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Mommy For Madeline

Tuesday, August 30. Quarterly CF Clinic and Culture Results - October 2017. We made the nearly two hour drive up to Hopkins for her quarterly CF clinic visit. We left the house at 8 am and returned home by. The nurse also measures her height, takes her blood pressure, measures her oxygen levels, and her temperature. Once all her vitals are done, Madeline waits to be called back to the PFT Lab). After PFTs, the clinic nurse usually finds a room where we meet with the pharmacist who goes over each medicati...

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Mommy For Madeline | mommyformadeline.blogspot.com Reviews

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Tuesday, August 30. Quarterly CF Clinic and Culture Results - October 2017. We made the nearly two hour drive up to Hopkins for her quarterly CF clinic visit. We left the house at 8 am and returned home by. The nurse also measures her height, takes her blood pressure, measures her oxygen levels, and her temperature. Once all her vitals are done, Madeline waits to be called back to the PFT Lab). After PFTs, the clinic nurse usually finds a room where we meet with the pharmacist who goes over each medicati...

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1 cystic fibrosis

2 madeline's story

3 madeline's parents

4 photos

5 sandy long

6 no comments

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Mommy For Madeline | mommyformadeline.blogspot.com Reviews

https://mommyformadeline.blogspot.com

Tuesday, August 30. Quarterly CF Clinic and Culture Results - October 2017. We made the nearly two hour drive up to Hopkins for her quarterly CF clinic visit. We left the house at 8 am and returned home by. The nurse also measures her height, takes her blood pressure, measures her oxygen levels, and her temperature. Once all her vitals are done, Madeline waits to be called back to the PFT Lab). After PFTs, the clinic nurse usually finds a room where we meet with the pharmacist who goes over each medicati...

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mommyformadeline.blogspot.com

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Mommy For Madeline: Quarterly CF Clinic

http://mommyformadeline.blogspot.com/2014/04/quarterly-cf-clinic.html

Monday, April 14. Watching "Frozen" on the way to clinic. First, we usually check in upon arrival and wait for the nurse to get Madeline's stats. Usually the nurse gets her O2, height, weight, blood pressure, and respiratory rate. We are usually ushered back back out to the waiting room to sit until Madeline's name is called into the CF Clinic. We bring an assortment of iPads, games, movies, etc to keep Madeline busy since these appointments usually take close to 2 hours from start to finish. Good idea o...

2

Mommy For Madeline: Madeline's Journey

http://mommyformadeline.blogspot.com/2013/05/madelines-cf-video.html

Wednesday, May 1. It's been quite a while since I have updated this blog with much news from Madeline. Usually that means that Madeline's health has been going well. This is certainly true! We have been staying healthy through the summer and, we couldn't be more thankful for that. Sometimes CF takes unexpected turns but, we have learned to celebrate the healthy stretches. Our quarterly, CF Clinic visit at Hopkins is coming up next Friday, August 9th and, we will hope for good news then too. TOBI 2x a day.

3

Mommy For Madeline: Clinic Day

http://mommyformadeline.blogspot.com/2013/02/clinic-day.html

Sunday, February 3. We stopped our endless cycle of one month on, one month off of TOBI a few days ago. This cycle will continue indefinitely like it has for the past year or so due to the effects of Pseudo never wanting to actually leave. It's a constant frustration but clinic days like these prove that Pseudo has nothing on us and Madeline's well being right now. Registration and waiting to be called to nurses station for stats check. Height check at nurses station. 65279; Finally home. Daddy assem...

4

Mommy For Madeline: April CF Clinic

http://mommyformadeline.blogspot.com/2013/04/april-cf-clinic.html

Friday, April 12. We left for CF clinic this morning. It was a pretty rainy morning driving through DC and onto Baltimore to see Madeline's doctors at Hopkins. After a few traffic snarls, we arrived and waited to be checked in. Madeline chose to do the ipad while she waited to be called back. It's a plus during clinic day. We were very interested in the meeting with our Respiratory Tech, Ms. Karen. She was able to go over some breathing techniques that would be beneficial for Madeline to learn th...Overa...

5

Mommy For Madeline: CF Clinic- August

http://mommyformadeline.blogspot.com/2014/08/cf-clinic-august.html

Tuesday, August 26. We made the trek up to Hopkins. This would be Madeline's typical CF check up. Once there we went to the main hospital to get a chest x-ray This was a baseline x-ray. Usually CF patients get routine chest x-rays every 1-2 years to check for infections and abnormalities in the lungs. Waiting to be called back to for stats. Stats check (weight, blood pressure, oxygen levels, pulse, and height). Showing off her Elsa sticker she got from doing stats. Waiting to see doctor. Dr R and Madeline.

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sweetshotsbynicole.blogspot.com

Sweet Shots By Nicole: Book Review God gave us love

http://sweetshotsbynicole.blogspot.com/2012/02/book-review-god-gave-us-love.html

Wednesday, February 29, 2012. Book Review God gave us love. Once again, we received a book to review. I received this book from Waterbrook Multnomah Publishing Group for Review. This review is my opinion. Posted by Sweet Shots By Nicole! Subscribe to: Post Comments (Atom). Tot School Gathering Place Week 191. Carson's Birthday and Going Back to School Bash. Quarterly CF Clinic/ Culture Results - August 26, 2016. Just Swimming Right Along. Things to Remember When Doing a Family Roadtrip. One, two, three.

sweetshotsbynicole.blogspot.com

Sweet Shots By Nicole: July 2011

http://sweetshotsbynicole.blogspot.com/2011_07_01_archive.html

Thursday, July 28, 2011. These were some pictures from our photoshoot. You would be so surprised at how difficult it was to get a little certain boy into a tie-dyed shirt and on top of that, attempt to get him to smile and look at the camera. It took some major rump shaking by my sister. Posted by Sweet Shots By Nicole! Wednesday, July 27, 2011. I basically forgot all of July and about jumped straight into the end of July/August. Whoops! We spent one morning picking strawberries at the strawberry patch.

