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TREASURE YESTERDAY DREAM OF TOMORROW LIVE FOR TODAY

A blog about a families journey with Pontocerebellar Hypoplasia type 1A (PCH1A) with Spinal Muscular Atrophy (SMA).

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TREASURE YESTERDAY DREAM OF TOMORROW LIVE FOR TODAY | mlsbks0422.blogspot.com Reviews
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TREASURE YESTERDAY DREAM OF TOMORROW LIVE FOR TODAY | mlsbks0422.blogspot.com Reviews

https://mlsbks0422.blogspot.com

A blog about a families journey with Pontocerebellar Hypoplasia type 1A (PCH1A) with Spinal Muscular Atrophy (SMA).

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1

.: October 2014

https://mlsbks0422.blogspot.com/2014_10_01_archive.html

TREASURE YESTERDAY DREAM OF TOMORROW LIVE FOR TODAY. Friday, October 31, 2014. For those who really know Ian.you will love this card as much as he did.he laughed and loved it.thank you Nurse Erin for making him laugh and taking wonderful care of our family and Ian. The kids had a great time trick or treating. Links to this post. Thursday, October 30, 2014. Siblings of Kids with Chronic Illneses. Leah Vanderwerp College of Arts and Science. Over the years and throughout Ian's numerous. Collaborate with ot...

2

.: November 2014

https://mlsbks0422.blogspot.com/2014_11_01_archive.html

TREASURE YESTERDAY DREAM OF TOMORROW LIVE FOR TODAY. Sunday, November 30, 2014. The Invisible String - - By: Patrice Karst. The Invisible String is a simply story that reminds children and adults they are never truly alone. As the mother in this story explains, "People who love each other are always connected by a very special String made of love. Even though you can't see it with your eyes, you can feel it deep in your heart and know that you are always connected to the ones you love.". You don't need t...

3

.: All Together Again

https://mlsbks0422.blogspot.com/2015/08/all-together-again.html

TREASURE YESTERDAY DREAM OF TOMORROW LIVE FOR TODAY. Sunday, August 9, 2015. It is hard to believe that it has been 3 weeks since we dropped Becca off at Camp Louise and 10 days since we dropped Ian off at Camp Simcha Special. As of this morning, we are all together again. Thank you Camp Louise for a wonderful summer for Becca. She was all smiles when we picked her up and did not want to leave. She shared stores about AiryLou nights, trip to New York, the chocolate lady, workshops and so much more. 5 Ins...

4

.: July 2015

https://mlsbks0422.blogspot.com/2015_07_01_archive.html

TREASURE YESTERDAY DREAM OF TOMORROW LIVE FOR TODAY. Thursday, July 30, 2015. Signed, Sealed and Delivered. Yesterday went well. Ian has been delivered to Camp Simcha Special, along with his counselor Danny. They are ready for 10 days of unbelievable fun. Ian's arrival, yes he is in the middle of all the boys. Ian's cabin.Fort Simcha, also known as B1. More of Ian's arrival. Danny and Ian when we first got to camp and out of the van after our 5 hour drive. Links to this post. Monday, July 27, 2015. I tel...

5

.: Missing These Faces

https://mlsbks0422.blogspot.com/2015/08/missing-these-faces.html

TREASURE YESTERDAY DREAM OF TOMORROW LIVE FOR TODAY. Tuesday, August 4, 2015. Subscribe to: Post Comments (Atom). UPDATE - Rock ‘N’ Roll - Something a Little Crazy . How to Survive Being Friends With a Special Needs . Rock ‘N’ Roll - Something a Little Crazy for Me. HOPE FOR TODAY BEGINS TOMORROW. Late Summer Vegetable Enchilada Pie. Friendship Circle - Special Needs Blog. 5 Inspiring Stories from the Special Needs Community this Month. Curious George Gets a Talker. Growing Pains.(by Michael).

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Amazing Amelia: October 2011

http://amazing-amelia.blogspot.com/2011_10_01_archive.html

CLICK HERE FOR BLOGGER TEMPLATES. Monday, October 31, 2011. Playdates, Halloween and More. Yes, she IS a Rockstar! Amelia had her first official playdate yesterday. We met up with one of her schoolmates, who has a typical twin sister - so it was doubly fun! Nestor and I have become friendly with their mom, who is just terrific, so we were really happy to hang out with all three of them. We met at Brandon's Village. The girls LOVED it. Here's a link to the video. Amelia was dressed in a festive outfit to ...

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Amazing Amelia: It Takes a Village

http://amazing-amelia.blogspot.com/2011/07/it-takes-village.html

CLICK HERE FOR BLOGGER TEMPLATES. Thursday, July 21, 2011. It Takes a Village. Amelia just got off her second round of antibiotics for a recurring sinus infection. Poor thing was MISERABLE! She seems to be much better now and her system is regulating itself (you know, digestively speaking! We're incorporating that for everything now. Giving her a chance to let us know what she wants. Not easy with a non-verbal child! As for me, well, I look like I've swallowed a watermelon - whole! I called the insurance...

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Amazing Amelia: October 2010

http://amazing-amelia.blogspot.com/2010_10_01_archive.html

CLICK HERE FOR BLOGGER TEMPLATES. Friday, October 15, 2010. Some pics from our day at Malibu beach. A really nice article written about our family. Http:/ celebritybabies.people.com/2010/10/15/secretariats-nestor-serrano-on-daughters-cerebral-palsy/#more-115010. Subscribe to: Posts (Atom). Thanks for stopping by. I make no promises, but will try to stay on top of this and keep it updated as much as possible. 1/08 Creepster Birthday Girl. 8/07 In The Country. 7/06 Amelia and Daddy. In Through The Out Door.

