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Modeling Change

Monday, 27 July 2015. 15 Random Things About Me…. I’ve never done a blogging challenge before, but reading CarolynThomas. Heartsisters and Natrice Rese. NatriceR wonderful posts on #15randomthings about them made me want to know #15randomthings about so many of the people I follow and read. It’s the random little bits that let you get to know your friends. So, in that spirit… here are 15 random things about me:. Me on anything on the water and I’m happy. Does anyone want to buy me a boat? Pretty things m...

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Modeling Change | modelingchange.blogspot.com Reviews
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Monday, 27 July 2015. 15 Random Things About Me…. I’ve never done a blogging challenge before, but reading CarolynThomas. Heartsisters and Natrice Rese. NatriceR wonderful posts on #15randomthings about them made me want to know #15randomthings about so many of the people I follow and read. It’s the random little bits that let you get to know your friends. So, in that spirit… here are 15 random things about me:. Me on anything on the water and I’m happy. Does anyone want to buy me a boat? Pretty things m...
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1 modeling change
2 i love it
3 the speed
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Modeling Change | modelingchange.blogspot.com Reviews

https://modelingchange.blogspot.com

Monday, 27 July 2015. 15 Random Things About Me…. I’ve never done a blogging challenge before, but reading CarolynThomas. Heartsisters and Natrice Rese. NatriceR wonderful posts on #15randomthings about them made me want to know #15randomthings about so many of the people I follow and read. It’s the random little bits that let you get to know your friends. So, in that spirit… here are 15 random things about me:. Me on anything on the water and I’m happy. Does anyone want to buy me a boat? Pretty things m...

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modelingchange.blogspot.com modelingchange.blogspot.com
1

Modeling Change: On Gratitude..

http://www.modelingchange.blogspot.com/2015/04/on-gratitude.html

Saturday, 11 April 2015. I’ve been thinking a lot about gratitude and loss, loss and gratitude. So much of my life is defined by the rare disease that has wound its way into the every day conversation of our lives. Whether things are going well or things are going poorly there are always the conversations wondering if it was this variable or that one that turned the tide. Could we repeat the pattern that worked? Is there a pattern that made it worse? Do we have any control over any of it? Our little nucl...

2

Modeling Change: Grant Reviewing: The Experience of a Parent

http://www.modelingchange.blogspot.com/2015/03/grant-reviewing-experienc-of-parent.html

Tuesday, 17 March 2015. Grant Reviewing: The Experience of a Parent. I recently had the privilege to attend the CanadianOrganization of Rare Disorder. 8217;s (CORD) 2015 Rare Disease Day Conference. And to take part in a panel on Patient Leadership in Research. So what do I bring to the research review process? How can parents and lay reviewers contribute the grant review process? Instead of focussing on what I don’t have, let me start by telling you who I am. I am deeply entrenched in my rare disease co...

3

Modeling Change: April 2015

http://www.modelingchange.blogspot.com/2015_04_01_archive.html

Saturday, 11 April 2015. I’ve been thinking a lot about gratitude and loss, loss and gratitude. So much of my life is defined by the rare disease that has wound its way into the every day conversation of our lives. Whether things are going well or things are going poorly there are always the conversations wondering if it was this variable or that one that turned the tide. Could we repeat the pattern that worked? Is there a pattern that made it worse? Do we have any control over any of it? Our little nucl...

4

Modeling Change: March 2015

http://www.modelingchange.blogspot.com/2015_03_01_archive.html

Tuesday, 17 March 2015. Grant Reviewing: The Experience of a Parent. I recently had the privilege to attend the CanadianOrganization of Rare Disorder. 8217;s (CORD) 2015 Rare Disease Day Conference. And to take part in a panel on Patient Leadership in Research. So what do I bring to the research review process? How can parents and lay reviewers contribute the grant review process? Instead of focussing on what I don’t have, let me start by telling you who I am. I am deeply entrenched in my rare disease co...

5

Modeling Change: July 2015

http://www.modelingchange.blogspot.com/2015_07_01_archive.html

Monday, 27 July 2015. 15 Random Things About Me…. I’ve never done a blogging challenge before, but reading CarolynThomas. Heartsisters and Natrice Rese. NatriceR wonderful posts on #15randomthings about them made me want to know #15randomthings about so many of the people I follow and read. It’s the random little bits that let you get to know your friends. So, in that spirit… here are 15 random things about me:. Me on anything on the water and I’m happy. Does anyone want to buy me a boat? Pretty things m...

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Monday, 27 July 2015. 15 Random Things About Me…. I’ve never done a blogging challenge before, but reading CarolynThomas. Heartsisters and Natrice Rese. NatriceR wonderful posts on #15randomthings about them made me want to know #15randomthings about so many of the people I follow and read. It’s the random little bits that let you get to know your friends. So, in that spirit… here are 15 random things about me:. Me on anything on the water and I’m happy. Does anyone want to buy me a boat? Pretty things m...

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