williamssyndromedad.blogspot.com
Williams Syndrome: Dad's Journey into the unknown: We are waiting, we are waiting...
http://williamssyndromedad.blogspot.com/2013/09/we-are-waiting-we-are-waiting.html
Williams Syndrome: Dad's Journey into the unknown. Thursday, September 12, 2013. We are waiting, we are waiting. Mostly in to theatre nearly 3 hours ago. We do not expect to see him inside another 4. We wait. The greatest fear I have is that the last thing E will know is me restraining him, while the mask is applied for the gas. My greatest hope is that he remembers the last words said to him while awake. "I love you" from his mum and "keep fighting bubba" from me. Most recently, the support of complete ...
williamssyndromedad.blogspot.com
Williams Syndrome: Dad's Journey into the unknown: May 2012
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Williams Syndrome: Dad's Journey into the unknown. Saturday, May 26, 2012. God Only Knows What I'd be Without You - a post about E's Mum. When E's mum and I got married I wanted the first dance to be to the Beach Boys "god only knows". I settled for the last dance and as an aside wore flop flops, something I swore I would do on my wedding day! The song makes me think more of her now than then - God only knows what I'd be without you. So, E's mum, the person who makes this dad's journey into the unknown a...
williamssyndromedad.blogspot.com
Williams Syndrome: Dad's Journey into the unknown: February 2012
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Williams Syndrome: Dad's Journey into the unknown. Wednesday, February 22, 2012. What if we had known? Due warning: this is not an easy post to write and is not likely to be an easy post to read - but its what's been in my head - so its coming out - it has taken me three weeks to get to this. This was brought up in my mind by one of the things I look at and it got me to thinking. It was the decision we came to the first time - and we didn't need to use it, so decision remained the same. E's condition has...
williamssyndromedad.blogspot.com
Williams Syndrome: Dad's Journey into the unknown: October 2011
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Williams Syndrome: Dad's Journey into the unknown. Sunday, October 9, 2011. Dark Days and Sleepless Nights. Yesterday marked 3 months since we were formally notified of Ethan's diagnosis. This has made me return to my blog which has been neglected a little - and makes me think i need to return to the original purpose for setting it up - to help me - to give me a vent. Be back more frequently in future. Subscribe to: Posts (Atom). Things i look at. Working Mum's Fight for Sanity. Chubby Chicks Run Too.
williamssyndromedad.blogspot.com
Williams Syndrome: Dad's Journey into the unknown: Williams Syndrome Basics
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Williams Syndrome: Dad's Journey into the unknown. Williams Syndrome is a rare genetic disorder which comes with a complex set of physical and mental challenges. more soon. Subscribe to: Posts (Atom). Things i look at. Working Mum's Fight for Sanity. Chubby Chicks Run Too. Williams Syndrome Foundation UK. Our Story - WS. Notes from the holler. Comradeship or lonely furrow. A day of mixed feelings. The unfamiliar side of the familiar and our medica. We are waiting, we are waiting. Never tell me the odds.
williamssyndromedad.blogspot.com
Williams Syndrome: Dad's Journey into the unknown: January 2013
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Williams Syndrome: Dad's Journey into the unknown. Tuesday, January 15, 2013. Episode 6: Return of the Williams Syndrome Dad. That time I really did take a long break. But, I'm back and hopefully will get back in to it. I've missed it if I'm honest, so I guess the experiment has some very non-scientific results. Moving house, the London Olympics, E's mum being made redundant and getting a new job, E's mum starting new job, finding new nanny and finally Christmas have really wiped out the back end of 2012.
williamssyndromedad.blogspot.com
Williams Syndrome: Dad's Journey into the unknown: "Never tell me the odds"
http://williamssyndromedad.blogspot.com/2013/09/tell-me-odds.html
Williams Syndrome: Dad's Journey into the unknown. Wednesday, September 11, 2013. Never tell me the odds. This post is going to be a departure from the norm for this as I feel I want to document the next few days. So I will be posting at least daily from today until E leaves hospital. So we reset the clock, we get C packed off with gaga (not lady) for the weekend and nanny looking after him before and after school. So it is with this, that this dad is off to navigate this particular asteroid field. Husba...
williamssyndromedad.blogspot.com
Williams Syndrome: Dad's Journey into the unknown: Comradeship or lonely furrow
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Williams Syndrome: Dad's Journey into the unknown. Monday, September 16, 2013. Comradeship or lonely furrow. It is amazing, sitting in a ward where everyone has there own problems, that people are sharing their stories. It is like the collective strength is greater than the some of its parts. In reality, no one has enough energy to actually help others beyond some very superficial aid. The true nature of the vent of this blog came home last night. While writing it, I fell asleep in the pull down bed&...
williamssyndromedad.blogspot.com
Williams Syndrome: Dad's Journey into the unknown: September 2011
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Williams Syndrome: Dad's Journey into the unknown. Monday, September 12, 2011. E's Dad is fundraising for Williams Syndrome Foundation. E's Dad fundraising for Williams Syndrome Foundation. Subscribe to: Posts (Atom). Things i look at. Working Mum's Fight for Sanity. Chubby Chicks Run Too. Williams Syndrome Foundation UK. Our Story - WS. Notes from the holler. Es Dad is fundraising for Williams Syndrome Found. Husband, Father to E and C, Triathlete. View my complete profile.
