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Mito Life Window

Our son Garrett has a mitochondrial dna depletion syndrome, exact gene(s) unidentified. Our oldest child, Addie, probably has it as well. That leaves our gorgeous ball of energy, the middle child, Ainslee, appearing to be untouched by this disease. Follow along and peep through the window at our victories, struggles and lessons learned living with mito. Friday, November 14, 2014. Hole in the Jeans (and Photos! This week, Garrett achieved the very first hole in the knee of a pair of jeans! I attempt to ch...

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Mito Life Window | mitolifewindow.blogspot.com Reviews
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Our son Garrett has a mitochondrial dna depletion syndrome, exact gene(s) unidentified. Our oldest child, Addie, probably has it as well. That leaves our gorgeous ball of energy, the middle child, Ainslee, appearing to be untouched by this disease. Follow along and peep through the window at our victories, struggles and lessons learned living with mito. Friday, November 14, 2014. Hole in the Jeans (and Photos! This week, Garrett achieved the very first hole in the knee of a pair of jeans! I attempt to ch...
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Mito Life Window | mitolifewindow.blogspot.com Reviews

https://mitolifewindow.blogspot.com

Our son Garrett has a mitochondrial dna depletion syndrome, exact gene(s) unidentified. Our oldest child, Addie, probably has it as well. That leaves our gorgeous ball of energy, the middle child, Ainslee, appearing to be untouched by this disease. Follow along and peep through the window at our victories, struggles and lessons learned living with mito. Friday, November 14, 2014. Hole in the Jeans (and Photos! This week, Garrett achieved the very first hole in the knee of a pair of jeans! I attempt to ch...

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1

Mito Life Window: Button Change Tomorrow

http://mitolifewindow.blogspot.com/2014/07/button-change-tomorrow.html

Our son Garrett has a mitochondrial dna depletion syndrome, exact gene(s) unidentified. Our oldest child, Addie, probably has it as well. That leaves our gorgeous ball of energy, the middle child, Ainslee, appearing to be untouched by this disease. Follow along and peep through the window at our victories, struggles and lessons learned living with mito. Monday, July 21, 2014. Grouchy's mom (my mother-in-law) may come along, so that will be great company. Love her! Monday, July 21, 2014. Garrett, Age 6.

2

Mito Life Window: October 2013

http://mitolifewindow.blogspot.com/2013_10_01_archive.html

Our son Garrett has a mitochondrial dna depletion syndrome, exact gene(s) unidentified. Our oldest child, Addie, probably has it as well. That leaves our gorgeous ball of energy, the middle child, Ainslee, appearing to be untouched by this disease. Follow along and peep through the window at our victories, struggles and lessons learned living with mito. Friday, October 18, 2013. Reality Is Heavy, Very Heavy. At 5:45 in the morning. I truly should never complain about those too-early mornings. Eve...And i...

3

Mito Life Window: NO MORE DIAPERS!!!!!!!!!!!!!

http://mitolifewindow.blogspot.com/2014/10/no-more-diapers.html

Our son Garrett has a mitochondrial dna depletion syndrome, exact gene(s) unidentified. Our oldest child, Addie, probably has it as well. That leaves our gorgeous ball of energy, the middle child, Ainslee, appearing to be untouched by this disease. Follow along and peep through the window at our victories, struggles and lessons learned living with mito. Wednesday, October 22, 2014. GARRETT IS DONE WITH DIAPERS! PRAISE THE GOOD LORD! I think that he is sleeping much better in the mornings because of not w...

4

Mito Life Window: In Disbelief I Get To Write This!

http://mitolifewindow.blogspot.com/2014/10/in-disbelief-i-get-to-write-this.html

Our son Garrett has a mitochondrial dna depletion syndrome, exact gene(s) unidentified. Our oldest child, Addie, probably has it as well. That leaves our gorgeous ball of energy, the middle child, Ainslee, appearing to be untouched by this disease. Follow along and peep through the window at our victories, struggles and lessons learned living with mito. Saturday, October 18, 2014. In Disbelief I Get To Write This! And not here we are at age nine with so many glorious miracles surrounding our child! 1 Gar...

