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Mommy KlorThis is a blog about my son John and GAMT.
http://mommyklor.blogspot.com/
This is a blog about my son John and GAMT.
http://mommyklor.blogspot.com/
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This is a blog about my son John and GAMT.
mommyklor.blogspot.com
Mommy Klor: March 2011
http://mommyklor.blogspot.com/2011_03_01_archive.html
This is a blog about my son John and GAMT. Tuesday, March 8, 2011. I was asked recently to make a list of all the words John is now able to say. He has made some great progress recently. Most of these words he still does not say the way we would say them and some are probably only understood by us, but here is his list and a simi interpretation of the sound. Bubbles - buh buh. Yes or yeah - aah. Emma (the dog) - EEEEhh (in a loud voice, just like we call to her). Dad - AAAAhhhhd (he yells for him too).
Mommy Klor: September 2012
http://mommyklor.blogspot.com/2012_09_01_archive.html
This is a blog about my son John and GAMT. Thursday, September 6, 2012. John's 1st day of 4-year old preschool. I think this year John is going to do great in preschool. I'm really excited about his preschool teachers and all the fun things they have planned for him to learn! I want to capure some of what John is doing and not doing at the beginning of this year, so that hopefully at the end of the school year I can look back to see the progress he has made. He can cut paper in straight lines.
Mommy Klor: July 2012
http://mommyklor.blogspot.com/2012_07_01_archive.html
This is a blog about my son John and GAMT. Sunday, July 8, 2012. Interesting Lab Results - Learning more about GAMT. This is a conversation that took place on our facebook support group. And the Results are in. Gave John his last supplements around 6pm. Went to Duke and had 1st Blood Draw at 9am (15 hrs later) - no supplements that morning, no food. Feed John a 4 oz yogurt with 3 grams protein along with his milk and all medicines apx. 9:45am. Repeated Blood Draw 4 hours later. I very much agree that giv...
Mommy Klor: Iron
http://mommyklor.blogspot.com/2011/03/iron.html
This is a blog about my son John and GAMT. Tuesday, March 8, 2011. We found out recently that John has an iron deficiency, so he is now on an iron supplement. That means 4 supplements now, three times a day! Subscribe to: Post Comments (Atom). On the night you were born, the moon smiled with such wonder that the stars peeked in to see you. And the night wind whispered, Life will never be the same." - Nancy Tillman. View my complete profile. GAMT is being diagnosed. There was an error in this gadget.
Mommy Klor: John's 1st day of 4-year old preschool
http://mommyklor.blogspot.com/2012/09/johns-1st-day-of-4-year-old-preschool.html
This is a blog about my son John and GAMT. Thursday, September 6, 2012. John's 1st day of 4-year old preschool. I think this year John is going to do great in preschool. I'm really excited about his preschool teachers and all the fun things they have planned for him to learn! I want to capure some of what John is doing and not doing at the beginning of this year, so that hopefully at the end of the school year I can look back to see the progress he has made. He can cut paper in straight lines.
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Creatine Transporter What?: Supplement update
http://creatineboy.blogspot.com/2011/09/supplement-update.html
Ring the bells that still can ring; Forget your perfect offering. There is a crack in everything; That's how the light gets in. Friday, September 16, 2011. The little guy's now THREE and tipping the scales at a whopping 28.5 lbs, here's his daily dose roundup:. Creatine 1.3g x 4/day. Glycine .65g x 3/day. L-arginine 1.75g x 3/day. Is low weight common amongst kids with Creatine Transporter Deficiency? Labels: creatine transporter deficiency. What is Creatine Transporter Deficiency? Ive started telling pe...
Creatine Transporter What?: Treatment Protocol
http://creatineboy.blogspot.com/2010/06/treatment-protocol.html
Ring the bells that still can ring; Forget your perfect offering. There is a crack in everything; That's how the light gets in. Friday, June 18, 2010. His dosage for his weight (10kg):. L-Arginine 1400mg x 3. Glycine 500mg x 3. Creatine 1g x 4. It will just take a little more time for it to become as automatic as applying sunscreen or putting on mittens. We'll get there. Labels: creatine transporter deficiency. OMG I didnt realize that arginine and glycine needs to be refrigerated. Arginine tastes re...
