ourexceptionallife.blogspot.com
Our Exceptional Life: May 2014
http://ourexceptionallife.blogspot.com/2014_05_01_archive.html
And Then There Were Five. Pay It Forward with us. Saturday, May 10, 2014. Selfies with John Green…Yeah, That Happened. And fist bumps (complete with teaching Mr. Green the jelly fish add on). And hugs. And autographs. And …getting the chance to tell someone that their creation has touched you deeply. Yeah…that all really did happen tonight! Earlier tonight, I posted the following on FB:. 8220; The Fault in Our Stars author and actors meet and greet.there is an amazing, wonderful story to tell for why.
ourexceptionallife.blogspot.com
Our Exceptional Life: Boy Meets Girl
http://ourexceptionallife.blogspot.com/p/our-story-boy-meets-girl.html
And Then There Were Five. Pay It Forward with us. Once upon a time. 25 years to be exact), in a land not so far away (Plano), a 17 year old girl and an 18 year old boy would meet and the beginning of an exceptional life would happen. An unlikely pair, they should have met each other at least a handful of times before this night, but in perfect timing this was the night when that connection was supposed to be made. It was beautiful….in it's own exceptional way. Within 24 hours of the exchange of vows, the...
ourexceptionallife.blogspot.com
Our Exceptional Life: Kids Medical History
http://ourexceptionallife.blogspot.com/p/kids-medical_21.html
And Then There Were Five. Pay It Forward with us. It just means their severity took a bigger leap than one would expect based on the rest of this wacky family. But then, Mito has never been, and never will be predictable, so saying ANYTHING is unexpected with mito is silly. The reality is, we don’t know, might never know, and when all is said and done, it’s completely unimportant. So there! Mitochondrial Disease – mtDNA Mutations on Complex I and IV. Central Auditory Processing Disorder. Hypoventilation ...
ourexceptionallife.blogspot.com
Our Exceptional Life: New “Normals”
http://ourexceptionallife.blogspot.com/2011/09/new-normals.html
And Then There Were Five. Pay It Forward with us. Tuesday, September 27, 2011. New “Normals”. It occurred to me yesterday when we went to the dentist office for the girls to get their teeth cleaned, that while we have adjusted and accepted some new “normals” here at home….have adjusted to the looks when we are out in public….for those that love us, some forewarning of these “new normals” is in order. A few weeks back, Madison’s nausea returned with a vengeance. I’ve suspected for some time, based o...
ourexceptionallife.blogspot.com
Our Exceptional Life: Selfies with John Green…Yeah, That Happened
http://ourexceptionallife.blogspot.com/2014/05/selfies-with-john-greenyeah-that.html
And Then There Were Five. Pay It Forward with us. Saturday, May 10, 2014. Selfies with John Green…Yeah, That Happened. And fist bumps (complete with teaching Mr. Green the jelly fish add on). And hugs. And autographs. And …getting the chance to tell someone that their creation has touched you deeply. Yeah…that all really did happen tonight! Earlier tonight, I posted the following on FB:. 8220; The Fault in Our Stars author and actors meet and greet.there is an amazing, wonderful story to tell for why.
epidemicanswers.org
Mitochondrial Dysfunction - Epidemic Answers
http://www.epidemicanswers.org/epidemic/root-causes/mitochondrial-dysfunction
Many Diagnoses, one Epidemic. Why Are We So Sick? Costs of the Epidemic. Shifting the Health Paradigm. Mind, Body, Spirit. Free Health Coach Consultation. Join the Health Coach Referral Network. Join Our Practitioner Directory. Indicate that your child has mitochondrial dysfunction or a problem in energy production. Failure to thrive, growth delays. Inability to regulate temperature. Some gastronintestinal disorders, among others. Click here ( Mito Dysfunction in Health Conditions. The organs in the body...
ourexceptionallife.blogspot.com
Our Exceptional Life: 26 Days in ICU
http://ourexceptionallife.blogspot.com/2012/06/26-days-in-icu.html
And Then There Were Five. Pay It Forward with us. Sunday, June 10, 2012. 26 Days in ICU. Michael and Abby-Urban Assault Ride-Austin, Texas. In all honesty, my brain cannot wrap itself around it being our 26. Off on a bike/camping adventure. What I know, without question, is that we will all be okay. We will find a way to accept our “new normals” and we will continue to truly LIVE as we have for so many years before this. A few links to some awesome articles and blog posts about Michael. And this one incl...
ourexceptionallife.blogspot.com
Our Exceptional Life: November 2013
http://ourexceptionallife.blogspot.com/2013_11_01_archive.html
And Then There Were Five. Pay It Forward with us. Sunday, November 10, 2013. Back in the Saddle and Leaning In. The motivation though, and am still going to try to make a stab at publishing on more days than not for the rest of the month. Lord knows, it’s not from a lack of experiences to share! I am missing my time here. I am missing the chance to “get it out” and move on. I am missing the chance to share some of the really awesome things happening for our family. So here we go. To working on being the ...
ourexceptionallife.blogspot.com
Our Exceptional Life: July 2014
http://ourexceptionallife.blogspot.com/2014_07_01_archive.html
And Then There Were Five. Pay It Forward with us. Thursday, July 10, 2014. Blessed and Grateful: Superstars and Camp. We have some exciting, awesome news to share! My boy (whom I really can no longer call a boy) has been. Nominated to be honored in a very special way! A few weeks ago I got a call from our Palliative Care Social Worker to share that they. Would like to nominate Chance to be a part of “ The Night of Superstars. 8221; in our area! His time with the Youth Advisory Council there at Cook Child...