5

Mito Life Window: January 2014

http://mitolifewindow.blogspot.com/2014_01_01_archive.html

Our son Garrett has a mitochondrial dna depletion syndrome, exact gene(s) unidentified. Our oldest child, Addie, probably has it as well. That leaves our gorgeous ball of energy, the middle child, Ainslee, appearing to be untouched by this disease. Follow along and peep through the window at our victories, struggles and lessons learned living with mito. Saturday, January 11, 2014. This red backpack is the new symbol for FREEDOM and HEALTH in Garrett's life! I am including the next photo as it shows the n...

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My Mommy Loved Me Well. – Community for Casey

https://communityforcasey.wordpress.com/2014/11/11/my-mommy-loved-me-well

One Brave Little Boy. One Community Who Loves Him. My Mommy Loved Me Well. November 11, 2014. November 11, 2014. I think everyone who follows this blog by now knows that I’m a thinker. I have a really hard time shutting down the old hamster wheel at night. I often lay in bed reflecting on our day and wondering if I served him right as his mommy. Did Casey Royce go to bed happy tonight? Did he go to bed knowing that he was loved? Did he doze off into sleepy land knowing that he was safe and protected?

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AN OPEN LETTER TO MY SON ON HIS 3RD BIRTHDAY – Community for Casey

https://communityforcasey.wordpress.com/2014/12/01/an-open-letter-to-my-son-on-his-3rd-birthday

One Brave Little Boy. One Community Who Loves Him. AN OPEN LETTER TO MY SON ON HIS 3RD BIRTHDAY. December 1, 2014. December 6, 2014. Dear Casey Royce,. You’re different, Casey Royce. Not in a bad way, my dear. You are different in a way that has made you exactly who you are today and who you will be years from now as you read this letter. You see, you have been through more obstacles than most kids will go through in their entire lifetime. You. Have to have daily injections in order to grow. You. 8221; Y...

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He Needs Me to See Him. – Community for Casey

https://communityforcasey.wordpress.com/2014/11/05/he-needs-me-to-see-him/comment-page-1

One Brave Little Boy. One Community Who Loves Him. He Needs Me to See Him. November 5, 2014. November 5, 2014. I got tired of hiding. And I wasn’t going to do it any more. It’s easy to get lost out there. It’s easy to picture yourself 5 years down the road while asking yourself some truly difficult questions. Who will my son be in 5 years? Will he excel in school? Will he have friends? Will he learn to express himself? Because if we do, we miss moments like this:. And moments like this:. Years ago when m...

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I’m Still Learning Who He Is. – Community for Casey

https://communityforcasey.wordpress.com/2015/01/23/im-still-learning-who-he-is

One Brave Little Boy. One Community Who Loves Him. I’m Still Learning Who He Is. January 23, 2015. January 23, 2015. Right now, my tiny human is running around the living room with a towel over his head. He keeps asking me “Where is Casey? 8221; and, like clock work, I will run over and snatch it off of his head. “THERE HE IS! What’s next for us? Much Love –. THANK YOU, 2014. Dear Morgan →. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. I&#821...

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Dear Morgan – Community for Casey

https://communityforcasey.wordpress.com/2015/02/04/dear-morgan-2

One Brave Little Boy. One Community Who Loves Him. February 4, 2015. February 12, 2015. My Dearest Morgan,. When my cell phone goes off after midnight, I’m always certain that it is you. You know my sleep cycle well and you know that I’m often up juggling the same thoughts that you are. Is he okay right now? Did I give him all of his medication? What if something happens while I’m sleeping and I don’t hear it? Am I doing a good job? Is there enough of me to go around? Does he know I love him? Take care o...

