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Miss Henslee

Saturday, July 6, 2013. Annual Rett Syndrome Conference. Friday, July 5, 2013. We started with the first stages of the PECS ( Picture Exchange Communication System) with Henslee. SHE HAS DONE AMAZING! Monday, May 6, 2013. The day we got the diagnosis. Today has been a crazy day. Over the weekend we received an email from Henslee's geneticist saying that Henslee's results for Pitt-Hopkins syndrome came back negative. I bawled! This is a part of the email I recieved from Dr. Mary Jones @ Katies clinic:.

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Miss Henslee | misshenslee.blogspot.com Reviews
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Saturday, July 6, 2013. Annual Rett Syndrome Conference. Friday, July 5, 2013. We started with the first stages of the PECS ( Picture Exchange Communication System) with Henslee. SHE HAS DONE AMAZING! Monday, May 6, 2013. The day we got the diagnosis. Today has been a crazy day. Over the weekend we received an email from Henslee's geneticist saying that Henslee's results for Pitt-Hopkins syndrome came back negative. I bawled! This is a part of the email I recieved from Dr. Mary Jones @ Katies clinic:.
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Miss Henslee | misshenslee.blogspot.com Reviews

https://misshenslee.blogspot.com

Saturday, July 6, 2013. Annual Rett Syndrome Conference. Friday, July 5, 2013. We started with the first stages of the PECS ( Picture Exchange Communication System) with Henslee. SHE HAS DONE AMAZING! Monday, May 6, 2013. The day we got the diagnosis. Today has been a crazy day. Over the weekend we received an email from Henslee's geneticist saying that Henslee's results for Pitt-Hopkins syndrome came back negative. I bawled! This is a part of the email I recieved from Dr. Mary Jones @ Katies clinic:.

INTERNAL PAGES

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1

Miss Henslee: November 2012

http://misshenslee.blogspot.com/2012_11_01_archive.html

Thursday, November 8, 2012. Another thing we decided to do was put a gate in Henslee's crib. My hubby is a genius. It has been getting quite hard to get Henslee in and out of her crib. Our little Miss is at 41 lbs and while she is throwing her tantrums she might as well be 100 lbs. So Jesse installed a gate so she is able to get in and out of her bed on her own! My back is shouting HOORAY! She even knows how to get in and out. This little Miss is so smart! Saturday, November 3, 2012. I am so INCREDIBLY g...

2

Miss Henslee: December 2012

http://misshenslee.blogspot.com/2012_12_01_archive.html

Sunday, December 16, 2012. Our visit to Katie's clinic. It was truly incredible and I wish so bad that people that we see in our everyday lives could see what we have always seen in Henslee and see what ALL the incredible people at Katie's clinic could see in her not just a non verbal/crazy arm and hands little Miss. We saw them all in one day! Even though Henslee's blood tests have all come back negative in regards to having Rett Syndrome there are plenty of girls that are clinically diagnosed. So t...

3

Miss Henslee: May 2013

http://misshenslee.blogspot.com/2013_05_01_archive.html

Monday, May 6, 2013. The day we got the diagnosis. Today has been a crazy day. Over the weekend we received an email from Henslee's geneticist saying that Henslee's results for Pitt-Hopkins syndrome came back negative. I bawled! This is a part of the email I recieved from Dr. Mary Jones @ Katies clinic:. I have now spoken with 2 other researchers in LA and at the MIND institute and we are willing to call this a disorder of MECP2 very atypical Rett. I still am in shock over it. The w eird. We have directi...

4

Miss Henslee: Picture ExchangeCommunication System

http://misshenslee.blogspot.com/2013/07/picture-exchangecommunication-system.html

Friday, July 5, 2013. We started with the first stages of the PECS ( Picture Exchange Communication System) with Henslee. SHE HAS DONE AMAZING! July 6, 2013 at 11:05 PM. I am so happy the PECS are working so well for you and Henslee at home. I always loved it when I would give Henslee a choice of two or three things at school but the thing she really wanted was not one of the choices, so she would open up the binder and find the thing she did want. She is such a smart cookie.LOVE her tons!

5

Miss Henslee: March 2013

http://misshenslee.blogspot.com/2013_03_01_archive.html

Tuesday, March 12, 2013. On Sunday I saw this clip on Facebook. Yesterday I took the kiddos to McDonald's to play and get a kiddie cone! I never want to forget these special moments that I get to experience because of my sweet little Miss. Ps she wears Minnie Mouse slippers on a regular basis. This little girlie will not keep ANY shoes on or socks for that matter. So we stick with our Minnie Mouse slippers to be able to put them on easily! Subscribe to: Posts (Atom). Hanging Chaise Lounger Chair.

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Bown Family: May 31, 2014

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Saturday, May 31, 2014. A follow up with Dr. Blotter. Today we went back to visit with our ENT. The appointment was scheduled as a follow up to B's prick allergy test last week and discuss the CF test/Immunologist appointment. When Dr. Blotter first came in and asked how we were doing I just looked at him and said, point blank, "Please. Do not EVER send anyone back to that immunologist. Ever again." He looked at me kind of surprised and said, "Really? So, we have a couple options now. The other option we...