Creatine Transporter What?: Put Your Hand in the Hand...
http://creatineboy.blogspot.com/2012/02/put-your-hand-in-hand.html
Ring the bells that still can ring; Forget your perfect offering. There is a crack in everything; That's how the light gets in. Saturday, February 4, 2012. Put Your Hand in the Hand. I can't believe it's been nearly 2 years since my son's diagnosis. In some ways it's been the longest 2 years of my life and in other ways, if feels like it was just yesterday. We're beginning the process of prepping him for school. Real school. The big brick building down the street where hundreds of kids go? Ive started te...
Creatine Transporter What?: Oh, hey there.
http://creatineboy.blogspot.com/2015/12/oh-hey-there.html
Ring the bells that still can ring; Forget your perfect offering. There is a crack in everything; That's how the light gets in. Tuesday, December 8, 2015. Oh, hey there. I haven't posted in a while. In years. I ought to go back and read all my posts from the beginning but, truthfully, I'm not up for relieving all of that right now. I don't want to feel all the feelings. He had a not-so-bad day today. He was hitting other students. During library he threw books. He had trouble with transitions today.
Creatine Transporter What?: December 2011
http://creatineboy.blogspot.com/2011_12_01_archive.html
Ring the bells that still can ring; Forget your perfect offering. There is a crack in everything; That's how the light gets in. Thursday, December 29, 2011. At our most recent genetics appointment, we were told about SAMe. I'm not sure how this all fits in with Creatine Transporter Deficiency, my limited scientific knowledge certainly doesn't help me wrap my head around it all. I'll find out more at our next appointment this winter and will keep you posted. In the meantime, check out what awesome things.
Creatine Transporter What?: Role of Creatine in ASD?
http://creatineboy.blogspot.com/2011/02/role-of-creaitne-in-asd.html
Ring the bells that still can ring; Forget your perfect offering. There is a crack in everything; That's how the light gets in. Friday, February 4, 2011. Role of Creatine in ASD? There are some interesting studies underway that examine the link between creatine deficiency syndromes and autism spectrum disorders. Here's an excerpt of one study (pdf). Prevalence of Creatine Deficiency Syndromes and Genetic Variability in Creatine Metabolism in Children with Autism Spectrum Disorder – A Pilot Study". There ...
Creatine Transporter What?: Moving on up?
http://creatineboy.blogspot.com/2011/03/moving-on-up.html
Ring the bells that still can ring; Forget your perfect offering. There is a crack in everything; That's how the light gets in. Saturday, March 19, 2011. What a difference a year makes. Almost exactly one year ago, at 19 months of age, my son was given a diagnosis of Creatine Transporter Deficiency (actually,Creatine Transporter Defect. Having a case of the perpetual bitter-boots does not good company make, even for one's self. So, what difference does a year make? A lot if you factor in therapy! In Marc...
Creatine Transporter What?: SAMe
http://creatineboy.blogspot.com/2011/12/same.html
Ring the bells that still can ring; Forget your perfect offering. There is a crack in everything; That's how the light gets in. Thursday, December 29, 2011. At our most recent genetics appointment, we were told about SAMe. I'm not sure how this all fits in with Creatine Transporter Deficiency, my limited scientific knowledge certainly doesn't help me wrap my head around it all. I'll find out more at our next appointment this winter and will keep you posted. In the meantime, check out what awesome things.
Creatine Transporter What?: Walking on Sunshine
http://creatineboy.blogspot.com/2010/08/walking-on-sunshine.html
Ring the bells that still can ring; Forget your perfect offering. There is a crack in everything; That's how the light gets in. Monday, August 23, 2010. I have some Big News to report: the little guy took his first independent steps yesterday and took a bunch more this morning! I was wishing and hoping that he'd be walking by his second birthday (less than one week away) so I am simply bursting with pride. OMG, I am so happy for you. I want to say I told you so :) but I wont. Cant stop smiling. What a di...
