worldthroughmyeyes.org.sg
Rare Disease
http://www.worldthroughmyeyes.org.sg/illness-groups/rare-disease
Compared with common diseases, which affect hundreds of thousands, if not millions of people, rare diseases affect only a handful of people and as such, can lack interest or awareness among the general public and medical communities. However, when seen as a collective entity, rare diseases affect millions of people globally who, irrespective of their diagnosis, share the same aspirations and suffer the same challenges. Aaron’s story Our boy with LSD. Aaron Ng, age 4. A Father’s Letter to His Son. World T...
worldthroughmyeyes.org.sg
Our Partners
http://www.worldthroughmyeyes.org.sg/our-partners
Rainbow Across Borders would like to acknowledge the following partners who have helped to encapsulate The Patient Voice in Asia:. Hong Kong Alliance for Rare Diseases (HKARD). Hong Kong Mucopolysaccharidoses and Rare Genetic Diseases Mutual Aid Group (HKMPS). Organisation for Rare Diseases India (ORDI). Hemophilia Society of Malaysia (HSM). Malaysia Metabolic Society (MMS). Malaysian Lysosomal Diseases Association (MLDA). Malaysian Rare Disorders Society (MRDS). Haemophilia Society of Singapore.
rabasia.org
Rainbow Across Borders
http://www.rabasia.org/affiliates
Register as an RAB Affiliate. Register as an RAB Affiliate. Genetic and Rare Disease Network. Website: http:/ www.geneticandrarediseasenetwork.org.au. Tel: (618) 9485 8999. Email: admin@gardn.org.au. Hong Kong Mucopolysaccharidoses and Rare Genetic Diseases Mutual Aid Group. Website: http:/ www.mps.org.hk/en/index.html. Tel: (852) 2794 3010. Dystrophy Annihilation Research Trust. Website: http:/ dartindia.in/. Tel: (91) 80 2341 2725. Organisation for Rare Diseases India (ORDI). Tel: (91) 889 255 5000.