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Mooney=MC2 | living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008)living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008)
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living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008)
http://www.mooneyequalsmc2.com/
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Melinda Mooney
14806 Mc●●●●●●●●ghway SW
Cum●●●and , Maryland, 21502
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Melinda Mooney
14806 Mc●●●●●●●●ghway SW
Cum●●●and , Maryland, 21502
US
View this contact
Melinda Mooney
14806 Mc●●●●●●●●ghway SW
Cum●●●and , Maryland, 21502
US
View this contact
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Mooney=MC2 | living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008) | mooneyequalsmc2.com Reviews
https://mooneyequalsmc2.com
living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008)
mooneyequalsmc2.com
First train ride: Scenic Railroad | Mooney=MC2
https://mooneyequalsmc2.com/2015/06/13/first-train-ride-scenic-railroad
Living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008). So who are these people? A urea cycle disorder) and some answers to frequently asked questions. First train ride: Scenic Railroad. June 13, 2015. Corrigan took his first ride on the scenic railroad this morning! On to the photos! One thought on “ First train ride: Scenic Railroad. June 13, 2015 at 7:38 pm. Wow, he has really grown! I am glad he had a good time! Your comments are appreciated! Enter your comment here.
Citrullinemia | Mooney=MC2
https://mooneyequalsmc2.com/tag/citrullinemia
Living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008). So who are these people? A urea cycle disorder) and some answers to frequently asked questions. First day of Second Grade. August 23, 2016. Happy Birthday and surgery. June 10, 2016. January 28, 2016. First train ride: Scenic Railroad. June 13, 2015. A letter to my child’s disorder. March 5, 2015. Emergency Room line jumpers are the worst, am I right? February 28, 2015. Rare Disease Day 2015. Call off the Rangers. Home school...
photo 3 (8) | Mooney=MC2
https://mooneyequalsmc2.com/2015/07/18/thyroid-free-thoughts/photo-3-8-2
Living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008). So who are these people? A urea cycle disorder) and some answers to frequently asked questions. Your comments are appreciated! Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out. July 18, 2015.
What is Citrullinemia? (a urea cycle disorder) and some answers to frequently asked questions. | Mooney=MC2
https://mooneyequalsmc2.com/citrullinemia
Living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008). So who are these people? A urea cycle disorder) and some answers to frequently asked questions. A urea cycle disorder) and some answers to frequently asked questions. Sĭt’rə-lə-nē’mē-ə, sĭ-trŭl’ə-). Type I citrullinemia is the most common form of the disorder, affecting about 1 in 57,000 people worldwide. Type II citrullinemia is found primarily in the Japanese population, where it occurs in an estimated 1 in 100,000 to 2...
PicTapGo-Image | Mooney=MC2
https://mooneyequalsmc2.com/2015/07/18/thyroid-free-thoughts/pictapgo-image
Living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008). So who are these people? A urea cycle disorder) and some answers to frequently asked questions. Your comments are appreciated! Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out. July 18, 2015.
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Alexa's Adventures--A story to be told!: June 2014
http://moralesmoments.blogspot.com/2014_06_01_archive.html
Alexa's Adventures- A story to be told! Our family's story: From a diagnosis of a Urea Cycle Disorder(Citrullinemia) at birth to Liver Transplant.and all the ups and downs in between that make it all worth it. Organ Donation in Ontario. Walk for Sick Kids. Tuesday, June 17, 2014. I'm A Big Kid Now. This month has been BUSY! Fun- but incredibly busy! This is quite obvious by the lack of posts on this blog. Now, onto the fun stuff. I said we have had a busy month and I meant it. May started off with a trip...
Alexa's Adventures--A story to be told!: A Year Later
http://moralesmoments.blogspot.com/2014/07/a-year-later.html
Alexa's Adventures- A story to be told! Our family's story: From a diagnosis of a Urea Cycle Disorder(Citrullinemia) at birth to Liver Transplant.and all the ups and downs in between that make it all worth it. Organ Donation in Ontario. Walk for Sick Kids. Friday, July 18, 2014. But here we are a year later, and what a year it has been! Because they work though my paranoias and PTSD-like symptoms without judgement. And because they take care of not just Alexa, but our family! I am still stunned by the wo...
Alexa's Adventures--A story to be told!: March 2014
http://moralesmoments.blogspot.com/2014_03_01_archive.html
Alexa's Adventures- A story to be told! Our family's story: From a diagnosis of a Urea Cycle Disorder(Citrullinemia) at birth to Liver Transplant.and all the ups and downs in between that make it all worth it. Organ Donation in Ontario. Walk for Sick Kids. Monday, March 17, 2014. 8 Months and Going Strong. It has been over a month since I have updated and to be honest, I don't have a lot to say. But tomorrow is 8 months since the transplant and I could not let that go without acknowledging it. It is hard...