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Bown Family: Aug 30, 2014

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Saturday, August 30, 2014. Turns out I'm lucky enough to drive to the dance studio EVERY SINGLY DAY OF THE WORK WEEK this year. I know, everyone says I did it to myself because apparently I don't know how to say no. That or I'm a total sucker for working my hind end off so my kids can participate in all of the activities they'd like to participate in. Who does that mom? Who uses the French words? I don't speak French! The bright side of Sam's self induced torture for my other kids is that the Cache Valle...

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Bown Family: Nov 2, 2014

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Sunday, November 2, 2014. We kicked off Halloween by going to Caleb's Halloween play on Thursday. He got to dress up in his costume (Oompa Loompa) and they sang all kinds of cute Halloween songs and told a cute Halloween story. All the decorations on the curtain they made in class all month long and they got to take them home at the end of the play. Caleb with his teacher (Mrs. Olsen) whom we love dearly! She was Nash's first grade teacher too. Thursday night we finally carved our pumpkins! Nash ended up...

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Bown Family: Jun 23, 2014

http://bownfamily.blogspot.com/2014_06_23_archive.html

Monday, June 23, 2014. Mom's turn at the ENT. Last week I ventured in to see Dr. Blotter about myself. It started shortly after Brooke had her prick test done. I was talking to Travis on the phone one night and he had googled "What can I eat if I have a milk allergy." Being a smart alec, I told him he should have googled "What can I eat if I have a corn allergy? Um, no - just no. I probably should not have legally been driving today either. On Sunday night I was literally in tears from the pain. I fi...

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Bown Family: Jan 5, 2015

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Monday, January 5, 2015. I didn't anticipate this is be an obscenely long post - and then I realized how long it's been since I posted last. Oops! This one post should have been multiple posts through the month of December! Guess that leaves room for another resolution for 2015! Get back to posting more often! The kids and Travis and I loved every second of it. We sure made the most of our time together. Samantha's dance group danced at the Festival of Trees again. I just took the girls and went....Saman...

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Bown Family: Jul 20, 2014

http://bownfamily.blogspot.com/2014_07_20_archive.html

Sunday, July 20, 2014. Relay for Life 2014. This year Relay for Life was held out in Nibley at the Heritage Park. I wasn't too sure about the venue at first, but I ended up really liking it. I hope they do it there again! Travis actually got to go on stage this year and play guitar. He had an entire hour to set up, play and take down. His mom and dad and Jamie came out to listen/watch him. He did a really good job too. My sister did some face painting as a fundraiser. My kids loved it. Links to this post.

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Bown Family: Jan 25, 2015

http://bownfamily.blogspot.com/2015_01_25_archive.html

Sunday, January 25, 2015. VEX IQ Robotics Competition. In December Nash was given the chance to join the Robotics Club at the school. He was THRILLED beyond explanation! He has loved getting to learn about how to build and program a robot. My cousin Austin does the Robotics Club at the high school and Nash even had a chance to go and watch a high school competition one day instead of going to school! This is most of Nash's team. A match is interesting to watch. Each match is only 1 minute long. With your...

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Bown Family: California 2015

http://bownfamily.blogspot.com/2015/05/california-2015.html

Sunday, May 3, 2015. 9 days, 1800 miles, 5 theme parks, 18 people, 2 dance performances = a great vacation! April 25, 2015 Day 1 Universal Studios. This was Samantha's favorite place we visited. She says there were just more things she liked there because it seemed more geared for people her age. Because Travis is a Platinum Rewards Member for Holiday Inn they upgraded our room to a Disney Themed Suite - the girls were happier than the boys! April 26, 2015 Day 2 Disney Land. April 29, 2015 Day 5 Lego Land.

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Bown Family: May 12, 2014

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Monday, May 12, 2014. My Mother's Day Babies. Here it is almost half way through May. Holy cow! Where did that go? Our online auction raised close to $100. The yard sale/boutique we did on May 9-10 brought in another $517. Wahoo! We still have lots of stuff left from the yard sale so we're gearing up to do it again about the second or so week of June. Hope we can make more money for our Relay team! Today is this beautiful boy's birthday! I can't believe he is NINE today! He started tumbling in January an...

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Bown Family: Mar 29, 2014

http://bownfamily.blogspot.com/2014_03_29_archive.html

Saturday, March 29, 2014. Relay for Life Silent Auction. It's that time of year again! Relay for Life will be held July 11-12th this year at the Nibley Heritage Park (yes, this is change in location). Our event will run from 2 pm on the 11th to 2 pm on the 12th. We are also in the process of putting together a health fair of sorts at the same location on Saturday, July 12th. You can follow the Relay for Life of Cache County facebook page. At: https:/ www.facebook.com/relayforlifecachecountyut. If for som...

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Miss Henslee

Saturday, July 6, 2013. Annual Rett Syndrome Conference. Friday, July 5, 2013. We started with the first stages of the PECS ( Picture Exchange Communication System) with Henslee. SHE HAS DONE AMAZING! Monday, May 6, 2013. The day we got the diagnosis. Today has been a crazy day. Over the weekend we received an email from Henslee's geneticist saying that Henslee's results for Pitt-Hopkins syndrome came back negative. I bawled! This is a part of the email I recieved from Dr. Mary Jones @ Katies clinic:.

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