Creatine Transporter What?: The absence of normal 'frees us' by Ian Brown
http://creatineboy.blogspot.com/2011/10/absence-of-normal-frees-us-ian-brown.html
Ring the bells that still can ring; Forget your perfect offering. There is a crack in everything; That's how the light gets in. Sunday, October 23, 2011. The absence of normal 'frees us' by Ian Brown. This story originally appeared in BLOOM, Holland Bloorview's magazine on parenting kids with disabilities. Without question the most common reaction people have, when they find out I have a seriously disabled son, is “I don’t know how you do it.”. Then he throws his head back and laughs. I know it’s n...
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mommykitchenplayground.blogspot.com
Mommy's Kitchen Playground
Monday, April 18, 2011. Pandan Chiffon, Muesli Honey Loaf and Chilled Mango Cheese cake. For me, i baked her favourite Coffee chiffon cake and sweet potatoes soup. too bad we didn't take any pictures. I used the Coffee Chiffon recipe from Small Small Baker and it turns out to be a successfull one. The following pic i posted was Pandan Chiffon I baked using Yin Yin's to keep recipe. Thursday, March 24, 2011. So happy ( o ) to receive this pretty pouch with my name and a key chain. Thank you so much Sy...
Mommy cooking | Let's cook with your mommy
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Mommy Cooking - Recipes of Delicious Meals | Let's cook with mommy cooking. Best recipes make you are proud of yourself
Mommy Cooking – Recipes of Delicious Meals. Let's cook with mommy cooking. Best recipes make you are proud of yourself. Why do we need delicious recipes? How to make Salt Fish Cakes and Sauce Marie Rose. Recipe of salt fish cakes (6-8 people). 8211; 1/2 lb of salted cod. 8211; 2 cups of flour. 8211; 1 teaspoon of baking powder. 8211; 2 eggs. 8211; 1 shallot. 8211; 2 scallions. 8211; 2 cloves of garlic. 8211; 1 hot pepper. 8211; 1 small bunch of parsley. 8211; 1/2 cup of warm milk. Continue reading →.
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Mommy Klor
This is a blog about my son John and GAMT. Thursday, September 6, 2012. John's 1st day of 4-year old preschool. I think this year John is going to do great in preschool. I'm really excited about his preschool teachers and all the fun things they have planned for him to learn! I want to capure some of what John is doing and not doing at the beginning of this year, so that hopefully at the end of the school year I can look back to see the progress he has made. He can cut paper in straight lines. I gave Joh...
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Mommy Knits
Daddy works at the Navy and Mommy knits! Knitting Blogs I'm Reading. All This By Hand. Good to be Girl. I'm Knitting As Fast As I Can. Other Blogs I'm Reading. Subscribe to this blog's feed. April 24, 2007. So I added another couple of strips to the blanket and a few more rows to the hood but I've been really distracted lately by work things. So what do I do but cast on a little quickie project. Just what the doctor ordered cute little booties! I got the pattern for these booties. 08:00 AM in Baby Stuff.
I'm a Mom....now what?
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Mommy Know-It-All.net
A no-nonsense guide to pregnancy, childbirth, and early mommyhood. If you're here, I hope that you get a chance to browse the ever-growing list of topics related to all things BABY! There's tons of great info out on the web these days, but only here will you find comprehensive knowledge AND real-life advice from someone who has "been there, done that" as a nurse and a mommy! Please leave me a comment if you want some information about a topic or have a specific topic in mind that you want to know about.
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Real Food / Easy Meals. Lemon Drop Sugar Cookies for your next Cookie Exchange. Follow me on Twitter here. November 26, 2014. Real Food / Easy Meals. If you are like me, a cookie exchange sounds like a fabulous idea, until the day before, when you have 859 important tasks to accomplish and NO COOKIES made. If you’re a procrastinator like I am, this recipe using a Betty Crocker Sugar Cookie Mix. Is going to be a life-saver. 1 pkg of Betty Crocker Sugar Cookie Mix. 1 tsp lemon juice. 1 tsp of lemon zest.
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