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My journey with MND
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January | 2012 | mndestroyer
https://mndestroyer.wordpress.com/2012/01
Where it all begins. January 31, 2012 at 12:00 pm ( Uncategorized. I’m a long way into my journey, but you’ll soon catch up! Here is a brief article I wrote not long ago which I hope will give you an idea where I’m starting from and why I chose to document my personal journey. I hope to be able to update regularly but that will be dependent on what happens! A classic by Berlin. Pee’d off……. To rub or not to rub, that is the question…. If you’re happy and you know it clap your hands.
Pee’d off…….. | mndestroyer
https://mndestroyer.wordpress.com/2012/02/24/19
Pee’d off……. February 24, 2012 at 1:56 pm ( Uncategorized. Here we are again, another week has flown by! They seem to go so quick these days it’s scary. Well, what’s been happening this week? Do I ask the lady I am talking to, who is a complete stranger effectively, if she minds pushing me to the toilet, lifting me up, unzipping the flies and popping the old man out for me! I really don’t think that would be appropriate but I’m getting desperate! A bit random that but was very relevant at the time! I hav...
Where it all begins | mndestroyer
https://mndestroyer.wordpress.com/2012/01/31/where-it-all-begins
Where it all begins. January 31, 2012 at 12:00 pm ( Uncategorized. I’m a long way into my journey, but you’ll soon catch up! Here is a brief article I wrote not long ago which I hope will give you an idea where I’m starting from and why I chose to document my personal journey. I hope to be able to update regularly but that will be dependent on what happens! January 31, 2012 at 12:36 pm. FB is a breeding ground for (especially) old classmates to shove their wonderful, fulfilling lives on their peers when ...
April | 2012 | mndestroyer
https://mndestroyer.wordpress.com/2012/04
A classic by Berlin. April 17, 2012 at 11:31 am ( Uncategorized. Hi all, it seems an age since my last batch of inane drivel and rumblings. I have finally got things organised so I can access my study where the software is located to enable me to waffle for a while. A lot has been happening in the last month and I will hopefully give you some insight into what has been going on. I have battered and taken chunks out of doorframes and doors, run into things and squashed my toes against the foot plates and ...
To rub or not to rub, that is the question… | mndestroyer
https://mndestroyer.wordpress.com/2012/02/16/to-rub-or-not-to-rub-that-is-the-question
To rub or not to rub, that is the question…. February 16, 2012 at 2:35 pm ( Uncategorized. Well, here we are again, another week gone by and boy does time fly! It’s been a fairly busy week and I have certainly been exposed to some new experiences, I’ll come to these shortly. February 16, 2012 at 6:02 pm. I knew homeopathy would be useful to you in some way. Lets hope it is cumulative and that there are other homeopathic avenues for you to explore. February 16, 2012 at 9:41 pm. Hope ur well xx. Loving wha...
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Steve Evans Blog: Regaining a little independence
http://steveevans35.blogspot.com/2015/06/regaining-little-independence.html
Tuesday, 2 June 2015. Regaining a little independence. The system comprises a mechanical hand which is moved by tiny servos. This was manufactured by Patrick using his 3D printer. Then there's a processing unit, again constructed and programmed by Patrick. The system connects to the eyegaze computer by USB. Finally a screen grid was made to allow eye selection. The system is still in its early stages of development but early tests are promising. The next video was made in the seafront carpark at my flat.
Steve Evans Blog: We Are Not Alone
http://steveevans35.blogspot.com/2015/04/we-are-not-alone.html
Monday, 6 April 2015. We Are Not Alone. Filming My Father In Life And Death. Click to watch on demand until March 2016. I know from other MND sufferers, the Isaac's and our experience isn't universal but I suspect it's representative of many families dealing with this disease. I am so grateful for your honesty - thank you does not begin to cover it but I dont know what else to say. Thank you. 12 April 2015 at 00:18. Subscribe to: Post Comments (Atom). For those of you who really want to, you can check ou...
Steve Evans Blog: November 2014
http://steveevans35.blogspot.com/2014_11_01_archive.html
Sunday, 16 November 2014. Perseverance, patience and acceptance” – PatientsLikeMe member Steve shares what it’s like to live with MND. Posted November 14th, 2014. Looking back over the last 7 years since your diagnosis with ALS/MND, is there anything you’d like to have known sooner that has helped you along your journey? You’ve documented your experiences in your film “My Motor Neuron Disease Made Easier” – can you share a little about your inspiration for the project? Eyegaze is undeniably an incredible...
Steve Evans Blog: August 2014
http://steveevans35.blogspot.com/2014_08_01_archive.html
Tuesday, 26 August 2014. Enduring Motor Neurone Disease. Monday, 25 August 2014. Daniel's and Tracy's ice bucket challenge. Thursday, 21 August 2014. Finally I was determined to make a 60 second version, with the view to getting it on TV as an ad campaign to raise awareness and funds. BUT the minimum cost of airtime for a realistic ad campaign is £25k. So if anyone knows of any organisations who could contribute a few grand, let me know. Wednesday, 6 August 2014. Jake Nailing Muse Again.
