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Miss Honors Journey

Welcome, This is a blog about our little angels journey with CDKL5, Infantile Spasms and Developmental Delay.

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Miss Honors Journey | misshonorsjourney.blogspot.com Reviews
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Welcome, This is a blog about our little angels journey with CDKL5, Infantile Spasms and Developmental Delay.
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1 miss honors journey
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Miss Honors Journey | misshonorsjourney.blogspot.com Reviews

https://misshonorsjourney.blogspot.com

Welcome, This is a blog about our little angels journey with CDKL5, Infantile Spasms and Developmental Delay.

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1

Miss Honors Journey: Happy very late New Year!!

http://misshonorsjourney.blogspot.com/2011/04/happy-very-late-new-year.html

Welcome, This is a blog about our little angels journey with CDKL5, Infantile Spasms and Developmental Delay. Friday, April 29, 2011. Happy very late New Year! All was going well then she contracted thrush around the g-tube site, after fungal cream and oral drops we are now on the right track. Jorja is loving school and doing very well but is still very tired after school. Easter was great and we are just at the end of our 2week stint of the school holidays. I really enjoy the holidays. All my love Kelly.

2

Miss Honors Journey

http://misshonorsjourney.blogspot.com/2010/08/hi-all-welcome-to-miss-honors-blog-we.html

Welcome, This is a blog about our little angels journey with CDKL5, Infantile Spasms and Developmental Delay. Tuesday, August 31, 2010. Welcome to Miss Honors blog, We are all new to this kind of thing but want to get our story out there to other CDKL5 sufferers and families. Honor is the only diagnosed case of CDKL5 in New Zealand, she also has development delay, Meaning at 2years old she can sit and move around the floor but not crawl or use her hands to play or feed herself. Most children that are aff...

3

Miss Honors Journey: Honor turns 2!

http://misshonorsjourney.blogspot.com/2010/09/honor-turns-2.html

Welcome, This is a blog about our little angels journey with CDKL5, Infantile Spasms and Developmental Delay. Wednesday, September 1, 2010. Opening pressie with Great Nana and Big Sister Jorja! My special big Sis helping me with a present! Subscribe to: Post Comments (Atom). CDKL5 is a gene mutation, it stands for cyclin-dependant kinase-like 5 and is located on the X-chromosome. The CDKL5 gene provides instructions for making a protien the it vital for normal brain development. Honor having an EEG.

4

Miss Honors Journey: Song for our beautiful CDKL5 kiddies!

http://misshonorsjourney.blogspot.com/2011/04/song-for-our-beautiful-cdkl5-kiddies.html

Welcome, This is a blog about our little angels journey with CDKL5, Infantile Spasms and Developmental Delay. Friday, April 29, 2011. Song for our beautiful CDKL5 kiddies! I was browsing on the CDKL5 forum group and someone suggested an awesome song that she thought we should dedicate to our beautiful CDKL5 kiddies but would fit for any child with a disability and that very cool song is. Firework - Katy Perry (Boyce Avenue cover ft. David Choi on strings) on iTunes. Http:/ www.youtube.com/. Many also suf...

5

Miss Honors Journey: Honors new bed

http://misshonorsjourney.blogspot.com/2010/09/honors-new-bed.html

Welcome, This is a blog about our little angels journey with CDKL5, Infantile Spasms and Developmental Delay. Friday, September 3, 2010. Today Honor got her "Big girls bed". What a mission it was to get it in the house, luckily she has a sliding door to the back yard otherwise we wouldnt have got it inside. November 27, 2012 at 1:10 PM. THAT BED IS FANTASTIC! WHERE/HOW did you get it? Subscribe to: Post Comments (Atom). Many also suffer from cortical vision impairment, meaning their brains cannot unscram...

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Welcome, This is a blog about our little angels journey with CDKL5, Infantile Spasms and Developmental Delay. Friday, April 29, 2011. Song for our beautiful CDKL5 kiddies! I was browsing on the CDKL5 forum group and someone suggested an awesome song that she thought we should dedicate to our beautiful CDKL5 kiddies but would fit for any child with a disability and that very cool song is. Firework - Katy Perry (Boyce Avenue cover ft. David Choi on strings) on iTunes. Http:/ www.youtube.com/. Today Honor g...

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