mistupid.com
Awareness Ribbons
http://mistupid.com/social/ribbons.htm
Many causes promote their awareness by the wearing of a particular color ribbon. Here are some of the common causes and the colors they use. In Memorial / Mourning / Melanoma. Spinal Muscular Atrophy (SMA). Organ and Tissue Donor. Child Exploitation and Abuse. Sarcoma (yellow w/ Sunflower).
wheelyque.com
WheelyQue Barbecue Sauce - All Natural Barbecue Sauce in Orange County, California | Saucey Story
http://www.wheelyque.com/saucey-story
The name WheelyQue comes from my love of BBQ and living life in a wheelchair. I was born with Spinal Muscular Atrophy and learned early on that life is what you make of it. Thanks to our family, friends and loyal customers we sold our entire first batch (over 500 bottles and 40 1/2 gallons) in less that a year. In May of 2015, we doubled our production amount of Original Recipe Barbecue Sauce AND also debuted our Spicy Chipotle Barbecue Sauce. WheelyQue is our favorite barbecue sauce a hundred times over!
miracleformary.blogspot.com
Mary's Blog: Spring Break Trip to Lakeshore!
http://miracleformary.blogspot.com/2014/04/spring-break-trip-to-lakeshore.html
Thursday, April 10, 2014. Spring Break Trip to Lakeshore! Since before we moved to Alabama last summer, Mary has been telling us she wants to play wheel-chair soccer. Well, we've been here for about 8 months and Mary finally got her wish! Mary had the opportunity to learn some power chair soccer skills and techniques with a coach at the Paralympic training center at the Lakeshore Foundation in Birmingham. We went to a spring break camp there, and some of the pictures are below:. June 3, 2014 at 10:58 AM.
miracleformary.blogspot.com
Mary's Blog: FLU + SMA = NOT a good combination
http://miracleformary.blogspot.com/2011/10/flu-sma-not-good-combination.html
Sunday, October 23, 2011. FLU SMA = NOT a good combination. The intubation went fine, but she has still be having some trouble with low O2 saturations, so she had been on 60-80% O2 all day. But she is resting comfortably now, and thankfully there is no pneumonia in her lungs. Please keep up the prayers for Mary! Subscribe to: Post Comments (Atom). FLU SMA = NOT a good combination. Petition to cure SMA. Mission: Moris' Down Under. Try to remember the kind of September. Spinal Muscular Atrophy Research News.
alittlemageinthefamily.blogspot.com
DEIRDRE MEDINA's DIARY: A LITTLE MAGE in the FAMILY: March 2015
http://alittlemageinthefamily.blogspot.com/2015_03_01_archive.html
DEIRDRE MEDINA's DIARY: A LITTLE MAGE in the FAMILY. In loving memory of a 5 year old diva with Spinal Muscular Atrophy Type 1 who changed our lives forever. Tuesday, March 17, 2015. What will never be. How I miss you, Dee. You made life so much better. How sad is each day. You were my sunflower field. You were my inspiration. and my hero. I miss you. Subscribe to: Posts (Atom). Diagnosed with SMA type 1 in January 2008. SMA is a GENETIC, fatal illness, the # 1 killer of babies. Tangled for angel Dee.
oneillboys.livejournal.com
The O'Neill Boys' Blog
http://oneillboys.livejournal.com/tag/frost%20on%20the%20pumpkin
The ONeill Boys Blog. Our Life and Times. Egg salad, ants on a log and frost on the pumpkin. Nov 7th, 2010 at 5:38 PM. It was very nice to have the extra hour of sleep back. We all felt a little off today but I'm sure we'll get used to it in time. Once again Casey was a perfect sleeper and Colin was a fusser. Moxie tolerated my getting up and down a hundred times and snuggled for most of the night. Nancy was here for the day. Casey had his tubby and had a trach change. Frost on the pumpkin. 1/4 tsp. ...
jocelynpaigelee.org
Links | Jocelyn Paige Lee Foundation
http://www.jocelynpaigelee.org/links
Jocelyn Paige Lee Foundation. Supporting SMA Families…. God’s Guidance Through It ALL. Http:/ www.bible.com/. Http:/ www.biblegateway.com/. Rock Spring Baptist Church. Http:/ rockspringbaptistchurch.wordpress.com/. Families of Spinal Muscular Atrophy (SMA). Http:/ www.fsma.org/. SMA Support, Inc. Http:/ www.smasupport.com/. Http:/ www.smaspace.com/. Http:/ www.smacommunity.org/. Http:/ www.smakids.org/. Http:/ www.miracleformadison.org/. Http:/ www.asonginthisworld.com/. UNC Children’s Hospital.
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