Alexa's Adventures--A story to be told!: June 2015
http://moralesmoments.blogspot.com/2015_06_01_archive.html
Alexa's Adventures- A story to be told! Our family's story: From a diagnosis of a Urea Cycle Disorder(Citrullinemia) at birth to Liver Transplant.and all the ups and downs in between that make it all worth it. Organ Donation in Ontario. Walk for Sick Kids. Tuesday, June 16, 2015. Making Time Stand Still. Well I definitely was not in my happy place with my last post. I needed a couple of days, a week even to get out of my slump. Oops- did I say that out loud? How did it go by so fast? Canadian Organizatio...
LIFE'S UNEXPECTED TURN: October 2011
http://mahiyaucd.blogspot.com/2011_10_01_archive.html
Monday, October 31, 2011. Transplant - Long story short. On Sep 9, Friday I got a call around 9.30AM, it was from Dr. E. My heart started racing. She said we have a perfect liver for Mahiya. She asked how do you feel? Doctors who attended her code came and talked. With us, they felt like it was very quick so any damage that was caused should be reversible. And her brain should be fine. That evening the surgeon examined her abdomen and she open her eyes and looked at him, which he said it is a ver...We ar...
LIFE'S UNEXPECTED TURN: January 2012
http://mahiyaucd.blogspot.com/2012_01_01_archive.html
Tuesday, January 24, 2012. It was such a great statement. We don't know our destination, but will keep moving with hope and try our best to keep her happy. When we bring up any issues with Mahiya to the doctors, they say "she is very complex it is not easy to tell anything or pinpoint a reason". We don't know what to do sometimes.Wish there was a specialist who is an expert in all fields. Mahiya's progress has been really slow. Patience is a virtue. Hope our patience will be rewarded. Welcome to this blog.
LIFE'S UNEXPECTED TURN: February 2012
http://mahiyaucd.blogspot.com/2012_02_01_archive.html
Saturday, February 18, 2012. After coming home, we have been giving her little taste of food that she loved before her code it seemed like she was liking it. Last week we had another evaluation and the ST gave her half a baby spoon of apple sauce. She opened her mouth and bit on the spoon and won't let go. Again the ST started "she still has the tonic bite". NOT AGAIN! Mahiya has not had much solids even before her code, so she it is new to her. Hope she starts eating solids and likes it.
Tale of One Quirky Amy: Bone Yard trying to open for Kiss
http://ucdamy.blogspot.com/2010/06/bone-yard-trying-to-open-for-kiss.html
Tale of One Quirky Amy. I am writing this blog to show patients and families of adult patients with urea cycle disorders that life can be fun even when coping with a UCD on a daily basis. All posts on this blog that inlcude information about my medical care/treatment of Ornithine Transcarbamylase Deficiency (OTC) are for personal documentation and in now way are to be taken as "medical advice". Amy and J.J. Happiness is possible even while living with a UCD. Wednesday, June 2, 2010. First day of Second G...
LIFE'S UNEXPECTED TURN: April 2012
http://mahiyaucd.blogspot.com/2012_04_01_archive.html
Friday, April 20, 2012. After passing swallow study, she is taking some formula orally. She takes 40 to 50 mls in a day. She is still getting most of her feed through J-tube. Hopefully some day we could go with just G-tube for her feeds and meds. Subscribe to: Posts (Atom). Welcome to this blog. A wife and full-time mom of 2 wonderful girls.I strive hard to be the best mom that I can be for my little ones. View my complete profile. First day of Second Grade. Condemned to Die: Ask me how. Tell me why.
LIFE'S UNEXPECTED TURN: August 2011
http://mahiyaucd.blogspot.com/2011_08_01_archive.html
Friday, August 26, 2011. 4 days at home, is it too much already? Monday, August 22, 2011. We pray for Mahiya's stability until a liver becomes available. It is killing us to pray for a faster availability as it has to be a deceased donor. We just pray for Mahiya's stability. Mithilya is starting her Kindergarten this fall Sep 7,2011. She is very excited. We are excited too, want her to get out and have a normal life, but still we are scared of all the germs that she is going to bring home. Aug 10, 2011: ...
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Mooney-Engle Land Company LLC | Developing land, relationships and trust.
Serving Cedar Rapids, Marion, Hiawatha, Robins and Beyond 319-373-7815. Mooney-Engle Land Company LLC. Mooney-Engle Land Company provides conscientious land development services to landowners in and around Cedar Rapids, Marion, Robins and Hiawatha, Iowa, and beyond. As your neighbors, owners Dan Engle and Tim Mooney care deeply about the community surrounding each site. As experts in land development services. In addition, we offer commercial. PO Box 386, Marion, IA 52302 319-373-7815. Find us on Facebook.
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Mooney=MC2 | living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008)
Living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008). So who are these people? A urea cycle disorder) and some answers to frequently asked questions. Listed: Week 4 (a little late). February 12, 2018. I didn’t update last week because, well, literally nothing happened! Read more ». Listed: Week 3 (hurry up and wait). February 2, 2018. January 26, 2018. January 19, 2018. Smiling on the outside. December 9, 2017. Inpatient stay-2nd this month. December 9, 2017. November 16, 2017.
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