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Saturday, January 17, 2015. How long did it take to know you had mitochondrial disease? How we found out we had mitochondrial disease is a loaded question. There were clear signs for years. But medical science had not caught up with the disease. My hubby and I after lots of prayer and thoughtful discussion with our mito drs decided that a muscle biopsy would not be in the best interest of the kids. The whole family was placed into the 'suspected mitochondrial disease' category. Now for those that donR...

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Saturday, January 17, 2015. How long did it take to know you had mitochondrial disease? How we found out we had mitochondrial disease is a loaded question. There were clear signs for years. But medical science had not caught up with the disease. My hubby and I after lots of prayer and thoughtful discussion with our mito drs decided that a muscle biopsy would not be in the best interest of the kids. The whole family was placed into the 'suspected mitochondrial disease' category. Now for those that don&#82...

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Mito Families! | mitofamilies.blogspot.com Reviews

https://mitofamilies.blogspot.com

Saturday, January 17, 2015. How long did it take to know you had mitochondrial disease? How we found out we had mitochondrial disease is a loaded question. There were clear signs for years. But medical science had not caught up with the disease. My hubby and I after lots of prayer and thoughtful discussion with our mito drs decided that a muscle biopsy would not be in the best interest of the kids. The whole family was placed into the 'suspected mitochondrial disease' category. Now for those that don&#82...

INTERNAL PAGES

mitofamilies.blogspot.com

1

Mito Families!: December 2014

http://mitofamilies.blogspot.com/2014_12_01_archive.html

Tuesday, December 23, 2014. Advocating for Your Medically Complicated Patient While Hospitalized. My family should just laminate a neon bright poster to put on the hospital door that says,. With that should come a list of directions:. Check all labs FIRST. Dear Resident if you are in over your head, we understand, just own up to it rather than try to bluff through. This is a TEAM effort if you can't deal with that pass this room. Staying as healthy as possible is our goal! Saturday, December 13, 2014.

2

Mito Families!: September 2014

http://mitofamilies.blogspot.com/2014_09_01_archive.html

Sunday, September 21, 2014. Join the Mito Families! Is my baby and I spend most of the time on Social Media with it. Helping to keep a supportive and I hope informative place for those dealing with mitochondrial disease. Facebook Page Mito Families! Facebook Main Group Mito Families! Facebook Group Mom's with Mito. 4- Pinterest Board of ideas about Mito and Mito Awareness- Mitochondrial Disease. This is window into our everyday life which of course includes mito. Thursday, September 18, 2014. Families an...

3

Mito Families!: How long did it take to know you had mitochondrial disease?

http://mitofamilies.blogspot.com/2015/01/how-long-did-it-take-to-know-you-had.html

Saturday, January 17, 2015. How long did it take to know you had mitochondrial disease? How we found out we had mitochondrial disease is a loaded question. There were clear signs for years. But medical science had not caught up with the disease. My hubby and I after lots of prayer and thoughtful discussion with our mito drs decided that a muscle biopsy would not be in the best interest of the kids. The whole family was placed into the 'suspected mitochondrial disease' category. Now for those that don&#82...

4

Mito Families!: September 2013

http://mitofamilies.blogspot.com/2013_09_01_archive.html

Wednesday, September 18, 2013. Adult Care for Mitochondrial Disease is a Work in Progress. The care for mitochondrial disease for decades has been child focused. We have better treatments, and better testing we have a large community of mito patients that are adults. What is an adult to do to get proper care for a highly specialized disease? You were doing fine until you began losing your vision, hearing, an infection left you with extreme weakness, a stroke. so many ways to get here but it feels lik...

5

Mito Families!: February 2015

http://mitofamilies.blogspot.com/2015_02_01_archive.html

No posts. Show all posts. No posts. Show all posts. Subscribe to: Posts (Atom). I am a mom of 5. Writer, speaker, and patient advocate for those with mitochondrial disease. I have mito as do my precious children. I am passionate about helping others homeschool, fight mito, and find peace in their home. Helping you create a hope-filled Haven! View my complete profile. CaringBridge / lauries / Welcome. CaringBridge / abigailrose / Welcome. From the Banks of Jordan. Mitochondrial Awareness Week 2015.

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evergreenandindigo.blogspot.com

Evergreen and Indigo: Chapter 1: Sand into Glass (Emergence #2)

http://evergreenandindigo.blogspot.com/p/chapter-1-sand-into-glass-emergence-1.html

Assorted musings by Courtney M. Privett, the time-lost author of the Echoes of Oblivion trilogy, Mayfly Requiem, Shadows of Absolution, and the Emergence trilogy. Published Novels (The Malora Octet). Chapter 1: Mayfly Requiem. Prologue: The Abyssal Night (Echoes of Oblivion #1). Chapter 1: Shadows of Absolution. Intro: The Crystal Lattice (Emergence #1). Chapter 1: Sand into Glass (Emergence #2). Chapter 1: Arrow of Entropy (Emergence #3). Social Media and External Interviews. Rain Falls on Malora: Moth.