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Amazing Amelia: November 2012

http://amazing-amelia.blogspot.com/2012_11_01_archive.html

CLICK HERE FOR BLOGGER TEMPLATES. Thursday, November 15, 2012. Big Changes. Big Year. So the first thing I need to do is give a huge Amelia update! Usually hanging in her room, particularly once we put the TV on for her, is all she wants to do. Amelia will just play for hours in there with or without anyone (she always has either us or a nurse with her - but she is content to do her own thing, you know? She and I giggle endlessly and come up with new and nonsensical words. I have been able to experie...

amazing-amelia.blogspot.com amazing-amelia.blogspot.com

Amazing Amelia: Big Changes. Big Year.

http://amazing-amelia.blogspot.com/2012/11/big-changes-big-year.html

CLICK HERE FOR BLOGGER TEMPLATES. Thursday, November 15, 2012. Big Changes. Big Year. So the first thing I need to do is give a huge Amelia update! Usually hanging in her room, particularly once we put the TV on for her, is all she wants to do. Amelia will just play for hours in there with or without anyone (she always has either us or a nurse with her - but she is content to do her own thing, you know? She and I giggle endlessly and come up with new and nonsensical words. I have been able to experie...

amazing-amelia.blogspot.com amazing-amelia.blogspot.com

Amazing Amelia: September 2011

http://amazing-amelia.blogspot.com/2011_09_01_archive.html

CLICK HERE FOR BLOGGER TEMPLATES. Thursday, September 8, 2011. First Day of School. Well, Amelia had her first day back to school yesterday. I really wanted to get pics and video to share.but she was not such a happy camper yesterday. Not sure if it was getting up so early (she had been sleeping in until 7:45/8am every morning! Or just the frantic pace it takes to get her up, dressed, respiratory therapy done and out the door to drive to school. In any case, NOT HAPPY! She goes so above and beyond what i...

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Amazing Amelia: November 2010

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CLICK HERE FOR BLOGGER TEMPLATES. Monday, November 29, 2010. Here are the photos of Amelia with Max, our cousins' dog. It's the first time I've ever seen her take any interest in an animal. It's so cool! If you're interested in them go to the site www.ablegaitor.com. Friday, November 26, 2010. I thought of everyone like crazy yesterday. Only this time he said "is Amelia doing anything new? We are both so blown away! To see her put "give me" into real action, proving that she understands the context of us...

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Amazing Amelia: Soooooooo Typical!

http://amazing-amelia.blogspot.com/2012/03/soooooooo-typical.html

CLICK HERE FOR BLOGGER TEMPLATES. Saturday, March 31, 2012. I've attempted to sit and update for some time now. I've been slightly busy. So much to tell you! Lucy Rebecca is healthy and strong. She is as typical as they come - from the get-go! Lucy is in the 90% for weight and 95% for height. Her babbling, eating and movement is right on target in every text book and chart. I am in awe of her. This is Lucy at about a month old. I couldn't believe the smiles she was giving me. The gorgeous Amazing Amelia.

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Amazing Amelia: July 2011

http://amazing-amelia.blogspot.com/2011_07_01_archive.html

CLICK HERE FOR BLOGGER TEMPLATES. Thursday, July 21, 2011. It Takes a Village. Amelia just got off her second round of antibiotics for a recurring sinus infection. Poor thing was MISERABLE! She seems to be much better now and her system is regulating itself (you know, digestively speaking! We're incorporating that for everything now. Giving her a chance to let us know what she wants. Not easy with a non-verbal child! As for me, well, I look like I've swallowed a watermelon - whole! I called the insurance...

amazing-amelia.blogspot.com amazing-amelia.blogspot.com

Amazing Amelia: April 2011

http://amazing-amelia.blogspot.com/2011_04_01_archive.html

CLICK HERE FOR BLOGGER TEMPLATES. Monday, April 11, 2011. All's Well at the OK Corral. On another topic, we went to see an amazing augmentative communications specialist a couple weeks ago. Amelia did really well on her IPad and worked especially well with an App called "Proloquo2go." It's $189.00. The specialist said to me "I know it's really expensive! To which I said "Ummmm.if my child is going to be able to speak to me with it.it's priceless! Perspective is everything friends! Thanks for stopping by.

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TREASURE YESTERDAY DREAM OF TOMORROW LIVE FOR TODAY

Skip to main content. Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene. Subscribe to this blog. April 07, 2018. Four parts of yizkor. April 04, 2018. April 01, 2018. I Believe: To Kill a Mocking Bird by Becca Scher. March 30, 2018. Scientists Explain: Parents Who Raise 'Successful' Kids Do These 8 Things Differently. March 21, 2018. March 20, 2018. March 18, 2018.

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News, rumours and comment on the crazy world of the MLS; from a British perspective. Sunday, 18 September 2011. What they're earning: MLS Millionaires Revealed. The Major League Soccer Players' Union has publicised its annual salaries figures for the 2011 season. The info, released today, confirms what most people had suspected regarding the other high-rollers. MLS Million-Earners 2011 Season:. DAVID BECKHAM (LA Galaxy):. 5,500,000.08. THIERRY HENRY (New York Red Bulls): $5,000,000.04. It's alarming just...

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