes checked first. So we took her to Dr....More ...

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