Jeannie's World: August 2006
http://jeannie-world.blogspot.com/2006_08_01_archive.html
My name is Jeannie I am 33 years old, this blog is about me and my fight against Motor neurone disease. I started showing signs of Motor neurone disease (MND) also known as Amyotrophic lateral sclerosis (ALS) in June 2000. Symptoms started in my left foot with stiffness and progressed slowly to my legs, hands, and speech. I was diagnosed in July 2001. Tuesday, August 08, 2006. This is my life. Me with girls (2004 I think). Posted by Jeannie at 4:13 PM. Sunday, August 06, 2006. Posted by Jeannie at 4:16 PM.
Jeannie's World: April 2007
http://jeannie-world.blogspot.com/2007_04_01_archive.html
My name is Jeannie I am 33 years old, this blog is about me and my fight against Motor neurone disease. I started showing signs of Motor neurone disease (MND) also known as Amyotrophic lateral sclerosis (ALS) in June 2000. Symptoms started in my left foot with stiffness and progressed slowly to my legs, hands, and speech. I was diagnosed in July 2001. Thursday, April 12, 2007. My power chair has just been collected for repair, know doubt it is the batteries and they claim If there is two or so months war...
Jeannie's World: May 2007
http://jeannie-world.blogspot.com/2007_05_01_archive.html
My name is Jeannie I am 33 years old, this blog is about me and my fight against Motor neurone disease. I started showing signs of Motor neurone disease (MND) also known as Amyotrophic lateral sclerosis (ALS) in June 2000. Symptoms started in my left foot with stiffness and progressed slowly to my legs, hands, and speech. I was diagnosed in July 2001. Thursday, May 31, 2007. Pictures of our back garden. Posted by Jeannie at 11:27 AM. Bethany's School sports day. Posted by Jeannie at 11:14 AM. Ive purchas...
Jeannie's World: January 2007
http://jeannie-world.blogspot.com/2007_01_01_archive.html
My name is Jeannie I am 33 years old, this blog is about me and my fight against Motor neurone disease. I started showing signs of Motor neurone disease (MND) also known as Amyotrophic lateral sclerosis (ALS) in June 2000. Symptoms started in my left foot with stiffness and progressed slowly to my legs, hands, and speech. I was diagnosed in July 2001. Tuesday, January 30, 2007. We are all doing good. Well until next time here are a few photo's of my new style xxx. Posted by Jeannie at 2:06 PM. I'm feelin...
Steve Evans Blog: April 2014
http://steveevans35.blogspot.com/2014_04_01_archive.html
Thursday, 3 April 2014. Just like old times. Almost. So yesterday I decided to return. We drove to Hampton Court station where there are very conveniently placed disabled parking spaces, hopped on a train with the help of the train's guard and was at Waterloo 35 minutes later. We only spent about an hour looking around, not wanting to push our luck. It was nice having made it there again albeit not under my own steam anymore. As always I can't help feeling many of the exhibits fall into "The Empo...After...
Steve Evans Blog: Enduring Motor Neurone Disease
http://steveevans35.blogspot.com/2014/08/enduring-motor-neurone-disease.html
Tuesday, 26 August 2014. Enduring Motor Neurone Disease. Wow, thats stunned us. Good luck with the campaign. Anna P. 4 September 2014 at 23:55. A very moving video indeed. very moving. I hope youre doing OK at the moment. All the best, Adrian. Ember Gdns. 6 September 2014 at 08:09. Subscribe to: Post Comments (Atom). For those of you who really want to, you can check out my "status" on my web link. Finally, PLEASE leave comments, even if brief as its the only way I know its being read!
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mndestroyer | My journey with MND
A classic by Berlin. April 17, 2012 at 11:31 am ( Uncategorized. Hi all, it seems an age since my last batch of inane drivel and rumblings. I have finally got things organised so I can access my study where the software is located to enable me to waffle for a while. A lot has been happening in the last month and I will hopefully give you some insight into what has been going on. I have battered and taken chunks out of doorframes and doors, run into things and squashed my toes against the foot plates and ...
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Scheme and Okasaki data structures. Add Shepherd service to GuixSD. STM8L-DISCOVERY open drain on CCO pin. FLOSS C library for STM8 microcontroller. Main site installed with Jakyll. Raquo; Yocto under GUIX. Raquo; Scheme and Okasaki data structures. Raquo; Add Shepherd service to GuixSD. Raquo; STM8L-DISCOVERY open drain on CCO pin. Raquo; FLOSS C library for STM8 microcontroller. Raquo; Main site installed with Jakyll.
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