communityforcasey.wordpress.com communityforcasey.wordpress.com

It’s Okay, Mommy. – Community for Casey

https://communityforcasey.wordpress.com/2014/11/27/its-okay-mommy

One Brave Little Boy. One Community Who Loves Him. It’s Okay, Mommy. November 27, 2014. November 27, 2014. This is their reality. Having a child with any special needs is not an easy road but it is not an impossible one either. It’s rewarding, challenging, and builds towers of character within your heart. It develops your mind and changes your soul. Things that once seemed impossible or unrealistic become tangible and possible. Today he is okay. For those of you who want to read a blog I wrote about litt...

communityforcasey.wordpress.com communityforcasey.wordpress.com

The Ultimate Support Groups: An Open Letter to an SGA/RSS and Dandy Walker Parents. – Community for Casey

https://communityforcasey.wordpress.com/2014/12/02/the-ultimate-support-groups-an-open-letter-to-an-sgarss-and-dandy-walker-parents

One Brave Little Boy. One Community Who Loves Him. The Ultimate Support Groups: An Open Letter to an SGA/RSS and Dandy Walker Parents. December 2, 2014. December 2, 2014. Dear Fellow RSS/SGA and Dandy Walker Parent,. They want to help. They want to help. You don’t find that everywhere. Praying for you all. It is not easy; may you be quick and confident and assured that it is worth it. Please keep us posted. Cheering you on! Our children will literally grow up together in the same adjusted normalcy. So, t...

communityforcasey.wordpress.com communityforcasey.wordpress.com

AN OPEN LETTER TO MY SON ON HIS 3RD BIRTHDAY – Community for Casey

https://communityforcasey.wordpress.com/2014/12/01/an-open-letter-to-my-son-on-his-3rd-birthday/comment-page-1

One Brave Little Boy. One Community Who Loves Him. AN OPEN LETTER TO MY SON ON HIS 3RD BIRTHDAY. December 1, 2014. December 6, 2014. Dear Casey Royce,. You’re different, Casey Royce. Not in a bad way, my dear. You are different in a way that has made you exactly who you are today and who you will be years from now as you read this letter. You see, you have been through more obstacles than most kids will go through in their entire lifetime. You. Have to have daily injections in order to grow. You. 8221; Y...

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Every One Needs a Jen. – Community for Casey

https://communityforcasey.wordpress.com/2014/11/14/every-one-needs-a-jen

One Brave Little Boy. One Community Who Loves Him. Every One Needs a Jen. November 14, 2014. Casey Royce meets Jen for the 1st time. You see, tomorrow is Jenni’s birthday. The world has had the pleasure of having her present for 32 years now. She will never say it but, the world is better off having her here. Better off for having her here. This is when we loved tennis and giant Jesus t-shirts. There’s our Erin. These girls…… 3. Envy wears a navy jacket. Jen’s audition for Zoolander. When you break down.

communityforcasey.wordpress.com communityforcasey.wordpress.com

December 2014 – Community for Casey

https://communityforcasey.wordpress.com/2014/12

One Brave Little Boy. One Community Who Loves Him. THANK YOU, 2014. December 23, 2014. December 23, 2014. What could I take from this year to make myself better? How do I apply this to my marriage and to my life as a parent? And, like introspect so often is, it was painful. He never complained and he never once asked for more. If that isn’t true love, I’m not sure what is. The Ultimate Support Groups: An Open Letter to an SGA/RSS and Dandy Walker Parents. December 2, 2014. December 2, 2014. But, I though...

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Mito Life Window

Our son Garrett has a mitochondrial dna depletion syndrome, exact gene(s) unidentified. Our oldest child, Addie, probably has it as well. That leaves our gorgeous ball of energy, the middle child, Ainslee, appearing to be untouched by this disease. Follow along and peep through the window at our victories, struggles and lessons learned living with mito. Friday, November 14, 2014. Hole in the Jeans (and Photos! This week, Garrett achieved the very first hole in the knee of a pair of jeans! I attempt to ch...

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