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Sweet Shots By Nicole: January 2012

http://sweetshotsbynicole.blogspot.com/2012_01_01_archive.html

Saturday, January 14, 2012. So we are changing things up a little. I decided that I really like the idea of placing all of these pictures into a photo book. So hopefully, week by week, I will make time to place the pictures into a layout and journal about the week. At least I decided to start this during week 2 and not week 22. Here are the layouts for Week 2 – 7 pictures is all as some days I really struggle and phone pics were the best I got. I did remember though. Thankfully. Saturday, January 7, 2012.

sweetshotsbynicole.blogspot.com

Sweet Shots By Nicole: June 2011

http://sweetshotsbynicole.blogspot.com/2011_06_01_archive.html

Tuesday, June 21, 2011. Well, I had high hopes that I would get on here more often, but again, summer is summer and that means being busy. Oh Well. Well that and the fact that I am waiting for my dear hubby to add some more space on our computer. Apparently I have too many photos stored on my computer. Who Knew. . Today I am linking up to sweet shot Tuesday at. Posted by Sweet Shots By Nicole! Monday, June 13, 2011. Huge Bloggy Break – I guess. Posted by Sweet Shots By Nicole! I Have CF. So what?

sweetshotsbynicole.blogspot.com

Sweet Shots By Nicole: February 2012

http://sweetshotsbynicole.blogspot.com/2012_02_01_archive.html

Wednesday, February 29, 2012. Book Review God gave us love. Once again, we received a book to review. I received this book from Waterbrook Multnomah Publishing Group for Review. This review is my opinion. Posted by Sweet Shots By Nicole! Subscribe to: Posts (Atom). Tot School Gathering Place Week 191. Carson's Birthday and Going Back to School Bash. Quarterly CF Clinic/ Culture Results - August 26, 2016. Just Swimming Right Along. Things to Remember When Doing a Family Roadtrip. I Have CF. So what?

sweetshotsbynicole.blogspot.com

Sweet Shots By Nicole: Week 2

http://sweetshotsbynicole.blogspot.com/2012/01/week-2.html

Saturday, January 14, 2012. So we are changing things up a little. I decided that I really like the idea of placing all of these pictures into a photo book. So hopefully, week by week, I will make time to place the pictures into a layout and journal about the week. At least I decided to start this during week 2 and not week 22. Here are the layouts for Week 2 – 7 pictures is all as some days I really struggle and phone pics were the best I got. I did remember though. Thankfully. Just Swimming Right Along.

sweetshotsbynicole.blogspot.com

Sweet Shots By Nicole: Wordless Wednesday–Still Shakin

http://sweetshotsbynicole.blogspot.com/2012/01/wordless-wednesdaystill-shakin.html

Wednesday, January 4, 2012. Wordless Wednesday–Still Shakin. Posted by Sweet Shots By Nicole! January 4, 2012 at 1:22 PM. Looks cute and VERY familiar! Subscribe to: Post Comments (Atom). Tot School Gathering Place Week 191. Carson's Birthday and Going Back to School Bash. Quarterly CF Clinic/ Culture Results - August 26, 2016. Just Swimming Right Along. Things to Remember When Doing a Family Roadtrip. I Have CF. So what? Orkambi Update: 6 Months. One last family before we had snow! One, two, three.

sweetshotsbynicole.blogspot.com

Sweet Shots By Nicole: The EVERYDAY weekly dump–Week 1

http://sweetshotsbynicole.blogspot.com/2012/01/everyday-weekly-dumpweek-1.html

Saturday, January 7, 2012. The EVERYDAY weekly dump–Week 1. I know it’s just the first week of this challenge, however, I feel like it’s going great. I have been remembering to pick up my camera and take some shots even if we aren’t doing anything fantastic or even if we are just sitting around on a very typical day. Day 1 (great start to “the everyday” as the only photo I took was this one on my phone! I walked into Rylee’s room to grab her blanket for rest time and saw this. Stacking pillow p...Since t...

sweetshotsbynicole.blogspot.com

Sweet Shots By Nicole: February 2011

http://sweetshotsbynicole.blogspot.com/2011_02_01_archive.html

Tuesday, February 22, 2011. Baby Kasey – Day….Who knows. This is baby Kasey. Rylee screamed to take baby Kasey home with her when we left his house. She settled for a picture. This is day something and sometime this week I will rummage through my pictures, edit a few, and post the remainder days to catch up. This picture was taken on Saturday while visiting this little man. Posted by Sweet Shots By Nicole! Wednesday, February 16, 2011. Book Review – The Dragon and the Turtle. Tuesday, February 15, 2011.

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Mommy For Madeline

Tuesday, August 30. Quarterly CF Clinic and Culture Results - October 2017. We made the nearly two hour drive up to Hopkins for her quarterly CF clinic visit. We left the house at 8 am and returned home by. The nurse also measures her height, takes her blood pressure, measures her oxygen levels, and her temperature. Once all her vitals are done, Madeline waits to be called back to the PFT Lab). After PFTs, the clinic nurse usually finds a room where we meet with the pharmacist who goes over each medicati...

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