oursweetsophie.blogspot.com
Our Sweet Sophie: December 2011
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Saturday, December 17, 2011. We are home. We actually got home late Thursday night. Sorry for the lack of timely updates. Sophie is doing well. She is getting stronger by the day. Sophie's Story by Elaine. Labels: Surgery.Take 2. Tuesday, December 13, 2011. She is doing Ah-May-Zing. What a difference a couple of days have made. Here's a picture just a few hours after surgery on Friday. Then she slept for the next 3 days. Looking so awake and alert after therapy. After therapy, these clowns came by. Now i...
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Our Sweet Sophie: Against All Odds
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Monday, December 09, 2013. I have the most ridiculous smile on my face. My world seems a bit lighter. I can now let go of the anticipation of this day, as it is now here. A day that did not seem possible. Today marks 2 years since Sophie's second round of brain surgeries. Two years. It's hard to believe. But to fully appreciate today, that. Day and so many other pivotal moments along this journey that lead us to today must be remembered. Then a few days after mailing the CD, I received a call saying they...
oursweetsophie.blogspot.com
Our Sweet Sophie: Home Sweet Home
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Saturday, December 17, 2011. We are home. We actually got home late Thursday night. Sorry for the lack of timely updates. Sophie is doing well. She is getting stronger by the day. Sophie's Story by Elaine. Labels: Surgery.Take 2. Love the picture. Happy holidays! Hope by the time the New year rolls around everyone feels like their old self again. Sun Dec 18, 08:05:00 AM CST. Oh, Elaine. It puts special meaning to home for the holidays, doesnt it? Sun Dec 18, 06:55:00 PM CST. Mon Dec 19, 06:04:00 AM CST.
oursweetsophie.blogspot.com
Our Sweet Sophie: October 2010
http://oursweetsophie.blogspot.com/2010_10_01_archive.html
Monday, October 25, 2010. I was decompressing somewhere in the house. Brandon was giving all the little kids a bath. Sophie was screaming her head off. Which is very UNusual for her. She loves bath time. She is constantly trying to find a way to take a bath or shower several times a day. But things have been off lately.ever since we started weaning the Dilantin. She immediately calmed down and smiled at me. So I asked her. Why were you crying. It was at the front door. It was at the front door. We met wi...
oursweetsophie.blogspot.com
Our Sweet Sophie: December 2013
http://oursweetsophie.blogspot.com/2013_12_01_archive.html
Monday, December 09, 2013. I have the most ridiculous smile on my face. My world seems a bit lighter. I can now let go of the anticipation of this day, as it is now here. A day that did not seem possible. Today marks 2 years since Sophie's second round of brain surgeries. Two years. It's hard to believe. But to fully appreciate today, that. Day and so many other pivotal moments along this journey that lead us to today must be remembered. Then a few days after mailing the CD, I received a call saying they...
oursweetsophie.blogspot.com
Our Sweet Sophie: She is doing GREAT!!!
http://oursweetsophie.blogspot.com/2012/01/she-is-doing-great.html
Friday, January 27, 2012. She is doing GREAT! But this time is different. It just has to be. I am once again filled with so much hope. Seizure-freedom seems so real. So permanent. Why not? Sophie's Story by Elaine. Fri Jan 27, 09:02:00 AM CST. Elaine, This is such wonderful news! I hope and pray this miracle of seizure freedom is yours to proclaim forever more. I know it is absolutely amazing to have that weight and heartache lifted from your shoulders. Rejoicing with you here in NC! Hugs, prayers and ch...
oursweetsophie.blogspot.com
Our Sweet Sophie: A whole new ballgame...
http://oursweetsophie.blogspot.com/2012/03/whole-new-ballgame.html
Monday, March 12, 2012. A whole new ballgame. Sophie has been through a LONG list of anti-seizure medications. I can name off a dozen without even blinking an eye. Somehow, I have gained comfort in the knowledge that I have built up over the years when it comes to anti-seizure medications. But now that she is seizure-free, I am changing my focus to ADHD medications. I meant to do a whole post on Friday, March 9th.her 3 month seizure-free anniversary. I can't believe it.3 months already! For the posting t...
oursweetsophie.blogspot.com
Our Sweet Sophie: Surgery is over!!!
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Friday, December 09, 2011. Now it is a "wait and see" game to see how much weakness she has and how much therapy she needs. Just like we wanted Sophie to have lots of seizures to be captured during the grid monitoring, we are also wanting to see weakness immediately after surgery. But we are hoping it will only be temporary and she should regain her strength within two weeks. Thank you for all your prayers, support and love. Sophie's Story by Elaine. Labels: Surgery.Take 2. Fri Dec 09, 01:00:00 PM CST.
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Our Sweet Sophie: January 2012
http://oursweetsophie.blogspot.com/2012_01_01_archive.html
Friday, January 27, 2012. She is doing GREAT! But this time is different. It just has to be. I am once again filled with so much hope. Seizure-freedom seems so real. So permanent. Why not? Sophie's Story by Elaine. Subscribe to: Posts (Atom). Sophie's 1st Year Montage October 2006. Best of Sophie Video October 2008. Find out more about Infantile Spasms. NINDS Infantile Spasms Information Page. Life with the Lundgrens. Maddie's Marathon Against Leukemia and IS. Our journey with infantile spasms.
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Our Sweet Sophie: September 2011
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Tuesday, September 06, 2011. She rode the Special Education bus. It's not the bus I had ever envisioned her riding to her first day of kindergarten. Well, at least not before she was born.when all my hopes and dreams for her were of those of typical. Parents. And then there was a time in my life that I didn't even know if she would go to school. So, riding the Special Education bus is.in fact.a huge milestone for her. But she was making tremendous gains. Social. One of the reasons I loved preschool s...
SOCIAL ENGAGEMENT