evergreenandindigo.blogspot.com

Evergreen and Indigo: Chapter 1: Shadows of Absolution

http://evergreenandindigo.blogspot.com/p/chapter-1-shadows-of-absolution.html

Assorted musings by Courtney M. Privett, the time-lost author of the Echoes of Oblivion trilogy, Mayfly Requiem, Shadows of Absolution, and the Emergence trilogy. Published Novels (The Malora Octet). Chapter 1: Mayfly Requiem. Prologue: The Abyssal Night (Echoes of Oblivion #1). Chapter 1: Shadows of Absolution. Intro: The Crystal Lattice (Emergence #1). Chapter 1: Sand into Glass (Emergence #2). Chapter 1: Arrow of Entropy (Emergence #3). Social Media and External Interviews. Rain Falls on Malora: Moth.

evergreenandindigo.blogspot.com

Evergreen and Indigo: Volle Dictionary

http://evergreenandindigo.blogspot.com/p/volle-dictionary.html

Assorted musings by Courtney M. Privett, the time-lost author of the Echoes of Oblivion trilogy, Mayfly Requiem, Shadows of Absolution, and the Emergence trilogy. Published Novels (The Malora Octet). Chapter 1: Mayfly Requiem. Prologue: The Abyssal Night (Echoes of Oblivion #1). Chapter 1: Shadows of Absolution. Intro: The Crystal Lattice (Emergence #1). Chapter 1: Sand into Glass (Emergence #2). Chapter 1: Arrow of Entropy (Emergence #3). Social Media and External Interviews. Rain Falls on Malora: Moth.

evergreenandindigo.blogspot.com

Evergreen and Indigo: Rain Falls on Malora: Moth

http://evergreenandindigo.blogspot.com/p/m-irazenretta-keltau-reedwater.html

Assorted musings by Courtney M. Privett, the time-lost author of the Echoes of Oblivion trilogy, Mayfly Requiem, Shadows of Absolution, and the Emergence trilogy. Published Novels (The Malora Octet). Chapter 1: Mayfly Requiem. Prologue: The Abyssal Night (Echoes of Oblivion #1). Chapter 1: Shadows of Absolution. Intro: The Crystal Lattice (Emergence #1). Chapter 1: Sand into Glass (Emergence #2). Chapter 1: Arrow of Entropy (Emergence #3). Social Media and External Interviews. Rain Falls on Malora: Moth.

movementdisorder.dirtybutter.com

World Rare Disease Day in 30 Days! - Day by Day with a Movement Disorder

http://movementdisorder.dirtybutter.com/2012/01/world-rare-disease-day-in-30-days.html

Day by Day with a Movement Disorder. My Journey with a Mitochondrial Disease. But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint." Isaiah 40:31 KJV. World Rare Disease Day in 30 Days! Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else! First MITO Physical Therapy Session →. There...

movementdisorder.dirtybutter.com

Doing What I Can - Day by Day with a Movement Disorder

http://movementdisorder.dirtybutter.com/2012/03/doing-what-i-can.html

Day by Day with a Movement Disorder. My Journey with a Mitochondrial Disease. But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint." Isaiah 40:31 KJV. Doing What I Can. Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else! WORLD RARE DISEASE DAY is TODAY! Hocus Pocus Dominocus →.

movementdisorder.dirtybutter.com

Making Progress - Day by Day with a Movement Disorder

http://movementdisorder.dirtybutter.com/2012/04/making-progress.html

Day by Day with a Movement Disorder. My Journey with a Mitochondrial Disease. But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint." Isaiah 40:31 KJV. Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else! Doctors, Doctors, and More Doctors →. April 11, 2012. May 9, 2016. Im really pl...

movementdisorder.dirtybutter.com

Post Physical Therapy - Day by Day with a Movement Disorder

http://movementdisorder.dirtybutter.com/2015/06/post-physical-therapy.html

Day by Day with a Movement Disorder. My Journey with a Mitochondrial Disease. But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint." Isaiah 40:31 KJV. Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else! Bones, Muscles, and Pain Equals Surgery. June 27, 2015. May 10, 2016. I drop of...

movementdisorder.dirtybutter.com

Irritated Eyes and Digestive System - UGH - Day by Day with a Movement Disorder

http://movementdisorder.dirtybutter.com/2014/02/irritated-eyes-and-digestive-system-ugh.html

Day by Day with a Movement Disorder. My Journey with a Mitochondrial Disease. But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint." Isaiah 40:31 KJV. Irritated Eyes and Digestive System – UGH. Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else! Continuing with the LCHF Lifestyle.

movementdisorder.dirtybutter.com

I Over Did It - Day by Day with a Movement Disorder

http://movementdisorder.dirtybutter.com/2012/02/i-over-did-it.html

Day by Day with a Movement Disorder. My Journey with a Mitochondrial Disease. But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint." Isaiah 40:31 KJV. I Over Did It. Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else! WORLD RARE DISEASE DAY is TODAY! I Over Did It. February 25, 2012.

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Mito Families!

Saturday, January 17, 2015. How long did it take to know you had mitochondrial disease? How we found out we had mitochondrial disease is a loaded question. There were clear signs for years. But medical science had not caught up with the disease. My hubby and I after lots of prayer and thoughtful discussion with our mito drs decided that a muscle biopsy would not be in the best interest of the kids. The whole family was placed into the 'suspected mitochondrial disease' category. Now for those that don&#82...

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